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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Was Told I Have Spondyloarthritis, But What Does This Mean?

Was Told I Have Spondyloarthritis, But What Does This Mean?

Hi everyone! New here and new to Spondyloarthritis diagnosis. I'm basically desperate to find people who can relate to me and this struggle
I saw a rheumatologist for the first time 2 days ago. I've been fighting LBP for 9 years (I'll update my profile story soon!). I wasn't given much information other than reading material about "Spondyloarthritis" to take home. I had bloodwork and xrays done after appt. I go over the results with him in 2 weeks while being put on prednisone in the… read more

A MySpondylitisTeam Member said:

Hi Janine, nice to read your story. I too was B27 (+). Never heard of this and neither had my family, which makes th DX even more confounding. However, my great grandmother had osteoarthritis. Do research and keep hope.
Here I am 2 years later, HLAb27 (+) a C4-6 w/ C6-7 revision and L4-S1. You feel crazy when these Dr's are like, "oh, look at that. You must be in alot of pain. Oh yeah, a lifetime." As if the last 4 years I wanted sympathy. I changed primary-he wanted to DX fibromyalgia and send me home. I'm glad I know this body!! And my tolerance not to snap on Dr.s. lol

edited, originally posted almost 3 years ago
A MySpondylitisTeam Member said:

there's a blood test? The MRIs CT and xray really showed from T1 to then end of course I have 2 curves scoliosis which means one hip is also higher. the OA in hips, knees etc.

posted about 4 years ago
A MySpondylitisTeam Member said:

HBLA27 (?) negative means you don't have the genetic marker for AS. However, I don't have it, but my brother does and my symptoms are worse than his. I think it's more likely seen in males.

posted over 4 years ago
A MySpondylitisTeam Member said:

There are lots of strange symptoms you can have.... i have esophageal dysmotility in addition to the arthritis symptoms. You may never get some and some may come and go.

posted over 4 years ago
A MySpondylitisTeam Member said:

I have neg HLA-B27 AS. I was doubtful of my initial diagnosis given I work in medical field and had always gone with the notion that one HAD to have the HLA-B27 trait to have AS. Even with a horrible MRI of cervical and lumbar spine showing severe arthritis, having a neurologist tell me no one my age should have that much arthritis, I had been in pain for manyyy years and even when my new rheumatologist started me on meds, I was still skeptical. I’m here to say that since starting Humira.. I didn’t realize just how much pain I had been in all these years. I live a MUCH better quality of life now with more good days than bad. I’m so thankful for my diagnosis now and accept it 100%!

posted almost 3 years ago
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