I just listened to another Autoimmune Besties podcast
They have such good food for thought and always leave me wondering what everyone here would say to the topics they bring up. So in that light, what are your fears surrounding spondylitis and how do you cope with them?
Episode 9: Overcoming the Fears of Living with Autoimmunity
I am thinking of moving to Hawaii where I was born and husband raised. I had no problems when visiting for a week and wondered if it was because it was a nice warm/hot temperature. We did a lot of driving and I wasn't as stiff as I normally get when in the car for a while. Just curious!
I have AsL, PSA, PS, OP, AO AS, RA.
I have had neck surgery due to the loss of use of both arms. The spinal column collapsed onto the nerve bundle.
Then I have a 5 inch rod in my lower spine. The disc's collapsed onto each other and when they opened me up they found masses on each side of the spine... Recoved from this....
Now everything in between hurts on the spinal column . Is there pain.absoloutelty but pain meds take the edge off and allow for some function at least.
Hardware is screws and rods to separate the lower lumbar vertebrae and put in a new disc......question....is that the only solution? I’ve done therapy,injections and the ablation won’t work..seems extreme to me..
It’s very early here on the west coast and I was awakened by another migraine…ugh. My Neurologist has put me on a new migraine medication called Ubrelvy. My question is how many of you suffer from migraines, which medication do you use or not use? I’ve been told that it is part of AS. I also use ginger and peppermint in my oil diffuser. Thank you in advance for answering!
We never share your personal information with anyone.