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Weary About Biologics
A MySpondylitisTeam Member asked a question 💭

Hi there,

40 year old male diagnosed this year but likely have had it for 20 years.

Xrays show fusion in T3 (among other areas). I have pain daily and stiffness. Doctors categorize as severe. Inflammation markers are high.

Treatments tried:

1- multiple NSAIDS which I know are not sustainable and also didn’t sit well with stomach
2- regular gym, massage, stretching - this helps
3- no starch diet for 3 months (not sure yet if this is helping)

Doctors have all recommended I go straight to… read more

posted January 2, 2019
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A MySpondylitisTeam Member

Hi Dave, I don’t eat a lot of sweets. Other than that, I don’t have a special diet that I follow. It has taken me years to get to the place I’m at now. Lots of trial and error with all kinds of meds. The best advice I can give you is try to stay positive. Even when your in alot of pain. The more you feel sorry for yourself the more pain you will be in.

posted January 13, 2019
A MySpondylitisTeam Member

I am on 75 mg amitripylene
Started taking tumeric and eating pineapples

posted February 27, 2019
A MySpondylitisTeam Member

I have been taking amitriptyline, it's really helped my back spasms and pain. If I miss a day or two of taking it (50mg a night) I know about it and I have the bad pain again. But with amitriptyline, it has eased it off from a 10/10 to sometimes 3 or 4/10 during the night. It's bearable put it that way. Also about to start taking Curcumin and glucosamine. And working on my gut biome. Making sure my B vits are high and drinking lots of water, avoiding caffeine and sugar.

I've been offered the bio shots... I'm only 33 and I'm also very worried.

posted February 22, 2019
A MySpondylitisTeam Member

Hi Dave, I was diagnosed finally about 5-6 years ago by a specialist with all the test positive. I've been on Humira ever since, I understand your concern about the medications, but this guy came highly recommended and I trust him completely. I unfortunately have several other conditions, but I also take 2 painkillers of which I've been on for a long time. With them I still have continuous pain in my neck, lower back down my legs. The combination of medications help me to just get by, so I've had this a lot longer going on before I was diagnosed. My progression seems to be slowed by the Humira. Good luck to you I understand every decision is difficult too make, keep in touch and let me know how your doing.

posted January 17, 2019
A MySpondylitisTeam Member

I use turmeric daily and it seems to help with inflammation. I can tell the difference in my overall pain level.

It has to be 95% curcumin and have 95% piperine for better absorption. I take it I need capsule form. I take Youththeory 1000mg per serving dose. They now sell it at Costco.

posted January 14, 2019 (edited)

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