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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Nightmares

A MySpondylitisTeam Member asked a question 💭
Sanford, FL

Bad night mate 3 or 4 times a month with nystagmus in the morning that lasts all day with of course the fatigue and pain

May 26, 2021
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Reactions

Answer Summary

Members connected over the distressing experience of nightmares or night terrors that intensify body pain and fatigue, with one member... Read more

Members connected over the distressing experience of nightmares or night terrors that intensify body pain and fatigue, with one member describing panic upon waking that makes their symptoms worse. Several members offered support and practical suggestions, including trying calming music before bed, pursuing comprehensive testing like brain imaging and neurological exams, and advocating persistently with specialists even when answers seem elusive. A recurring theme was the frustration of seeking medical validation for unusual symptom combinations, with one member sharing their struggle to find doctors who understand the link between nightmares and nystagmus, prompting encouragement from others to keep pushing for answers and request cancellation lists at major clinics like Mayo.

A MySpondylitisTeam Member

I've seen 7 doctors with them saying the have never heard of the combination
of nightmares and nystagmus . That is why I was posting to see if anyone had heard of such a thing

May 28, 2021
A MySpondylitisTeam Member

I had a night of tremors. it was stress. I normally do not have nightmare's. Have you tried music, some good, positive music to calm you. Suggestion.
Good Luck and God Bless
@A MySpondylitisTeam Member

May 26, 2021
A MySpondylitisTeam Member

@A MySpondylitisTeam Member, hi Kerry, just wondering how you are doing. Hoping your visit to the ophthalmologist was productive and you are doing better.
@A MySpondylitisTeam Member

July 12, 2021
A MySpondylitisTeam Member

Hi Kerry That just blogs my mind about the Dr.'s and even the Mayo Clinic, October?? Can they put you on a list of people that cancel their appt's? Did you tell them it is sort of an emergency? Well, my friend I really hope you find someone that can relate to your issue.
I wish you well
You are welcome
Take care
Pam

June 1, 2021
A MySpondylitisTeam Member

Thank you Pam. Believe ot or not I have had all those tests. I even took a video of my eyes moving to show the Doctors. I called Mayo Clinic and the are backed up because of covid and can't see me until October . Crazy . All I want is someone to say they know what it is. Like I said before some nystagmus is associated with spondylitis and was trying to see if anyone in this community had some problems like I do
O am seeing anther opthalmologist Friday. I hab e to keep pushing.
Thank you Pam for your concern

May 31, 2021
COVID-19 and Spondylitis Essential Updates Read more >

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