Is Anyone Taking Cimzia And If So Have You Had Any Negative Side Effects? | MySpondylitisTeam

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Is Anyone Taking Cimzia And If So Have You Had Any Negative Side Effects?
A MySpondylitisTeam Member asked a question 💭

I'm currently on celebrex but it doesn't do much for my extreme fatigue. However, some of the side effects for cimzia make me a little nervous. For example, one was that it lowers your immune system which mine already sucks. And I don't want it to affect my anemia. Any advice?

posted June 16, 2020
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A MySpondylitisTeam Member

Cimzia is called a biologic. It works on the immune system to make it less active in creating inflammation. It is not without some risks as a lowered immune system can lay you open for unwanted disease. In my case I was so miserable with pain and fatigue that my rheumatologist thought it was worth trying. And I am glad he did! Thank you Rick2015 for your interest and response. I hope you will get some relief from your pain soon.

posted July 14, 2020
A MySpondylitisTeam Member

I was frightened of the side effects posted for Cimzia but my rheumatologist said he felt it was worth trying because of the pain and stiffness I was experiencing. I was unable to stand for more then 5 minutes without pain that caused me to sit down. I ended up doing most of my housework from a chair. He also warned that my symptoms would progress and I could end up very bent over. I am on my 4th injection and just now I am seeing such a marked difference in how I can stand and do more walking without my walker. I also feel a bit more alert and less fatigued.. It is an expensive drug but fortunately medicare and my extra insurance is covering it. I will be 87 in August. Cimzia has given me a new lease on life. Sending best wishes to you.

posted July 9, 2020
A MySpondylitisTeam Member

Fatigue is a horrible part of our many sicknesses, it is true. Be strong, stay the course, there is always someone here to talk to, strength in numbers!

Wishing you a well night and better tomorrow!

posted June 17, 2020
A MySpondylitisTeam Member

I have been anemic most all of my life. Think some people are just outside the 'normal' wouldn't worry that much. That being said doctor suggested I try taking b12 1000mg a day , energy is better, not sure if it has improved blood count but I don't need to rest as much. Then I also put myself on an anti inflammatory diet which has done wonders also. Baby steps , see what is best for you. Just write it down in a log so when the brain fog rolls in you can flip back to re center.

I find I need to adjust my 'plan' depending on what flair raises it's head, lol

posted June 16, 2020
A MySpondylitisTeam Member

I'm on cimzia too but it doesn't work the full four weeks for me. Usually by end of week two pain starts coming back on. By the end of week three, I feel pain all the time and feel like I got hit by a mack truck. I'm on other meds to help but can't take them during the day at work and it sucks. I want to add cbd to my regimen since it is legal now in Texas, but my company would fire me if thc shows up on a drug test.

posted July 8, 2021

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