For me, sadly yes. It's one of the hallmarks of this disease I'm finding. Getting the inflammation under control helps as well as sticking to a regular sleep pattern if possible. Naps are a must. I've also noticed my cognitive abilities tank when I'm excessively tired. Rest when you need to, it's not just okay, it's necessary.
You can't. It's not something someone can comprehend without experiencing. Even those of us that have it, my pain is different from yours. The exhaustion, the closest I've come up with is when you're getting over a bad cold and have no energy. That's what I feel like every day.
nothing you say will matter to them, they don't understand and most probably never will. hopefully those who are telling you this are not those who should be your support network. it is really hard when your family don' t or won't recognize that you have a serious health issue and so your support is minimal.
I don't think you can help anyone understand the exhaustion. Not just physical exhaustion either.
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