Spondylitis

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8 medium

Chest Spasms

Not sure if that’s the right term but I know people have said they get chest pain but I’ve been getting spasms. It’s similar to a foot cramp but in my chest (no heart problems)
I’m without health insurance at the moment so going to the doc is not an option
Thank You

posted about 1 month ago
A MySpondylitisTeam Member said:

I get those too & sometimes both sides at once, very nasty when that happens.

posted 22 days ago
6 medium

Cervical Spondylosiis

As I have Cervical Spondylitis the minute I lie down in bed at night,the pains in my head and neck starts
I can’t get a proper restful sleep.
So wondering is anyone on here who has this can recommend a good pillow?
I have tried so many different ones ,from cheap to really exspensive ones but still haven’t found the right one.
I don’t know if my head should be raised a bit or should I lie flat?
Any help would be much appreciated
Thanks in advance

posted about 1 month ago
A MySpondylitisTeam Member said:

I didn't use rubs but used the same trick with towel! It really worked. I had a complete neck rebuild C2-T1. So I no longer have that problem. Heat and… read more

posted 9 days ago
9 medium

I have been told that there is nothing else that they can do.

I am on 3 Los of pain killers that do not help I have been on lots of different ones but they do nothing for the pain. I find walking is getting so painful that I don't want to go out can any one suggest some thing that might help

posted about 1 month ago
A MySpondylitisTeam Member said:

Voltaren Gel helps with pain too!

posted 15 days ago
9 medium

Anyone tried Xeljanz XR?

I fought tooth and nail to get this medication because I refused to go down the road of injectables again. I was on Humira and Enbrel. I developed a nasty rash from Humira and Enbrel did absolutely nothing for me. I’ve been on the Xeljanz XR for about 2 weeks now and have noticed some improvements. Anyone else have success with this medication?

posted about 1 month ago
A MySpondylitisTeam Member said:

I noticed the first few days I felt that way and had a headache. I started eating a snack or meal before taking it and I’ve been good since I did so.

posted 25 days ago
9 medium

Weary about biologics

Hi there,

40 year old male diagnosed this year but likely have had it for 20 years.

Xrays show fusion in T3 (among other areas). I have pain daily and stiffness. Doctors categorize as severe. Inflammation markers are high.

Treatments tried:

1- multiple NSAIDS which I know are not sustainable and also didn’t sit well with stomach
2- regular gym, massage, stretching - this helps
3- no starch diet for 3 months (not sure yet if this is helping)

Doctors have all recommended I go straight to… read more

posted about 1 month ago
A MySpondylitisTeam Member said:

Hi Dave, I was diagnosed finally about 5-6 years ago by a specialist with all the test positive. I've been on Humira ever since, I understand your… read more

posted 29 days ago
2 medium

Spinal Stimulation Implants

Does anyone have any information on spinal stimulation implants?
I have been receiving spinal injections which aren't working anymore and my Dr. says that is my next step. I can't seem to find a lot of information on it and he only gave me a pamphlet.

posted about 2 months ago
A MySpondylitisTeam Member said:

Well said Brad. They will push anything on you as they get kickbacks on all of it sadly

posted 18 days ago
9 medium

Question about fatigue

Is it common to have big fatigue at night, fall asleep easily, but wake up every night about 30 minutes later for no reason?

posted about 2 months ago
A MySpondylitisTeam Member said:

Yes, for years. I'm trying many things and only a little help from them.

posted about 1 month ago
7 medium

Menstrual cycle issues

I have been on humira since the beginning of December and methotrexate since sept 2018, but period is now 15 days late which is very unusual for me since my period is vey regular, does anyone else experience this?

posted about 2 months ago
0 medium

Is gluten free diet helpfull for AS

I'm thinking of trying gluten free diet, any tips on best foods for inflammation

posted about 2 months ago
A MySpondylitisTeam Member said:

I bought a book on internet food not to eat that helps to releive inflammation I'm so fed up with painkillers but need them but as I said before I feel… read more

posted 14 days ago
1 medium

I forget things

I seem to forget things alot of the time, can be talking and forget a word and ans be thrown then forget what I am talking about. Anyone else get this AS

posted about 2 months ago
A MySpondylitisTeam Member said:

Lyrica made me a complete different person. Emotionless and a horrible memory! Gabapentin does they same but a little more bearable . The pain itself… read more

posted 5 days ago
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