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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Should I Respond To Someone, Who Compares My Spondylitis Pain With Their Normal Fatigue Or Pain And Says I Overthink My Pain?

How Should I Respond To Someone, Who Compares My Spondylitis Pain With Their Normal Fatigue Or Pain And Says I Overthink My Pain?

A MySpondylitisTeam Member said:

For me, sadly yes. It's one of the hallmarks of this disease I'm finding. Getting the inflammation under control helps as well as sticking to a regular sleep pattern if possible. Naps are a must. I've also noticed my cognitive abilities tank when I'm excessively tired. Rest when you need to, it's not just okay, it's necessary.

posted about 2 months ago
A MySpondylitisTeam Member said:

You can't. It's not something someone can comprehend without experiencing. Even those of us that have it, my pain is different from yours. The exhaustion, the closest I've come up with is when you're getting over a bad cold and have no energy. That's what I feel like every day.

posted about 2 months ago
A MySpondylitisTeam Member said:

nothing you say will matter to them, they don't understand and most probably never will. hopefully those who are telling you this are not those who should be your support network. it is really hard when your family don' t or won't recognize that you have a serious health issue and so your support is minimal.

posted about 1 month ago
A MySpondylitisTeam Member said:

I don't think you can help anyone understand the exhaustion. Not just physical exhaustion either.

posted about 1 month ago
A MySpondylitisTeam Member said:

Just go along with it. You’ll eventually stop caring if people think you’re overreacting. I used to try to get people to understand, but it’s no use.

posted about 1 month ago
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