Connect with others who understand.

Sign up Log in
Resources
About MySpondylitisTeam
Powered By
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Bits Of "advice" Do You Wish People Would Stop Telling You?

A MySpondylitisTeam Member asked a question 💭
San Francisco, CA
November 16, 2022
•
View reactions
A MySpondylitisTeam Member

"Oh you can't feel that bad, just come" " You look great" "Feel great!" "Again you sick girl?" "You really need a Dr to find out what's really wrong with you!"

February 23, 2023
A MySpondylitisTeam Member

If they ask, I tell them. I tell people" don't ask if you don't really want to know". I could go on all day about the struggles.

February 16, 2023
A MySpondylitisTeam Member

Exercise More... I can't get off the bed most day's, But the knowitalls will still suggest that you should get out and Exercise 🤔🤔

January 27, 2023
A MySpondylitisTeam Member

Surely now you're on the biologic injections you are 'recovering'. This makes me so mad!

March 21, 2023
A MySpondylitisTeam Member

To many to mention here. I think it's better to try and not talk about it if it's going to irritate. People are ignorant to your pain unless it happens to them. I also find if I do get questioned about how I am feeling it always ends up back in their court and what they're going through pain wise, hence, why I don't bring it up.

February 14, 2023

Related content

View All

Is It Possible After Diagnosis To Ever Be Totally Free Of AS?

A MySpondylitisTeam Member asked a question 💭
Bicester, UK

Has Anyone Been On Otezla, If So How Is It. I’ve Just Been Diagnosed With Spondyloarthropathy After Years Of Pain. Drugs Scare Me.

A MySpondylitisTeam Member asked a question 💭
Torrington, CT

Does Anyone Feel Overwhelmed And Mummy Guilt Or Get Jealous When Others Now Do What You Are Ment To Be Able To Do With Your Children ?

A MySpondylitisTeam Member asked a question 💭
England, AR
Already a Member? Log in