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A MySpondylitisTeam Member asked a question 💭
Burlington, IA

My days lately have been a mixed bag! My pain in the spine has been pretty well controlled, intermittently. But I'm having new pains in both shoulders & elbows, which I've never experienced before. Now I have spondylitis, I have read that can be common. Anyone else experience peripheral pain? Also, I really dont know who to see about my spondylitis. My PC? Osteoporosis? Or I see allot of people see a rheumatologist? What are your thoughts?

June 4, 2019
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Answer Summary

Members strongly recommended seeing a rheumatologist first for spondylitis and peripheral joint pain, with many describing their own... Read more

Members strongly recommended seeing a rheumatologist first for spondylitis and peripheral joint pain, with many describing their own experiences of pain spreading from the spine to shoulders, elbows, hips, and even finger joints over time. Several members shared practical strategies for managing procedures like ablations, including taking pain medication beforehand when twilight sedation isn't available, and emphasized the importance of finding a responsive rheumatologist who can provide timely steroid injections for bursitis and joint inflammation. A recurring theme was the value of connecting with specialists who truly understand the progressive nature of spondylitis and can address both spinal and peripheral symptoms as they emerge.

A MySpondylitisTeam Member

Hi Annie I too have spondylosis in spine and neck. I see a neurologist who is awesome she scraped out alot when I had my fusion in my neck she said they would grow back even had them compressing my spinal cord and yes they have grown back a few anyway it's been since 2010 so bout 9yrs to grow back!!!! I'm not sure what they would do in your case I guess nothing till they start invading things. Good luck to u keep us posted pr me anyway Iam gonna add you if that's ok...

June 4, 2019
A MySpondylitisTeam Member

Definitely get a good rheumatologist. And yes I get peripheral pain. I've had steroid shots repeatedly into both hip joints and a shoulder joint for chronic bursitis. I've had to have an injection in a back muscle to stop it from constant painful spasming. I get pain everywhere but the strangest place is in the heels of my feet. I have a great rheumatoligist who sees me as soon as I'm having a problem and knows how to make it better. I can't stress enough the importance of finding a really good rheumy.

August 2, 2019
A MySpondylitisTeam Member

Rheumatologist first,surgeon last.Nobody told me that and I wish they would have

June 22, 2019
A MySpondylitisTeam Member

I think it would be very helpful to see a Rheumatologist as well.

June 22, 2019
A MySpondylitisTeam Member

I think the second set will help they know now my pain is coming from low back and hip joints

June 15, 2019

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