How can u go about getting a good diagnosis of this when you're adopted

How can u go about getting a good diagnosis of this when you're adopted

A MySpondylitisTeam Member said:

I have zero history of this in my family (not that anyone knows of) so I couldn’t get any information....
My biggest learning curve has been since I joined this site and once I learned how to navigate it, everything has started to fall into place.
(Still learning)

There is a wealth of experience and I hope it helps you. Welcome 👋

posted 6 months ago
A MySpondylitisTeam Member said:

I have had 15 spinal surgeries, mostly fusions from the to to the bottom except for 3 thoracic, 23 screws plates discectomy(?) artificial disc placement . I have been diagnosed with failed back syndrome and chronic pain syndrome. I suffer from excruciating headaches which were supposed to be relieved with the cervical fusion and disc replacement. Joke!! Besides the headaches the worst of my pain is usually my legs. They don’t want to work, I have had 3 different spinal cord stimulators, no relief. My original diagnosis 30 something years ago was spondylolesthesis . Then cam the degenerative disc and discitus. I am on pain meds but they offer no relief, they tell me there is nothing else they can do. I feel like I have failed my family, because I cannot do all the things I should. It just sucks. I trusted drs because I was in so much pain. The neurologist looked at my films and his exact words were “ what in the hell did they do to you”. I get up everyday and I push myself because I feel so useless if I don’t. I wish I could have a normal life. All I can tell you is you are not alone, and there are people out there who understand your pain. Until someone has suffered chronic pain they have no idea what we go through 24/7. I wish I had a better answer for you, I guess I just wanted you to know that we all suffer in silence, and I am sorry for your pain. Chin up buttercup!! Do your best, and thank goodness you woke up this morning. And if you are like me , that’s a bunch of bs! Lol!! Don’t get me wrong I am thankful for everyday I wake up, I just wish it didn’t hurt so bad to get up.

posted 5 months ago
A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member
Oh my goodness, that is a lot of surgeries. ☹️
I was very blessed to have 39 years relatively pain free. The last 4 years things have deteriorated quickly and like yourself, my legs have also deteriorated recently during a long flare up.
I relate to what you are experiencing and truly empathise. (Also with the loneliness)
There are amazing, strong people on myspondy who, like yourself have experienced many years a numerous surgeries.
You are not alone 💛
I hope to hear from you again

posted 6 months ago
A MySpondylitisTeam Member said:

I am experiencing pain on a 8 level for so long beginning to lose hop with a diagnosis! I have had 41 surgeries 3 failed fusion son my lumbar . Legs are causing me real worry. They keep giving way.but before that I get a heat like stroke where I sweat profusely and then hyperventilate . Then I sleep for days. Thought it was my Fibromyalgia but it is not. I can't stand for 10 minutes tops. Ice helps. Does anyone relate?? I feel so alone !!!!!

posted 6 months ago
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