What pain meds work the best for this condition

What pain meds work the best for this condition

A MySpondylitisTeam Member said:

I live in a medical marijauna state. I've found a few strains with high CBD works well. I am trying to rid myself of using opiates. I still have to take norco but most days can go without. My ankliosing spondylitis has effected me to the point i have lost an eye to it. I am also hunched over as the only thing i see is floor and butts. I am curved to the point that it is noticable. At one point in time i was on Fentynal patches. I hope that I'm not breaking the rules, just wanted to tell people that what has worked for me.

posted 8 months ago
A MySpondylitisTeam Member said:

I see that this is an old thread, but still a very relevant one. It is interesting to see what everyone else is taking and how they respond. I know personal relevancy varies depending on what stage in disease progression you maybe, the difference in your own body's reaction and what variance disease wise we endure. For myself, having lived in pain and worked in pain for almost 40 years and becoming disabled just a few years ago; I value a balance of some pain reduction, retaining has much quality of life as I can and to be able to still read, teach and so on. I am on Nucynta 100mg, which I've gotten special insurance approval for and I find less mentally taxing while providing some pain relief. I also take Humira by injection, Baclofen and Naproxen 500 2x daily. I've been on this regimen for 2 years and while far from perfect, has easily been the best one for myself. I also went to counseling last year and completed 6 sessions, which was quite beneficial for myself and I'd highly recommend for anyone trying just to make some sense of it all. The counseling really helped to realize how to identify scenario's of the pain cycle, the anxiety which comes from the pain and most importantly of all - I learned I wasn't mental!! (Smiles), most of you know what I mean - this disease not only messes with your body, but messes with your sanity. Recently I've fallen out of my better prayer habits, but I'm working on getting on track there also - times of prayer, listening to music, doing some photography (appreciating nature & worship), reading and some social interaction are as important in a balanced life for us as the best medicine balance is also. So I encourage each of you to find these balances in your journey, (yes they'll be different than mine).

posted 8 months ago
A MySpondylitisTeam Member said:

Hi Mark, would you tell me exactly what kind of CBD and where I could buy it? It’s legal in FL and people say it works the best. I’m tired of Oxy and can’t take any of the meds for AS, specialists told me. I have some bending (it’s hard to look at the stars in the sky now), and most of the symptoms. Bad 24/7 pain for years. I’m trying not to feel guilty for having what I call “Down Days” when I can do nothing. I have to sleep whenever I can. It’s a different life, isn’t it? I talk with Jesus all the time and He helps my attitude. After all, all the disciples had to go through a lifetime of suffering, too. Have a good day, whatever it takes.

posted 8 months ago
A MySpondylitisTeam Member said:

I'm on hydrocodone 7.5 2times a day. And Baclophen

posted 8 months ago
A MySpondylitisTeam Member said:

AS I said, why is there no real R&D in Australia. I am reading of an horrific array of drugs. and frankly the drugs mentioned scare me . Not only the contents of the drugs, but the addictive nature of them. I take Tramadol and Panadol osteo. NOT perfect, but so called safer... AND I do get a nights sleep. Shame about what happens as soon as I hit the floor. all things go out the window. Why is it that we dont hear of any trials. sure I would go into any to try to get pain relief . Happiness for me is laying down getting into a pain free position and not moving until the pain says it needs a change. The side effects of some of those drugs is huge. I dont think most doctors care. One I went to, said my way out was to do physio. After two sessions I dropped out. It took me a month at least to get rid of the numb panel going up the back of my head. I treat my pain with respect. Trying to get rid of pain I took a drug that landed my in hospital with a stroke. I was not aware this drug prompted brain bleeds. So after that I became very award of the side effects. Before I take any drug. I search it out on MEDLINE PLUS. this lists all drugs and supplements available and tells all the names it can come under, and the side effects and contra indications.

posted 11 months ago
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