Spondylitis

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Questions

Questions

I was wondering if anyone is on Medicare and taking remicade, if so how are you paying for the treatment?
I can't find anything unless you want to spend $1,000 a month on a policy to go with Medicare.
Thanks, Michael Chiemengo
(Email address can only be seen by MySpondylitisTeam users)

A MySpondylitisTeam Member said:

I have United Healthcare Advantage plan for my supplemental to Medicare and currently on Cimzia. It costs me $675 a month until I reach my maximum out… read more

posted 25 days ago

Does anyone else have the following problem?

Does anyone else have the following problem?

Sometimes I feel pains anyplace between stomach and chest . Feels like a knife or piece of glass is stabbing inside me. It hurts.

A MySpondylitisTeam Member said:

Hi BeverlyMessick,
Thank you for making my ? as useful. Sending you a hug and good wishes for goood days.

posted 2 days ago

Ankylosing spondylitis patient is there anybody?

Ankylosing spondylitis patient is there anybody?

I want to talk to them

A MySpondylitisTeam Member said:

There are many AS patients here at my Spondylosis

posted 2 months ago

Has anyones confidence been knocked?

Has anyones confidence been knocked?

Has anyone elses confidence been knocked since being diagnosed or maybe since starting medication? Mine has, and its why Im resiting driving

A MySpondylitisTeam Member said:

Thank you @A MySpondylitisTeam Member
Right back atcha

posted about 2 months ago

So I have psoriatic arthritis and towards the end of the day after all of my pain medication has worn off.

So I have psoriatic arthritis and towards the end of the day after all of my pain medication has worn off.

So I have psoriatic arthritis and towards the end of the day after all of my pain medication has worn off my hands and feet are always in horrible pain. one of the only ways to calm this pain is to pop my knuckles and pop my toes. as the pain gets worse and worse I can’t pop place knuckles anymore in my joints. Does anybody else have PsA or rheumatoid arthritis or any other chronic pain disease have to… read more

A MySpondylitisTeam Member said:

Biofeedback is when you use your mind to control the pain. Pain is in your head. If you can control that you can control the pain.

posted about 1 month ago

Has anyone posted anything from the camcorder option?

Has anyone posted anything from the camcorder option?

A MySpondylitisTeam Member said:

Yeah I've lost plenty of posts, usually long ones, it's frustrating but I can't be bothered to do it all again. X

posted 2 months ago

Wondering if anyone else has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

Wondering if anyone else has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

CRPS/RSD is a condition that flares when your emotions are high. Meaning stress levels and/or emotional turmoil. It causes feelings of burning, tearing, pin needles and it is not caused by inflammation. It is a disease of the sympathetic nervous system.

I didn't even know this existed until it attacked me, 7 years ago. I had trigger release on all 5 fingers of my right hand. At the time, I was dealing… read more

A MySpondylitisTeam Member said:

Thank you Mickie! Lots of love to you and many Blessings!

posted about 23 hours ago

Does anyone have difficulties conversing?

Does anyone have difficulties conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member
Very well spoken. I see already that you are a positive, intelligent woman who is very thoughtful both of other's and… read more

posted 16 days ago

Was wondering if anyone is helped by diet

Was wondering if anyone is helped by diet

Started FOBMAPS diet about 4 weeks ago to help with eosinophilic issue in the through but it has also been helpful in dealing with some of the issues with PsAs disease and medication.

A MySpondylitisTeam Member said:

It is a diet created by a university in Australia for IBS patients. FABMAPS represents the chemical way food is broken down that causes inflammation. It… read more

posted 3 months ago
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