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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1768 questions
Narcotics
A MySpondylitisTeam Member asked a question 💭

And yet not a single reference anywhere to treating pain with narcotics? Has the "opioid crisis" turned the entire medical establishment into a bunch of scurrying chickenshits? My pain is so constant and severe that I would have killed myself years ago without the relief afforded me by a range of prescription painkillers.

A MySpondylitisTeam Member

Oh Brother- I'm exactly* with you
Im sock and tired of discrimination at every turn.... amd im in idaho- a somewhat easier state (dep on doc)My story, like all of ours, is long... but the narcotics… read more

posted 6 days ago
I Am Scheduled For A "functional Capacity Evaluation" After Christmas.
A MySpondylitisTeam Member asked a question 💭

Due to my continued decline, my PCP ordered this and today I found someone to take my insurance which is marginal. Has anyone had one and if so what can I expect? They said it would take 2 hours. Thanks for any input you have to share.

A MySpondylitisTeam Member

Pam, I feel like a lion with the courage to face, see, ask, search for, and be sustainable while doing so. I really appreciate that because "warriors" are a person engaged or experienced in warfare… read more

posted 3 days ago
Flare Up After MRI
A MySpondylitisTeam Member asked a question 💭

Having to lay still for 45 minutes while getting an MRI of my hip cause a flare up that was very painful and lasted for weeks. Has anyone else experienced flare ups after having imaging done?

A MySpondylitisTeam Member

I do sympathise. I didn't know how I was going to get through it. I also find physiotherapists beds cause me pain afterwards. It's not just lying still. It's the pressure against something hard.

posted 6 days ago
Has Anyone Experienced Tailbone Pain And Bowel Leakage?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Right back to you Stephanie. 💗

posted December 1
What Spondylitis Symptoms Keep You Up At Night?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Thank you to all who have been sending me hugs! I still haven't found the Red Heart or Thumbs-Up on my site to return them to you all!

posted 2 days ago
How Long Did It Take For Methotrexate To Work For You??
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Been on it for a month and it's not working because I'm at a very low dose right now

posted November 27
Range Of Motion Help.
A MySpondylitisTeam Member asked a question 💭

Range of motion is limited. Especially when trying to put shoes on etc. Does anyone have any suggestions or use certain devices that prove to be helpful?

Thank y’all🥰

A MySpondylitisTeam Member

I do know you can get extendable shoes horns so you can use it to slip on shoes while standing. Although that doesn't help with tying and buckling. My daughter often ties my shoes. I was thinking… read more

posted November 28
Do You Have Joint Pain As Well As Spondylitis
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I'm never completely out of pain. I try to get to 4, but haven't in a long time. I made it to 5 a couple weeks ago. I bleed and bruise super easy so Nsaids are not a good idea for me, don't need any… read more

posted November 29
Femoral Bone Marrow Lesions?
A MySpondylitisTeam Member asked a question 💭

Are chondroid lesions within the bone marrow of the femur typical for Spondylitis sufferers? I have one almost a full cm in length in my upper femur close to the hip joint. My orthopedic surgeon didn't point it out and I read online that it's not uncommon, rarely cancerous. I saw it on my MRI and it's mentioned in the Radiologist report. I'm wondering if it's a typical symptom of Spondylitis.

A MySpondylitisTeam Member

I'm so sorry Pam. I'm at a rare loss for words. I cannot imagine the agony you must be experiencing with the loss of your soul mate support. Wow, what an awful blow.😔Thinking of you and hoping for a… read more

posted November 29
Has Anyone Had Thoracic Spine Surgery?
A MySpondylitisTeam Member asked a question 💭
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