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Spondylitis

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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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How Rapidly Can SA Progress?

How Rapidly Can SA Progress?

I was recently diagnosed with SA and told I had a "good prognosis". I was started on a prednisone taper and weekly methotrexate and I feel like I'm getting worse steadily. I use a cane to walk, but that isn't enough. Everyone says to walk, but walking is so painful that I can barely navigate to the bathroom. My hips and legs hurt then my back feels like it's about to cave or my legs give way. Is this the usual? Does this get better or only worse. I don't feel like this is a "good prognosis". I… read more

A MySpondylitisTeam Member said:

No and reading some of these other stories scares me I am 47 and it seems to get worse with age. Acupuncture on the regular and stretching can help alleviate my pain however there are days I spend on… read more

posted 8 days ago

23andme

23andme

Hello
Wondering if anyone else has done 23andme and is aware of if/how the raw detailed results might point towards genetic predisposition towards spondylitis or other inflammatory or arthritic conditions? I was tested for the specific gene associated with spondylitis by my doctor 7 years ago but didn’t have it; wondering if there are other possible genetic markers that may help my doctors narrow down a diagnosis & treatment. According to the results I am at a high risk for developing Type 2… read more

A MySpondylitisTeam Member said:

Thank you @A MySpondylitisTeam Member!

posted 6 days ago
What is Causing Your Inflammation? Read more >

Nausea 🤢

Nausea 🤢

Anyone else who takes prescription NSAIDs daily find they’re getting bad nausea post-vax? I’ve had nausea ranging from mild to painful since the evening after my second dose (Monday). Maybe the medication is making a normal side effect worse?

A MySpondylitisTeam Member said:

Better now. I had the J&J 6 weeks ago. Probably having to go off the Methatrexate for 2 weeks before & after the shot increased my inflamation & fatigue. So only been back on it 2 weeks.

posted 8 days ago

Osteoporosis & Nr-axspa

Osteoporosis & Nr-axspa

Finally linked all the many symptoms - over many years - together and investigated ankylosing spondylitis. Learned that I am HLA-B27 positive and realized that my father was disabled at 50 yrs old - probably due to undiagnosed AS. Thankfully, my inflammation is moderate and non-radiographic. I have managed it with Celebrex and pain control - along with serious diet and exercise.

My question: I have reversed osteoporosis in hips & thigh with exercise and diet - but not in spine. That is getting… read more

A MySpondylitisTeam Member said:

I’m not due for another bone scan before the end of 2021.

posted 7 days ago
What is Causing Your Inflammation? Read more >

Working Out At The Gym With Spondylitis

Working Out At The Gym With Spondylitis

I suffer mostly from L4 & L5 degenerative Spondylolisthesis. I love working out at the gym. What equipment is safe to use? Is the rowing machine recommendable for a bad back? And what WEIGHT LIFTING machines should I avoid altogether?

A MySpondylitisTeam Member said:

Talk to the staff,let them know about your limits.They can show you low impact choices

posted 16 days ago

Pain Map

Pain Map

Hello friends,
I am hoping to send the following pain map to my health team as it is hard to explain these things over the phone and my rheumatologist is trying to diagnose me using imaging reports and phone appointments. I also have a neuro appointment next week, which is in person. Could you take a look and let me know if this is clear? Thanks!

A MySpondylitisTeam Member said:

That's a great idea,I'm stealing this for my next pain clinic visit

posted 16 days ago
Can a Rheumatologist Help With Your Back Pain? Read more >

First MRI Tips/advice?

First MRI Tips/advice?

I’m having a pelvic MRI Monday morning (early early morning, so fasting is no problem!) it’s my first MRI but I have had three surgeries, one under general & two under local anesthesia. I have a bit of white coat syndrome but no claustrophobia. Any tips or advice in preparing mentally/emotionally/physically? Thanks!

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member, glad your MRI is over. Yes, now you know how to prepare for you, everybody is different and has different takes, but you made it, all that counts. When you get your… read more

posted about 1 month ago

I Am Looking For Recommendations For A Good Computer Chair.

I Am Looking For Recommendations For A Good Computer Chair.

My job requires me to sit quite a bit. What computer chairs do you like and why? Thank you!

A MySpondylitisTeam Member said:

Not sure about chair - but Coxis Cushions are great ( get a hard one!😃😃

posted about 2 months ago

Abrilada

Abrilada

A MySpondylitisTeam Member said:

What is AHHD?😃

posted about 2 months ago
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