@A MySpondylitisTeam Member - this site is definitely not like Facebook where there’s only
🦋 🦋 🌈 🌈🍭 🍭 But still, we don’t share all the stressors that come to us in so many different forms. It’s hard. Especially when you have a child at home like you do. Then your messing with Momma heart ♥️
I remember the struggle & the guilt. I promise it will ease after they are off making a life for themselves. I try not to look back too often because I can’t change the past. I saw this meme and it was a good reminder 🤗

My daughter & a dear friend of mine happen to both be looking at the people in their lives - toxic people. People that don’t lift them up, people that they don’t feel good after hanging out with them, people that suck you dry (how’s that for eloquent? 😭). It reminds me of the people who ghosted us. The ones that couldn’t handle our new normal. As much as it hurts, I’m thankful that I found out the “level” of our relationship. I could have found their character through other ways that honestly could have been more hurtful. That doesn’t mean I won’t look back and have some rugs on my heart. But again I try not to do that too often. I don’t have the energy & must reserve my spoons. The Spoon Theory was a saving grace for me to explain my condition in the beginning of this disease to my family and close friends. I forward it on every chance I get especially when someone is at the beginning on this disease.

I love you my friend. Hope we can chat one day soon 🤗

@A MySpondylitisTeam Member - the fatigue is worse than pregnancy fatigue 😰🫠🥱. I’m noticing that when there’s big stressors - the heart kind ❤️‍🩹 - my body goes into sleep mode. I think it’s part of how I process all the emotions with my current body. My body takes a big hit in all aspects! I’ve been trying to come out of this fatigue & the pain from my SI joints. I ended up going to a health nutrition store & a certified nurse gave vitamin c & b injections. So I gave it a go. I didn’t feel any different but maybe it takes a minute. After todays activities, I’m getting in the car slowly & my hips go out & the pain was incredible! I put my SI Joint Belt on & can only walk in very small intentional steps. Not good 😞

Hope you’re having a peaceful sleep. May you be Comforted by the Lord in your current season. May He remind you the it’s only for a time. Joy is coming in the morning ☀️. I’m waiting for it too. May God bring forth the Joy soon that we’re both waiting for. In Jesus Name we pray. Amen 🙏🏾

Yes this happens to me! It’s fatigue flare. It’s very frustrating but I know our bodies repair and create new cells when we’re sleeping. We have so much inflammation that our bodies just have to sleep it off sometimes. It’s hard but we have to listen to our body with this disease or we pay for it later - like I am right now 😤

Yep!!