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Treatments & Medication
A MySpondylitisTeam Member asked a question 💭

After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all 💕 xx

posted September 7, 2018
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A MySpondylitisTeam Member

Just be patient until medicinal cannabis oil becomes available on script. I have tried everything available to help my pain, been morphine dependant twice, I am counting the days for the cannabis to be made available through pain clinics. I know it works from the CBD oils I've been buying to vape with, so medicinal quality should be even better with no unpleasant highs, and none addictive, but effective. People like us who have these evil unseen auto immune disorders, whichever one they are, need this to happen so badly. I'll be first in the queue if I can, I've had enough of the crap that doesn't work, the dependency, and the long term use side effects. Natural is best, and cannabis has been used by different cultures for thousands of years to treat injury and pain, so why has it taken us so very long to recognise its potential. Good luck with your search hun. X

posted September 9, 2018
A MySpondylitisTeam Member

AS causes inflammation where the spine attaches to the pelvis, causes osteoporisis to worsen, and freezes the spine together over time. Treatment starts with a NSAID like Lodine or Celebrex. If there is clear inflammation in the neck or along the spine they can do a steroid injection or spinal block, or radio frequency injection. The idea is to help with the symptoms since there is no cure. I use Lidocaine patches where ever I need them daily. I take Lyrica and Cymbalta for nerve pain. At my stage they give me narcotics, and muscles relaxants for a better night sleep. Nothing relieves all pain. From day to day my body tells me what I can do and not do.

posted September 21, 2018 (edited)
A MySpondylitisTeam Member

I take Cymbalta for the depression due to the pain, I take oxycodone two times a day, and I do Humira shots which helps a whole lot with the inflammation in my joints, I do nerve block for the headaches they usually Last anywhere from six months to a year on me usually a year, and I also take to Tumeric with black pepper in it

posted December 5, 2019 (edited)
A MySpondylitisTeam Member

I am on ibuprofen every 6 hours. If I don't l Gabapentin 100 mg 3 times a day. But my Allergies are so bad. I have to take Zzytec 10mg a day iFluticasone nose spray. Plus Baclofen 10mg one are night time. I have to go off all my meds including vitamins. For a genetic test. Noon Monday. To to check if my body is making to much proteinakeme. I can't move. And for the nerve pain I am on in

posted October 5, 2018
A MySpondylitisTeam Member

Thanks Karen I'm the same. Messed about with doctors. I go back October so fingers crossed. I take naproxen and gabapentin too hate them both. Hope you get some answers keep me updated on how you go sending hugs xx

posted September 7, 2018

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