How Do You Thank Your Family And Friends For Their Support? | MySpondylitisTeam

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How Do You Thank Your Family And Friends For Their Support?
A MySpondylitisTeam Member asked a question 💭
posted November 22, 2022
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A MySpondylitisTeam Member

I cn't say I'm lonely, 'cause I am NVR alone! That SUX too tho!! You can still feel lonely when you have a houseful of ppl...!!! I love my friends...💯

posted April 15, 2023
A MySpondylitisTeam Member

That sux Michelle, I have support, but ... thinkin' I'll truly find out when my daughter & 3 boys come back from CO! I hvn't seen her in about 10yrs & nvr met my 2 youngest grandsons!! They're gonna have to stay with us for awhile. We shall see how this goes, as my husband & I have lived alone for over 10yrs now ... it will be different, for sure!!! PLUS~ in March, my oldest grandson from my oldest daughter, will be living here as well! (YIKES) I'm anxious how this will all work, but ... they need 'help' right now & we're it ~LOL!! I cld use a few prayers myself, have a ton to do & hurt so much, 'cause I'm stressing ~UGH!!! My spare room has become a storage room & I dn't kw where to even begin...? I'm watching football with the hubby today! OK day, so far!! I'll start cleaning again 2mr0, hopefully!!! Have a good day friends:) Enjoy...😊

posted January 15, 2023
A MySpondylitisTeam Member

2 days ago my husband saw the 1st ever, that I know of,commercial for Ankylosing spondylitis. It was for Renvoqk. He said the commercial came on and said here is a new treatment for Ankylosing spondylitis. Treat your AS with Renvoqk. I have not had the pleasure of seeing it yet! Everybody's probably wondering what the heck is that

posted November 29, 2022
A MySpondylitisTeam Member

My wife is in Alanon. She doesn't offer much support. My 83 year old sister on the other coast does ask occasionally. If I tell friends about my pain, they usually say, Yeh, my knee bothers me too." Most people are all about themselves and not available.

posted December 14, 2022
A MySpondylitisTeam Member

Cute picture, I am like these cats, sleepy during the day and wide awake at midnight. Now, I have had insomnia since I was in my 40s. When I worked as a nurse I could not work nights as I could not sleep in the days. Now, the pain mostly in my right arm keeps me awake. Pain specialist thinks it's from my spinal cord. I don't know.
My parents lived long lives. Father had Alzheimers, mother lived to be 97.
She was active at my age and into her late 80s. Have no idea why my health is so bad. I did loose a sister to breast cancer at 53. People can't see pain. So. No matter how many times I try to explain. They don't understand.
Right now my 10 yr old granddaughter and my daughter are upset with me about my not driving to her band concert. It's on a Friday night in a busy city and I just don't drive now. Oh well.
A good night to all. Will be up till 1am.
My arm is hurting as I type.

posted December 6, 2022

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