Spondylitis

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about spongulitous

about spongulitous

i have burning above my hips and it pulls the top of my spine and around my ribs also my joints get hot

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A MySpondylitisTeam Member said:

Sounds like a nerve flare issue. Neurontin ( or Gabapentin) may help.

posted 13 days ago
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Has anyone tried Honeysuckle Tea for imflimation ?

Has anyone tried Honeysuckle Tea for imflimation ?

I have tons of honeysuckle where i live.Did research on Pinterest and it says its very beneficial. Helps with inflimation and other things.Can also make jelly with it

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A MySpondylitisTeam Member said:

I'm hoping for second bloom if they do that If so im making jelly and tea

posted 13 days ago
4 medium

Prozac

Prozac

I’ve been on cymbals for fourteen years and truly feel it’s ran it’s course.... I’ve asked to slowly withdrawal and get on Prozac.... it also said while I was researching that doctors have put people on low dose Prozac to help with withdrawals from the cymbals is this accurate????

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A MySpondylitisTeam Member said:

I take Viibryd for depression, anxiety, etc. Maybe changing to a different SSRI may help?

posted 13 days ago
2 medium

Do you ever get a rash? One that resembles shingles- red dots, raised, but feels like raw nerves exposed?

Do you ever get a rash? One that resembles shingles- red dots, raised, but feels like raw nerves exposed?

I get this rash every so often. We, including multiple doctors, thought it was was the shingles, but I'm pretty positive the shingles don't keep recurring. I always get them in the same place. Anyone experience this?

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A MySpondylitisTeam Member said:

I have had problems with itching and a rash and I also have excema and dry skin which I use a prescription shower cream and dry skin cream for. I took… read more

posted about 10 hours ago
4 medium

Sex

Sex

I love my husband very much and we used to have a very active sex. Now I am waiting for my back op and a hip replacement I hurt all day long even thought I take mst continus oramormph and naproxen. I want to be more intermate with my husband but can only make love lay on my bad hip as if I lie on my good hip I can't move my legs. Can anyone suggest any more comfy positions please

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A MySpondylitisTeam Member said:

What about from behind? Does it hurt your hips to be on your knees with a pillow under you for support? That's our go- to position when I have really… read more

posted 13 days ago
7 medium

Bit embarrassing, but...

Bit embarrassing, but...

Is anyone bowel incontinent? I have started leaking out poo and I don't know it's there until I go to the loo and I, well, smell it! My GP is treating me for severe impacting, so I'm on Laxido, was on Lactulose but it didn't do the trick . But, since taking it (started last Friday) twice daily, from Monday this week, several times a day, there is always some poo (and I mean several wipes worth, we're going through loo roll at a rate of knots ) sometimes quite a bit on my… read more

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A MySpondylitisTeam Member said:

Yep, I'm totally with you @A MySpondylitisTeam Member. I used to go to Sunday school as a child (Methodist), then as an 11 year old, decided that I… read more

posted 2 days ago
7 medium

Does anyone else have trouble controlling your body temperature? Sometimes I am freezing, other times burning up.

Does anyone else have trouble controlling your body temperature? Sometimes I am freezing, other times burning up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

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A MySpondylitisTeam Member said:

It happens when I sleep so I got a duo derm padded top layer for my mattress .
Also better pillows that are soft and I sleep slightly elevated
I find… read more

posted 11 days ago
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Exercise: Yes or No?

Exercise: Yes or No?

Do you find exercise helps with your illness'? I have PsA, Fibromyalgia and Severe Asthma- just to name a few. My husband thinks I need to start exercising, but I disagree. Walking takes a toll on me. Moving around hurts, even more. I don't think he understands the depth of my conditions. When a doctor (pain management) says they are sorry and there is nothing they can do for you, you would think....it's bad, really bad. I try to walk at least 500 steps daily. Some days are better than others.… read more

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A MySpondylitisTeam Member said:

Yes. You have to watch what you eat too
Sugar and too much carb and breads makes me acidic
I wouldn’t drink for awhile and then drink k then my BP… read more

posted 5 days ago
0 medium

"Brain fog",memory loss

"Brain fog",memory loss

Is this a normal thing? Will it get better or worse? I also have SLE(lupus),and they're blaming it all on "brain fog." This has me feeling so stupid at times, and ashamed.

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A MySpondylitisTeam Member said:

I wonder if that is what I get when I don't get a nap, feels like I can't think clearly and I'm half asleep, I've actually fell asleep stood up before… read more

posted about 10 hours ago
5 medium

Does Anyone use TEETER HANGUP to reverse spinal compression.?

Does Anyone use TEETER HANGUP to reverse spinal compression.?

I have been using TeeterHangup about 12 years now and I'm pretty sure it's the only thing that has saved me from being crippled. The inversion therapy is like a blessing. I don't mind hanging upside down for a few minutes a day or a week. It's less expensive than going to get stretched on a table. Does inversion help anyone else.?

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A MySpondylitisTeam Member said:

I love mine and agree, I couldn't live without it.

posted 12 days ago
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