How Rapidly Can SA Progress?

I was recently diagnosed with SA and told I had a "good prognosis". I was started on a prednisone taper and weekly methotrexate and I feel like I'm getting worse steadily. I use a cane to walk, but that isn't enough. Everyone says to walk, but walking is so painful that I can barely navigate to the bathroom. My hips and legs hurt then my back feels like it's about to cave or my legs give way. Is this the usual? Does this get better or only worse. I don't feel like this is a "good prognosis". I… read more

23andme

Hello
Wondering if anyone else has done 23andme and is aware of if/how the raw detailed results might point towards genetic predisposition towards spondylitis or other inflammatory or arthritic conditions? I was tested for the specific gene associated with spondylitis by my doctor 7 years ago but didn’t have it; wondering if there are other possible genetic markers that may help my doctors narrow down a diagnosis & treatment. According to the results I am at a high risk for developing Type 2… read more

I Need Help With Nerve Pain, Gabapentin Has Helped But Side Effects Have Caused Me To Not Be Able To Take It.

Nausea 🤢

Anyone else who takes prescription NSAIDs daily find they’re getting bad nausea post-vax? I’ve had nausea ranging from mild to painful since the evening after my second dose (Monday). Maybe the medication is making a normal side effect worse?

Osteoporosis & Nr-axspa

Finally linked all the many symptoms - over many years - together and investigated ankylosing spondylitis. Learned that I am HLA-B27 positive and realized that my father was disabled at 50 yrs old - probably due to undiagnosed AS. Thankfully, my inflammation is moderate and non-radiographic. I have managed it with Celebrex and pain control - along with serious diet and exercise.

My question: I have reversed osteoporosis in hips & thigh with exercise and diet - but not in spine. That is getting… read more

Working Out At The Gym With Spondylitis

I suffer mostly from L4 & L5 degenerative Spondylolisthesis. I love working out at the gym. What equipment is safe to use? Is the rowing machine recommendable for a bad back? And what WEIGHT LIFTING machines should I avoid altogether?

Pain Map

Hello friends,
I am hoping to send the following pain map to my health team as it is hard to explain these things over the phone and my rheumatologist is trying to diagnose me using imaging reports and phone appointments. I also have a neuro appointment next week, which is in person. Could you take a look and let me know if this is clear? Thanks!

First MRI Tips/advice?

I’m having a pelvic MRI Monday morning (early early morning, so fasting is no problem!) it’s my first MRI but I have had three surgeries, one under general & two under local anesthesia. I have a bit of white coat syndrome but no claustrophobia. Any tips or advice in preparing mentally/emotionally/physically? Thanks!

I Am Looking For Recommendations For A Good Computer Chair.

My job requires me to sit quite a bit. What computer chairs do you like and why? Thank you!

Abrilada