Yes, Jiri, the gut microbiome is hugely important. Which is why I have been on the Autoimmune Protocol diet for 11 months... I am determined to heal my leaky gut! And stress is a hugely important factor (hence the meditation, yoga, walks, therapy, cold bathing and talking with all you great team members).
I think perhaps the best is not to test, but to keep teaching them the skills they need to support their health and to keep modeling making healthy choices... and in the meantime to focus on fun, joy and spontaneity... on all the days that I am physically capable to do so.
I am so grateful for everyone's input! 🙏

That’s why we are here. To listen to your stories and your progress. I hope you have a pain free day.

These are profound words Jiri and much "food for thought" as we say. My mother also has AS and it started impacting my life from an early age as she was in and out of hospitals. I remember crying about it in 3rd grade at recess. And we also got tired of hearing about her pain. She certainly did not hide it from us and let it effect her mood. She decided to stay in bed and (except for a good few moments here and there) she has been there ever since...for 30 years...
So my kids see how AS has effected her. I tried to hide it and push through, but I am not as strong as you either, I'm afraid. They see my pain, my fatigue and my brain fog. My daughter always runs back and helps me walk on stairs...every time we come across them. I wish she could have seen me hike for 4 days to Macchu Picchu... they don't know that side of me. My goal over the last year was/is to listen to my body and get to a place where they can see a better version of me...I want to show them that a good life can be lived. That it's not about staying in bed, nor about pushing too hard, but listening to your body. But I get so frustrated with flare ups because then I am not modeling these things well...
I get what you mean about somatize... its a genuine concern. I just wonder if maybe they would be proactive in diet and exercise if they knew and maybe avoid this all together.
Thanks everyone for your thoughts...(and for listening to my thoughts...)

These have quite a bit of reading, but also graphics regarding foods to eliminate or eat.

Hi Mimi, what a great idea, google it. I have checked the library, they don't have it, but will order it. Also, the benefits of capsaicin from peppers to treat pain in food or ointments. I like that. Need to get less pain. I am well, and I trust you are well too.
Sending love and hugs, Pam🕊️