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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2353 questions

Anyone With Abdominal Pain

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Abdominal pain can be a symptom for people with ankylosing spondylitis (AS). Common gastrointestinal symptoms with AS include:

- Bloating
- Diarrhea
- Stomach pain
- Bloody stool

In some cases… read more

posted June 10

Can You Have Less Room For Your Spinal Cord And Ligaments

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Yes, conditions like spinal stenosis can cause the spinal canal to narrow, which puts pressure on the spinal cord and nerves. This can lead to symptoms such as pain, numbness, and weakness. In… read more

posted June 9

Does Anyone Have Jaw Pain That Won't Go Away? If You Have This What Do You Do For It? Thank You (Email Address Can Only Be Seen By MySpondylitisTeam Users)

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Thank you for your info, not looking forward to this part of this disease! (Email address can only be seen by the question and answer creators)

posted June 10

I Have All The Symptoms, But A Blood Test Doesn’t Show This. Has Anyone Had This Experience?

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Yes, it is possible to have symptoms of spondylitis even if blood tests do not show definitive results. For example:

- HLA-B27 Test: While the presence of the HLA-B27 gene can strongly indicate… read more

posted June 8

Anyone Have Costochondritis In The Chest Area?

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I had that so bad for years. I literally could not sneeze due to the pain. No joke. If I had to sneeze, I either had to cough sneeze or I just didn't sneeze. My body wouldnt let it happen. Then… read more

posted June 9

What Dr. Would Request Genetic Testing.

A MySpondylitisTeam Member asked a question 💭

I have ddd and severe scoliosis but suspect AS and Arthritis too.

A MySpondylitisTeam Member

A rheumatologist tested me. I was referred by my pain management team after discussing that there had to be a bigger picture for myself since I had so many, what I call "micro-diagnosises". I felt… read more

posted June 11

Anyone Else Have This Due To Taking Keytruda?

A MySpondylitisTeam Member asked a question 💭

Has Anyone Had A Epidural Spinal Cord Stimulator Placed? If So, Did It Help With Pain?

A MySpondylitisTeam Member asked a question 💭

Saw my pain specialist today, & I have been having chronic low back/pelvic/SI joint pain going on 7 years now. Unfortunately, everything he has tried has either only given me temporary relief or no relief. I am now having right SI joint/hip & sciatic pain. So he is ordering an MRI & will do a steroid injection, & if no relief, then will trial a epidural spinal cord stimulator. If this works, then he will implant one permanently. I am desperate for some relief. I live daily at a 6/10. So done!

A MySpondylitisTeam Member

I am curious and interested in this, but haven't done it yet. I hope to read more stories and input on the matter though. I have a friend that just got a spinal cord implanted pain relief, and she… read more

posted June 11

Just Wondering If Others With AS Suffer Moderate/severe Hand Pain And If So What Do You Do For Relief?

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

@A MySpondylitisTeam Member.Yes, everyone has different starting conditions. I admit I don't know how my treatment would work for advanced AS and other diseases. That's why I always recommend starting… read more

posted June 5

Does Anybody Have Or Is Looking To Get A Service Dog For Ankylosing Spondylitis, Or Other Conditions?

A MySpondylitisTeam Member asked a question 💭

Asking to see if it is worth looking into!

A MySpondylitisTeam Member

That’s awesome! I’m only 19, so when I get older I’m thinking about getting a service dog!

posted June 4
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