Hi there,
40 year old male diagnosed this year but likely have had it for 20 years.
Xrays show fusion in T3 (among other areas). I have pain daily and stiffness. Doctors categorize as severe. Inflammation markers are high.
Treatments tried:
1- multiple NSAIDS which I know are not sustainable and also didn’t sit well with stomach
2- regular gym, massage, stretching - this helps
3- no starch diet for 3 months (not sure yet if this is helping)
Doctors have all recommended I go straight to… read more
Hi Dave, I don’t eat a lot of sweets. Other than that, I don’t have a special diet that I follow. It has taken me years to get to the place I’m at now. Lots of trial and error with all kinds of meds. The best advice I can give you is try to stay positive. Even when your in alot of pain. The more you feel sorry for yourself the more pain you will be in.
I am on 75 mg amitripylene
Started taking tumeric and eating pineapples
I have been taking amitriptyline, it's really helped my back spasms and pain. If I miss a day or two of taking it (50mg a night) I know about it and I have the bad pain again. But with amitriptyline, it has eased it off from a 10/10 to sometimes 3 or 4/10 during the night. It's bearable put it that way. Also about to start taking Curcumin and glucosamine. And working on my gut biome. Making sure my B vits are high and drinking lots of water, avoiding caffeine and sugar.
I've been offered the bio shots... I'm only 33 and I'm also very worried.
Hi Dave, I was diagnosed finally about 5-6 years ago by a specialist with all the test positive. I've been on Humira ever since, I understand your concern about the medications, but this guy came highly recommended and I trust him completely. I unfortunately have several other conditions, but I also take 2 painkillers of which I've been on for a long time. With them I still have continuous pain in my neck, lower back down my legs. The combination of medications help me to just get by, so I've had this a lot longer going on before I was diagnosed. My progression seems to be slowed by the Humira. Good luck to you I understand every decision is difficult too make, keep in touch and let me know how your doing.
I use turmeric daily and it seems to help with inflammation. I can tell the difference in my overall pain level.
It has to be 95% curcumin and have 95% piperine for better absorption. I take it I need capsule form. I take Youththeory 1000mg per serving dose. They now sell it at Costco.