Welcome to the team! This is the most informative site I've found on Spondylitis
@A MySpondylitisTeam Member definitely won't hurt to learn more about it, I always approach it with caution because of others experience.
Hello ,can someone please tell me how do I approach my doctor about this, I mean I have Fibromyalgia and have had it for many years. But this past year something was going on with me all I want to do is sleep my whole body hurts like a giant tooth ache
I used to get flare ups with my Fibromyalgia, but this is most of the time it’s just there and it feels like it’s getting worse
I have this burning in my lower spine and when I walk it starts to burn and I need to make sure there a place… read more
I feel your pain, so sorry
I have Fibromyalgia and today a total flare day. Take a shower and keep warm, helps muscles relax. Rest read a good book or put on a good movie. Tomorrow will be a better… read more
Hi Tim,
To change your location, please follow these easy steps
1. Log in to your profile.
2. Click on the three lines on the page's top left.
3. A menu will appear. Choose 'Settings' and then… read more
Why do I keep getting the same notifications throughout the day. I have looked at the setting can't see what ive done. Not as popular as i thought same email over and over again 😂😂😂
I hear you @A MySpondylitisTeam Member Feel free to email me directly when you get a chance, I'll help you figure it all out. :)
(Email address can only be seen by the question and answer creators)
… read moreI'm new to this site...I'm using a tablet and can't seem to navigate this site...How do I get help
I use a tablet as well. Keep trying and it gets better. Janice 5
What a great question! Yes, there is a difference. 💙
Spondylosis is a general term for age-related wear and tear affecting the spinal disks in your spine (often lumbar and neck). (Mayo)
… read more
I was told years ago that I have Restrictive Lung Disease. Way before my AS diagnosis.
Just wondering how many people also have Asthma, COPD or other lung impairments because it seems that there is a relation with AS.
Thanks 😊
Yes, I am diagnosed and treated for asthma. I have had pneumonia 4x in the past seven years. I have extreme back pain - thoracic, at the hip and neck pain. Taking tramadol, and baclophen for the pain… read more
Anyone with neck problems? Do you get burning in your arms and back? I get burning every now and then and want to know what you use or do to get it to calm down.
@A MySpondylitisTeam Member. I just replied to you elsewhere about this. I went specialist to specialist years ago for this issue. Finally someone ordered a cervical spine MRI and revealed it all was… read more
I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier
I start by modifying one of my earlier posts...
So far I have learned that
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to stay updated on… read more
So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in particular, just figured the opposite off ADD had to… read more