Does Anyone Know Much About Sacroiliitis. I’m Awaiting An X-ray On My Back To Confirm The Diagnosis. I’ve Pain When Standing And Sitting | MySpondylitisTea

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Does Anyone Know Much About Sacroiliitis. I’m Awaiting An X-ray On My Back To Confirm The Diagnosis. I’ve Pain When Standing And Sitting
A MySpondylitisTeam Member asked a question 💭

I am also breathless when doing moving about.

posted March 20, 2022
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A MySpondylitisTeam Member

Yes I also have inflammation in my SI Joints caused by arthritis along my spine .The dysfunction in the si joint means it's either too much motion or too little.motion.The.pain comes from that motion when your hips move .Mine have too much and push out when I walk which causes mine to pull my lower have forward and my spondylothesis causes my upper have to push backwards .I'm not saying you have my issues just trying to give you an idea .It can be helped by NSAIDS for inflammation ,Si Joint Injection Or natural herbs for inflammation .? I'll be 🙏🤞☺️For good results for you.

posted March 27, 2022
A MySpondylitisTeam Member

I'm about to start Humira. Is it worth the try?

posted June 23, 2022
A MySpondylitisTeam Member

IDK I was put on Humira shot straight away and not like the one shot every two weeks I went straight to one shot every week and it ended up causing me to have a psoriatic psoriasis which typically is used to heal WTF and his doctors and what’s wrong with our bodies it’s hard to move I’m still young and I have so much pain that people around me look at me like I’m insane like I’m really strong but my body cannot handle inflammation and it’s hard to relay that when you can’t physically show somebody where you hurt much less a doctor I’m really having a hard time finding a doctor that will listen to me and not think that I am just meds seeking it’s so maddening! Anyone else feel this way?

posted April 24, 2022
A MySpondylitisTeam Member

Yes, I have Sarcoid granulomas in my lungs and spleen

posted March 27, 2022
A MySpondylitisTeam Member

I have sacroilitis. I was told in December, which is when I was told I also have spondyloararthropathy. Hips hurt terribly, especially when I sit too long. I get up and move frequently. I also take hot showers or soak in the tub. I exercise and take yoga classes - stretching helps. I dont know anything else to do for it. Had my hips x-rayed a few weeks ago. Right one is bone one bone and left is okay for now. I will be having a total hip replacement sometime pretty soon. Prayers you are okay.

posted March 20, 2022

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