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Spondylitis

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Ankylosing Spodylitis

Ankylosing Spodylitis

I have been diagnosed with ankylosing, my rhemotologist is recommending Intravenous (IV) Treatement. I would like to meet someone who has expierienced this treatment. Also if you have had this treatment with any other diagnoses
Thank you
Jeana

A MySpondylitisTeam Member said:

The first drug my doc recommended was Humira and I had a reaction to it. I have several drug allergies and I am just nervous about trying something else.

posted 26 days ago

C3-C6 Laminectomy With Nerve Root Decompression, Has Anyone Had This And Had Relief?

C3-C6 Laminectomy With Nerve Root Decompression, Has Anyone Had This And Had Relief?

I am scheduled to have a C3-C6 laminectomy with nerve root compression next week and I'm a bit anxious. Has anyone had this and did it relieve your neck/shoulder pain? I had an epidural two months ago and it helped some but still losing function of my right arm due to pain. Any feedback is appreciated!

I Saw My Pain Management Doctor Today And He Said I Could Not Have Spondylitis Because I Have Rods And Artificial Disks In My Back!

I Saw My Pain Management Doctor Today And He Said I Could Not Have Spondylitis Because I Have Rods And Artificial Disks In My Back!

I have had two back surgeries and have rods and artificial disks in my back. The surgeon who did my surgeries said that I needed the surgeries because my spine and disks had deteriorated. I had one surgery in 2014 and the second in 2018. After the second surgery my pain has gotten a lot worse, and I am in pain all the time. I can't stand in one spot more than 15 mins. because it feels like my lower back is crumbling. I can only walk a short distance, in a area that has level floors, can't stand… read more

A MySpondylitisTeam Member said:

Hello Ruth, thanks for your replying to my post. I hope you are feeling good today!

posted about 1 month ago

What Happens If You Don’t Treat Your Arthritis?

What Happens If You Don’t Treat Your Arthritis?

What could happen if I (23 year old) don’t do anything about my arthritis and just fight through the pain? Will I get joint damage or just eventually go into remission?

A MySpondylitisTeam Member said:

address the issue now, it will just get worse and the longer you wait to treat the more damage you will have.

posted about 1 month ago
What is Spondyloarthritis? Read more >

Hi Everyone. Do Any Of You Suffer With Nerve Pain?

Hi Everyone. Do Any Of You Suffer With Nerve Pain?

My right leg especially is an issue with nerve pain. I took med for a while but it just took the edge off the pain for a short time. If you do have nerve issues due to Spondylitis what, if anything helps?

A MySpondylitisTeam Member said:

Ice massage? Can you elaborate?

posted about 1 month ago

Flares During Menses

Flares During Menses

Does anyone find that their fatigue and pain are worse during their periods?

A MySpondylitisTeam Member said:

Yes. I was misdiagnosed due to the increased pain and ended up with a total hysterectomy with bilateral oophorectomy at the age of 34. My pain got so bad after a surgery to remove polyps from my… read more

posted 13 days ago

Whats The Next Step In My Treatment ?

Whats The Next Step In My Treatment ?

Hello :)

So , I’ve been diagnosed relatively recently , and my rheumatologist tried to get me on anti inflammatories , but it has failed to work . I’m wondering abt what the next step in my treatment might be . She alluded to bio therapy , but will she put that in place right away ( it’s the 2 nd time I see her ) ? Will she try and up my dosage ? Do you guys have any idea what she’ll do ?

Thank you in advance for your answers :)

A MySpondylitisTeam Member said:

I have gone thru embral an renacaide infussion can’t remember all the other things but I have always taken till they stop working

posted about 1 month ago
Can a Rheumatologist Help With Your Back Pain? Read more >

What Will Life Be Like On A Biotherapy ?

What Will Life Be Like On A Biotherapy ?

Hello everyone :)

So I’ve been diagnosed and my treatment have failed to work … my rheumatologist evoked the possibility of getting me on bio therapy . I’m kind of scared of what my life might look like during the treatment …. I’m not really looking for people explaining what a biotherapy is , but more for people telling me what life is like when on this treatment .

Here are some questions I’m wondering about :

What kind of changes should I expect from it ?

Will I still be able to go to… read more

A MySpondylitisTeam Member said:

Thank you for your answer :)

Yes , that would be a good thing to reduce all the travelling i have to do , but im afraid i wont be able to take care of an appartment in my own . I still live at my… read more

posted 13 days ago
Can a Rheumatologist Help With Your Back Pain? Read more >

How Should I Respond To Someone, Who Compares My Spondylitis Pain With Their Normal Fatigue Or Pain And Says I Overthink My Pain?

How Should I Respond To Someone, Who Compares My Spondylitis Pain With Their Normal Fatigue Or Pain And Says I Overthink My Pain?

A MySpondylitisTeam Member said:

nothing you say will matter to them, they don't understand and most probably never will. hopefully those who are telling you this are not those who should be your support network. it is really hard… read more

posted about 1 month ago

Anyone Have A Spinal Stimulator Implant?

Anyone Have A Spinal Stimulator Implant?

I am to have surgery for this implant on the 22 of oct..and I am nervous about the pain involved with it in addition to my back pain as they wont turn the device on till after I am healed. Any advise and experience welcome

A MySpondylitisTeam Member said:

I did have the trial and it was a wonderful outcome my pain level was decreased by at least 60 percent..As of now I havent had the permannet implant surgery yet..Had releases for surgery from my… read more

posted 4 days ago
What is Spondyloarthritis? Read more >
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