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Members connected over their shared experiences with fibromyalgia, with many having lived with the diagnosis for decades alongside other... Read more
Hi again - I just wanted to say that my rheumatologist said to see my GP for the fibromyalgia; she doesn't treat that problem. I thought that strange.
I'm living fine with it - only a day here or there where the muscle pain is very bad or very tired, which can also be AS.
I've learned to give all of my troubles to God and I trust Him to guide me and help me each day. It's a sweet peace to lean on Him and let go of things I have very little control over.
I will be starting Remicade infusions soon, maybe in July or August. I will still be continuing the methatrexate pills, I'm told.
I started drinking ginger tumeric tea; it seems to help a bit when I drink it faithfully (a cup a day). I drink it only occasionally now, but in a flare I will drink it daily. I'll let you know if it helps the flare.
God bless and help you all as you put your trust in Him. 🙏💖
Thank you to everyone who answered I love and appreciate you guys so much!❤️ I was just wondering. The doctor just said that I have it and wondered who else may have it. It has given me more answers to my everyday living experience. I hope you all are doing well and God bless you all!✝️💜
@A MySpondylitisTeam Member Thank you her name is Halo. She is one of the six that I have.😻
@A MySpondylitisTeam Member, hello, yes, I was diagnosed with fibromyalgia years ago.
I have found that I just keep moving, or stiffness sets in. Wishing you all the best. ❣️
God bless you,
@A MySpondylitisTeam Member
Yes, I've had it for many years, along with many other ailments.
Yes I have - Diagnosed with fibromyalgia 30 years ago - explained why I had those sore places all over the body and couldn't sleep well. I'm not taking anything for it, doing better dealing with the way things feel. 🎶. Are you having trouble with the symptoms currently? 🙏❤️
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