Questions

I was wondering if anyone is on Medicare and taking remicade, if so how are you paying for the treatment?
I can't find anything unless you want to spend $1,000 a month on a policy to go with Medicare.
Thanks, Michael Chiemengo
(Email address can only be seen by MySpondylitisTeam users)

Does anyone else have the following problem?

Sometimes I feel pains anyplace between stomach and chest . Feels like a knife or piece of glass is stabbing inside me. It hurts.

Ankylosing spondylitis patient is there anybody?

I want to talk to them

Has anyones confidence been knocked?

Has anyone elses confidence been knocked since being diagnosed or maybe since starting medication? Mine has, and its why Im resiting driving

So I have psoriatic arthritis and towards the end of the day after all of my pain medication has worn off.

So I have psoriatic arthritis and towards the end of the day after all of my pain medication has worn off my hands and feet are always in horrible pain. one of the only ways to calm this pain is to pop my knuckles and pop my toes. as the pain gets worse and worse I can’t pop place knuckles anymore in my joints. Does anybody else have PsA or rheumatoid arthritis or any other chronic pain disease have to… read more

Does anyone’s knees get hot at night? I use a forehead thermometer and my knees and it reads 103.

Has anyone posted anything from the camcorder option?

Wondering if anyone else has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

CRPS/RSD is a condition that flares when your emotions are high. Meaning stress levels and/or emotional turmoil. It causes feelings of burning, tearing, pin needles and it is not caused by inflammation. It is a disease of the sympathetic nervous system.

I didn't even know this existed until it attacked me, 7 years ago. I had trigger release on all 5 fingers of my right hand. At the time, I was dealing… read more

Does anyone have difficulties conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

Was wondering if anyone is helped by diet

Started FOBMAPS diet about 4 weeks ago to help with eosinophilic issue in the through but it has also been helpful in dealing with some of the issues with PsAs disease and medication.