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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MySpondylitisTeam Member asked a question 💭
Grand Haven, MI

Is anyone taking a biological to treat both these conditions? I have to switch off Humira to something else. I check out Cimzia but their assistance program does not apply if you have medicare. Thus, far too expensive. I would rather not do Remicade because of the transfusion that is a little disruptive.

Take Care All

August 19, 2023
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A MySpondylitisTeam Member

For drug assistance try The Assistance Fund. They pay 100% of co-pay and they accept medicare. It is income based but the base is fairly high.

August 23, 2023
A MySpondylitisTeam Member

For co-pay assistance try different specialty pharmacies even if they are he same chain but different locations. They all have different grant options and forms of assistance for payment. We went out of state to get a cancer med but not because of co pay issues. Mississippi didn’t have the infrastructure to protect the temperature of the medicine. Also check the state healthcare office. We didn’t go the state route.

August 31, 2023 (edited)
A MySpondylitisTeam Member

I'm 71. The way I look passed a while ago. With +50 years of AS experience I've had a lot. But it never stopped me from living a productive, good and big life (as I still do). The lost annoying is skin cancer including melanoma (I credit the "B"'s - beach, boat babes, beer and booze). I have mohs surgery scheduled in a week. Have had over 25 surgeries for skin cancer from ankle to neck (so far). Biologicals are not cancer friendly. I remember a few times in earlier days going to ER (for strurem inflammation) - when you walk in "do you have chest pains" - I always went to the first in line to get a steroid shot while they wired me up for a heart attack. Crazy and amazing life from the boardroom to Hollywood.. I'm grateful and thankful and my hope in Him continues.

August 20, 2023
A MySpondylitisTeam Member

Remicade was the best for AS+Ulcerative Colitis, but insurance made me switch to Inflectra (biosimilar). Inflectra is not as good. If my body rejects it then I gotta switch too.

August 30, 2023
A MySpondylitisTeam Member

A few years ago I had shingles on my face. Doc though it may be MRSA because it was on both sides of my forehead. It went away with time. It was not a pleasant experience. Have great sympathy for others.

August 20, 2023

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A MySpondylitisTeam Member asked a question 💭
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