Spondylitis

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9 medium

When is it time to try biologics?

I was diagnosed with non-radiographic axSpa a few months ago. I’ve tried several NSAIDs, PT over the years, exercise, prednisone, injections etc., all of which have helped some, but I am still having pain.
The rheumatologist wants me to try 4 weeks of prednisone again, along with Tramadol, to see if that will help. When I mentioned concerns about progression, he said that I shouldn’t worry about it - but that Enbrel might be an option if I would like to try it.
I appreciate all… read more

edited, originally posted 30 days ago
A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member good to know, thank you :)

posted 28 days ago
0 medium

Spinal surgery

I got spndylylis anklosing .ive been having numbness and painsand kneedles also my back feels as if been pulled apart .ive also had problems with my leg giving way ,i know have to irrigate myself cause of loss of feeling in my back passage. I been under drs had pain injections also had mri s xrays everything but nobody told me i loose the feeling in .my back passage .so now i put up with bleeding terriable back pain and told ill have to have stoma bag .feeling really pe off and let down by my drs… read more

posted about 1 month ago
A MySpondylitisTeam Member said:

It becomes clearer Karen once used to it. Everything is clearly categorised x x

posted about 1 month ago
2 medium

Hi, is there anything I can do to ease the discomfort of the chronic popping in my neck

I suffer from agonising popping and pain in my neck, that I often end up in tears. My back pain leaves me in absolute agony and feeling many more years older than i am, sometimes barely able to move and get about. Is there anything else i could try other than basic pain killers?

posted about 1 month ago
A MySpondylitisTeam Member said:

I have to admit I cheat sometimes and end up taking once jn the morning and half at night. I I have had deep tissue massages the help my neck...but… read more

posted 12 days ago
4 medium

Medications

Hi Everybody, my Rheumatoid Dr just prescribed me Rayos for inflammation but i know thats its a generic for prednisone. My cardiologist told me not to take it tht it gives you a moon face. The last thing i want is weight gain and a moon face .
Anyone have any bad experience with this ?

posted about 1 month ago
A MySpondylitisTeam Member said:

Mine took around 18 months to even start back to my normal weight x x

posted 24 days ago
4 medium

Could i have spondylitus?

Trapped a nerve in my neck which parralized me for a bit by just falling back playing football, once or twice a year for the first few years i'd have really bad neck pain and also was told at hospital that i had 2 ackle bones in each foot ,but they wouldnt do anything unless i was older and gave me problem,this may not be anything to do with my neck and back pain but needed to say as everything is linked. I then over the next 18 years had a PC repair shop and constantly bending over them… read more

posted about 2 months ago
A MySpondylitisTeam Member said:

This is why cold and flu remedies for the most part disappeared to the pharmacy counters end. Always best to check for any duplications or… read more

posted about 1 month ago
1 medium

I am scheduled for radio frequency ablation,,

any body have any advice???

posted about 2 months ago
A MySpondylitisTeam Member said:

I have had several both cervical and lumbar with mixed results. I didnt get close to 50% relief from any of them and the small amount of relief I did… read more

posted 12 days ago
6 medium

Azulfidine

My rheumatologist says this may be my next treatment but because of my allergy to penicillin we have to start very low dose. Has anyone else used this,? Any side effects? Did it help?

posted 2 months ago
6 medium

unsubscribe

Hi, how do I unsubscribe. I did try before but am still getting emails

posted 2 months ago
A MySpondylitisTeam Member said:

Hi @A MySpondylitisTeam Member If you would like to adjust your email settings, you may do so under the menu icon on the right, then open up settings,… read more

posted 2 months ago
4 medium

Avinza

Im on zomorph in tablet form should it be used as a long term medication

posted 2 months ago
A MySpondylitisTeam Member said:

Hi Avinza I too am on Zomorph and have been for a few years now and at present I have no side effects.
Hope that helps.

posted about 2 months ago
2 medium

Does anyone have difficulty wearing clothes?

My first question on getting out of bed is "what shall I wear that doesnt affect my back. Sounds stupid I know, but its a major problem for me? I like to be smart but cannot stick the pain of anything around my waist. I have to cut through the waist bands of skirts, trousers etc. Even wearing tights is unbearable.
Reading this back I know it sounds ridiculous, but it is true.

posted 2 months ago
A MySpondylitisTeam Member said:

Had another spine injection ,lasted one day. I just keep hoping. I also use sleeveless t shirts under tops. Kinda helps the bouncing effect.
When bad… read more

posted about 2 months ago
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