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i went eventually to the dr and sent me for xray, they didnt tell me results so i got them online,, body alignment maintained, there are minor spondylitic changes with lower lumber spine, no further bony abnormality changes,,, what does that actually mean,, i am in constant pain every day and relying on my morphine and amitriptyline to get me through,, only time its ok is wen i am sat still ?? i ave to go back to see dr in a week about my fibromyalgia,, i just dont know wot to make of it all n… read more

April 30, 2019
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Answer Summary

Members rallied around someone newly diagnosed with spondylitic changes in their lower spine who was frustrated by confusing medical... Read more

Members rallied around someone newly diagnosed with spondylitic changes in their lower spine who was frustrated by confusing medical terminology and constant pain despite being told no further action was needed. Several members shared their own pain management strategies, including nerve blocks, cortisone injections, muscle relaxers like Soma and Baclofen, pain medications such as Tramadol and methadone, and heated pools or hot tubs for relief. A recurring theme was the challenge of finding effective treatments without debilitating side effects, with many describing weight gain and cognitive issues from medications like gabapentin and pregabalin, while emphasizing the importance of advocating for additional testing like MRIs and not letting stigma stop you from using medications that restore quality of life.

A MySpondylitisTeam Member

I take methadone for pain....after trying just about every painkiller out there. Can't remember 2 years of my life from all the drugs. Hub's says I don't want to know how bad those years were.
Methadone is long acting and ONLY painkiller I've tried that doesn't give me that drugged out feeling and sleep my life away. Many many years ago it was strictly used for pain control....then the drug culture came on the scene and they found it usefull weening people off drugs. It bothered me at first when the pharmacy techs would give me looks....I don't care anymore...it helps tremendously with controlling my pain and not robbing me of normal life.
Praying you find pain control without horrible side effects.

May 24, 2019
A MySpondylitisTeam Member

Hi there! I also tried methadone for my pain but I found myself falling asleep or nodding as it's called, around 3 pm. That was my biggest complaint about it. Now I am on dilauded. It seems to be working ok. I need a pain med that has " hydro" as a prefex. It seems to work better with me as opposed to the oxi prefex. Like oxciconton (sp) or oxicodone. So now we are trying to find a long acting hydro something. Hope you have good days ahead.

May 25, 2019
A MySpondylitisTeam Member

@A MySpondylitisTeam Member Cline
I didn't like the side effects from gabapentin either, made me feel worse not better, such bad cramps in my muscles that I couldn't walk and I kept forgetting words, thought I had dementia it was so bad, but it all cleared up when I stopped taking it, was only on a very low dose 100 - 200mg daily.

May 8, 2019
A MySpondylitisTeam Member

There is a huge prejudice with methadone unfortunately, I have a friend who works with addiction, all drug use is lumped together and people think that it's about getting high and partying, that may be true of some drugs but not opiates, a lot of people who use them do so because of emotional distress, opiates are an emotional and physical pain killer and anyone who has lived through any sort of mental pain knows how awful it is. Forget the prejudice and hold your head high, you have found a medication that helps you and gives you some quality of life, no one has any right to judge you they don't have your pain, if it really bothers you find a good pharmacy away from the immediate area that you live but which you can get to easily.

May 26, 2019
A MySpondylitisTeam Member

I get nerve blocks every three months. The first time is every other week for 6 weeks, than after 6 months can get one and then 3 months later get one and so on.
It did relieve the pain from the neuropathy but not the other pain problems in my back.
I take a Soma muscle relaxer and Tramadol narcotic for that pain.
Tried Gabapentin, didn’t like the side effects!

May 7, 2019

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Middlesbrough, UK