I was diagnosed with non-radiographic axSpa a few months ago. I’ve tried several NSAIDs, PT over the years, exercise, prednisone, injections etc., all of which have helped some, but I am still having pain
The rheumatologist wants me to try 4 weeks of prednisone again, along with Tramadol, to see if that will help. When I mentioned concerns about progression, he said that I shouldn’t worry about it - but that Enbrel might be an option if I would like to try it
I appreciate all the help I’ve… read more
You story is a tribute to the Soldiers. You're a trooper for sure! This site does have a great group of people. I am sorry your going through the hell you've been through. The fact you're still alive after bouts with septicemia is a miracle in itself. Sir, you need to write a book on perseverance! You may laugh because of what you've lost, but you're still here!, for a reason!
This disease is an absolute nightmare, but research is being updated from the the 50's and those R&D Docs who's dedication keep us relevant for a cure.
I hope better days are afoot my friend. Thank you for the blessing 🙏. I return a blessing and a prayer. Much love, Dawn
@A MySpondylitisTeam Member good to know, thank you :)
I was diagnosed with rheumatoid arthritis whilst in the British Armed Forces in 1991. It resulted in early retirement end 1995 after 20 years contract when I was on a permanent contract.
My first hip replacement was supposed to take place in Feb 1996 but was delayed for 14 months due to NHS short falls.
I have been on every drug you have all mentioned in 30 years except Biologics.
I was on high dose steroids by mouth and injection for 20 years until the side effects nearly resulted in my death. Well actually, my life did end afterwards as since then my situation has gone from bad to worse and in 2018 a new Rheumatologist recognised I also had spondylitis. Always a fighter, I fought on until my marriage had failed and I gave the business over to my wife who had despised me for over 20 years for being a “cripple” and I camel home to Wales to die. I haven’t spoken to her since as I was only any good to her as a money tree that kept her and my youngest daughter in horses for their expensive hobby of Equine Eventing.
The day I was offered morphine patches and I turned them down was the day I was told to leave.
4 years on, I’m still fighting and I have at last got to see my Rheumatologist. Last week in fact. Covid has wrecked the NHS in Wales.
However I am now just awaiting my first injection and after all these years of being diagnosed with RA, Lupus, Crohns, having 3 heart attacks a massive saddle pulmonary embolism and 3 bouts of septicaemia he has finally diagnosed me as having psoriasis spondylitis, in addition to everything else!
So to anyone with the pain I suffer every day, the constant flares, the anxiety and stress that has resulted in three breakdowns, the joint replacements and refurbishments - go for the bio injections if your system is strong enough.
I will report on how I fare after a month of the new treatment. My Rheumatologist has high hopes. Because we are all different we all react differently to different medication, food, etc. I know my diet helps when I keep to it but we are Human and want to seem normal. Sadly we are not. Who is???
At this moment in time I know you guys in the US have far better Medics than we do. I worked for the Doctors own Financial Consultancy for 20 years and they are in the Stone Age compared to the average NHS doctor.
It has been a tonic for me finding this Site. Thank you for all your help. God bless you and keep positive. MLS
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