I agree, I think you need a new rheumatologist if that's a choice. There are so many articles regarding AS and flare ups. I am sorry you are going through this and for your flares. Stress can cause flares as well as overdoing it physically. Take some time to care for yourself...rest and relaxation, if possible. We are here for you.

Excuse me...
I do not agree. We flair just like with any other form of arthritis. That's why it's one of the inflammation issues. 🙄
Hang in there.

Painful to read your experience. But, it is common enough that a good international plan is needed for helping the medical community stay up-to-date in SpA diagnostics and treatment plans.

Flare-ups impact spine and all joints (joints and cartilage). This definitely includes the finger joints. They undoubtedly saw some x-rays of AS hands during medical college. I did in a pre-med class's brief section on rare diseases. It definitely can warp hands and feet, as well as the spine.

I learned the hard way that many doctors are poorly trained in our "rare" diseases. Unfortunately, we must become our best advocates when the medical staff doesn't committ to current and annual CEU's in SpA diseases. Study all the resources made available by the physicians at this website. Or, have a family member and/or friend do this for you.

Please continue to write your journey here. We will support you the best we can. I want you to receive annually the most effective treatment plan for you.

Apparently I know more than my rheumy PA. I’m going to see the actual rheumatologist in 3 months. If he has similar answers to hers, I’m done. I know they have a lot of diseases to keep up with but hey, you make lots of money to keep up. Or they can say let me research that. I’m ok with that answer. As a nurse I was taught a nurse that thinks she knows everything is a dangerous nurse. Same for doctors.

Really?!?! Maybe she should read the article on this website and flare-ups and AS.
I saw my Rheumatologist last week and we talked about them. Unfortunately there's nothing we can do about them except looking for relief in stretching, water therapy, or use ice/heat. I know it sounds crazy but moving is what we need to do. He suspects that I have developed bursitis in my hips and my IT band is extremely sore. I started PT yesterday. My therapist is well-versed on AS. She showed me such simple adjustments to start doing, I couldn't help but think why the other PTs that I've seen over the years didn't know about these! I'll be seeing her twice a week through September.
Sending good vibes to all. Hugs, Wanda