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About MySpondylitisTeam
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Thank Your Family And Friends For Their Support?

How Do You Thank Your Family And Friends For Their Support?

posted November 22
A MySpondylitisTeam Member

My family will see me walking funny, pushing a grocery cart like I’m 100 yrs old, staggering to stand up n walk, they said to me oh you just need to walk more and exercise more, mind you it’s the same family that goes with me to get injections, and ablations! I get so frustrated sometimes, just cuz you can’t see it don’t make my disease any less real! I’m miserable all day everyday but cuz they can’t see it, then it’s not a real thing!

posted 2 days ago
A MySpondylitisTeam Member

2 days ago my husband saw the 1st ever, that I know of,commercial for Ankylosing spondylitis. It was for Renvoqk. He said the commercial came on and said here is a new treatment for Ankylosing spondylitis. Treat your AS with Renvoqk. I have not had the pleasure of seeing it yet! Everybody's probably wondering what the heck is that

posted 6 days ago
A MySpondylitisTeam Member

Not all symptoms show so people don't always understand.

posted November 26
A MySpondylitisTeam Member

For a long time I got labeled as a hypochondriac I was always complaining about pain none of my family was interested then my doctor put me on antidepressants but still the pains continued then I saw a doctor who listened to me I dont think im special or anything or I deserve special treatment but just to have someone who cares enough to listen

posted November 25
A MySpondylitisTeam Member

It seems they don't really understand how much I am going through. I know they want to help, but I feel alone most of the time

posted November 22

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