I was diagnosed with non-radiographic axSpa a few months ago. I’ve tried several NSAIDs, PT over the years, exercise, prednisone, injections etc., all of which have helped some, but I am still having pain
The rheumatologist wants me to try 4 weeks of prednisone again, along with Tramadol, to see if that will help. When I mentioned concerns about progression, he said that I shouldn’t worry about it - but that Enbrel might be an option if I would like to try it
I appreciate all the help I’ve… read more
@A MySpondylitisTeam Member good to know, thank you :)
I started Enbrel two months ago having great results with it bringing my pain down to a level I can live with some of the day
I had 1 C6-7 fusion 2013 believed to be DDD from old injury. At 47 I quit my job the pain was so great. I started steriod injections until at 49 I could no longer stand the pain, nor could I get out bed. The Humara was offered after HLA-B27 pos. But seronegative. I had doubts, but my pain was literally too much. It helped so much. But now, 51 2019, I need to heal from surgeries and get my hot tub. I look forward to getting back to exercise.
Prednisone should only be a temporary. Fix. I have the same diagnosis with severe pain. I have been through back injections until my adrenals were permanently fried and now I have to take Cortef for life or it is fatal. I am also on NSAIDs and Neurontin, and Enbrel and Enbrel and the Daypro. NSAID really help. But. I also require Fentanyl patches and have Norco for. Breakthrough pain. I think it is awful what goes on in the government controlling how drs can help patients with quality of life. Without my pain medication I think I would be suicidal.
Enbrel can take a couple months to feel better. I had to go off for 7 weeks once and by week 7 I was begging to go back on. I also took three rounds of mindfulness classes 12 sessions each with my pain psychologist before that really began to kick in and work. It. Helps me through ptsd due to pain.
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