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Has Anyone Had Surgery To Try And Remove The Ankylosising, And If So What Were The Results?

A MySpondylitisTeam Member asked a question 💭
High Point, NC
March 30, 2021
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A MySpondylitisTeam Member

I've had a nationally respected neurosurgeon perform bilateral lumbar laminectomy and a 3 level cervical fusion to remove bony central and foraminal stenosis. According to a neutral neurosurgeon that reviewed MRI and CT after the surgeries, the original surgeon removed too much bone resulting in new spinal instability, spondylolisthesis, pudendal neuralgia, laryngiospasms, and just a lot more pain everywhere and much less function. I can no longer comfortably sit, stand, lie on my back, or prone unless I am very careful to not hyperextend and use a face cradle at the right angle. The only position I have available is side lying. I do that so much, now I have developed trochanteric bursitis. Its also causing new vision problems. As much bone as he cut away, he was still unable to get it away from the original nerves that were pinched. So I still have radiculopathy in all 4 limbs and loss of some fine motor in thumbs and some fingers. Thumbs got a little better for a year, then reverted. Definitely not worth it. Would not do it again. The only thing they say might help the pain is an implanted spine stimulator, but I'm too afraid to let them cut on me a third time.

April 16, 2021
A MySpondylitisTeam Member

Thank you for your answer, met with a orthopedic surgeon last week, he advised me against this surgery for exactly the reasons you mentioned, especially the spinal instability..

April 17, 2021

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