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What Are Your Fears Surrounding Spondylitis And How Do You Cope With Them?

What Are Your Fears Surrounding Spondylitis And How Do You Cope With Them?

I just listened to another Autoimmune Besties podcast
They have such good food for thought and always leave me wondering what everyone here would say to the topics they bring up. So in that light, what are your fears surrounding spondylitis and how do you cope with them?
Episode 9:  Overcoming the Fears of Living with Autoimmunity

A MySpondylitisTeam Member

@A MySpondylitisTeam Member, I listened to the podcast, and found it very helpful. Thank you, Mimi. 😀
@A MySpondylitisTeam Member

How Do I Edit My Location?

How Do I Edit My Location?

A MySpondylitisTeam Member

Hi, you use the arrow at right bottom, above heart, star and comment. The down arrow should give you "edit" or "delete". I hope you make out well
God Bless,
@A MySpondylitisTeam Member

How Does Humidity Affect Your Spondyloarthritis? Do You Think A Constant Steady Temp With Less Seasonal Weather Changes Would Help Flares?

How Does Humidity Affect Your Spondyloarthritis? Do You Think A Constant Steady Temp With Less Seasonal Weather Changes Would Help Flares?

I am thinking of moving to Hawaii where I was born and husband raised. I had no problems when visiting for a week and wondered if it was because it was a nice warm/hot temperature. We did a lot of driving and I wasn't as stiff as I normally get when in the car for a while. Just curious!

A MySpondylitisTeam Member

@A MySpondylitisTeam Member seems everyone is different when I do the research. So crazy. And thanks !

My Fiancé Has This AS And He Doesn’t Want To Do Any Of The Treatments Or Drugs His Dr Advised, Is There Anything Else That Helps?.

My Fiancé Has This AS And He Doesn’t Want To Do Any Of The Treatments Or Drugs His Dr Advised, Is There Anything Else That Helps?.

Help

A MySpondylitisTeam Member

Men! Stubborn creatures they be! Mine also is like that, last week he called from the hospital because his knee gave out when he was getting into his truck. He fell in the street on his face. You… read more

Does Spinal Stenosis Ever Go Away ?

Does Spinal Stenosis Ever Go Away ?

I have AsL, PSA, PS, OP, AO AS, RA.
I have had neck surgery due to the loss of use of both arms. The spinal column collapsed onto the nerve bundle.
Then I have a 5 inch rod in my lower spine. The disc's collapsed onto each other and when they opened me up they found masses on each side of the spine... Recoved from this....
Now everything in between hurts on the spinal column . Is there pain.absoloutelty but pain meds take the edge off and allow for some function at least.

A MySpondylitisTeam Member

Consider us the sisterhood of titanium! Knees, shoulders, neck, lower back. You need biologic therapy!

What is Spondyloarthritis? Read more >

Doc Said I Need The Back Surgery Which Includes Hardware

Doc Said I Need The Back Surgery Which Includes Hardware

Hardware is screws and rods to separate the lower lumbar vertebrae and put in a new disc......question....is that the only solution? I’ve done therapy,injections and the ablation won’t work..seems extreme to me..

A MySpondylitisTeam Member

You’ll be glad you had it, I am. Once the pressure is off of the nerves. Good luck..

Hi, Everyone

Hi, Everyone

A MySpondylitisTeam Member

Hi hope ur OK?

Migraine Headaches

Migraine Headaches

It’s very early here on the west coast and I was awakened by another migraine…ugh. My Neurologist has put me on a new migraine medication called Ubrelvy. My question is how many of you suffer from migraines, which medication do you use or not use? I’ve been told that it is part of AS. I also use ginger and peppermint in my oil diffuser. Thank you in advance for answering!

A MySpondylitisTeam Member

Hi Tina,
Me too….early menopause. Interesting we both experienced that. Thank you for your answer!

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