I have had two back surgeries and have rods and artificial disks in my back. The surgeon who did my surgeries said that I needed the surgeries because my spine and disks had deteriorated. I had one surgery in 2014 and the second in 2018. After the second surgery my pain has gotten a lot worse, and I am in pain all the time. I can't stand in one spot more than 15 mins. because it feels like my lower back is crumbling. I can only walk a short distance, in a area that has level floors, can't stand… read more
I feel in a very difficult position here. Everything here resonates with my own pain and experiences, past and present. I am nearly 90 years of age. Born spina bifida occulta, diagnosed when I was 7 in 1939, when very little was known about the condition. In agony if anyone touched my back, not allowed to do PE at school etcetera, avoided any physical contact. Years of treatment followed, multiple (Rontgen!) X-Rays, manipulation, massage, deep spinal injections, then a decision was made by my orthopaedic surgeon to place me into an immobilising plaster cast. This was just before we moved to a different area. And that was that. Different health area. I simply slipped through the net.
More X Rays then I was told by my new GP that short of a NEW back, there was nothing could be done except palliative care. So...More years of physiotherapy, increasing pain and debilitation. By this time I was living alone in an isolated rural area, totally depressed. Received a diagnosis of Cervical Spondylitis following an MRI brain scan for chronic headaches where changes were found in the myelin nerve coverings. I also have pain in my Thoracic spine and my Lumbar spine and sacro-iliac, which is only relieved by remaining perfectly still, lying flat on my back. That is the only time when I am free from pain so I struggle to my bed whenever the pain gets unbearable. But you cannot live your life in bed when you live alone. Nor is it good for your vital organs. I do the recommended exercises, but it hurts so much within a few minutes and I have to stop (on advice.)
With hindsight I realise that I should have been referred to a Consultant rheumatologist, but I had, and have, endured the condition and the pain for so long and am now too old to do anything about it. I have multiple health problems in addition to this and was diagnosed with Fybromyalgia some time ago.
I knit and knit and knit(!) every day, for charities. This helps to divert my mind from myself somewhat and I love the colours of different yarns. Occupational therapy is important and it is a great pity that NHS funds do not always allow for it now.
I completely understand the pain other sufferers go through and am filled with admiration especially for those who struggle with it and bring up young families at the same time. So many of you are much younger than I am, with many responsibilities, and I take my hat off to you all. No one knows what another is going through unless they have themselves suffered. Yet I do think that it gives us an inner strength which keeps us going
. Love and Blessings. x
I am so sorry that you are going through this. I don't sleep in a bed and haven't for many years. I sleep in a recliner. I understand and you are not alone even though you may feel alone. I have no idea where the pain managment doctor is coming from. Is there another pain mgmt doctor you could see?
Dear God.....I know exactly how you feel and I am so very sorry.....sending you hugs & prayers. You'll be in my rosary today. We all need to pray for each other.
What cause you to get all the surgery some time they talk with out thinking😶
I used to be a side sleeper also, and tried the pillow between my knees, but it did not help me. I try often to sleep in my bed, but I hurt too bad to be able to fall asleep. I get up turn on my computor and play games until I fall asleep for 2 or 3 hours.
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