Bad night mate 3 or 4 times a month with nystagmus in the morning that lasts all day with of course the fatigue and pain
I've seen 7 doctors with them saying the have never heard of the combination
of nightmares and nystagmus . That is why I was posting to see if anyone had heard of such a thing
I had a night of tremors. it was stress. I normally do not have nightmare's. Have you tried music, some good, positive music to calm you. Suggestion.
Good Luck and God Bless
@A MySpondylitisTeam Member
@A MySpondylitisTeam Member, hi Kerry, just wondering how you are doing. Hoping your visit to the ophthalmologist was productive and you are doing better.
@A MySpondylitisTeam Member
Hi Kerry That just blogs my mind about the Dr.'s and even the Mayo Clinic, October?? Can they put you on a list of people that cancel their appt's? Did you tell them it is sort of an emergency? Well, my friend I really hope you find someone that can relate to your issue.
I wish you well
You are welcome
Take care
Pam
Thank you Pam. Believe ot or not I have had all those tests. I even took a video of my eyes moving to show the Doctors. I called Mayo Clinic and the are backed up because of covid and can't see me until October . Crazy . All I want is someone to say they know what it is. Like I said before some nystagmus is associated with spondylitis and was trying to see if anyone in this community had some problems like I do
O am seeing anther opthalmologist Friday. I hab e to keep pushing.
Thank you Pam for your concern