I Cannot Stand On My Feet. How Many Feel So Alone? | MySpondylitisTeam

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2212 questions
I Cannot Stand On My Feet. How Many Feel So Alone?
A MySpondylitisTeam Member asked a question 💭

I cannot stand on my feet an longer than 15-20 minutes before they are absolutely killing me. My diagnosis are AS, Fibromyalgia, sjogrens, Raynauds, and neuropathy. I hear how people describe neuropathy as pins and needles but I don’t have that. I never know how to explain it but my feet just hurt and the longer I’m on them the more swollen and red and hot they become. I have to literally plan each day around my feet, meaning I have to decide what hideous shoes to wear for the day, to making… read more

A MySpondylitisTeam Member

Thanks for insights to what is helping I will try them.

posted February 21
Anybody Get Weakness In Legs And/or Arms? 😊
A MySpondylitisTeam Member asked a question 💭

I seem to deal with this a lot. It can, at times, make exercise a little challenging. Also, pins and needles that come and go in different areas.
I don’t really see much literature on this. Or sites that list it as a symptom of AS.
Thanks 😊

A MySpondylitisTeam Member

Wonderful, thanks for the idea.

posted March 9
Does Anyone Get Flare Up Where Rib Cage Is.
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Ask your doctor about potential medication that will help. You don't have to suffer.

posted March 13
Does Anyone Have So Much Fatigue And Brain Fog That They Feel Drunk And Mix Up The Vocabulary? Is This An AS Thi G?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

KAB what treatment and procedures are you receiving from your Pain 👨 doctor?

posted July 8, 2022
Navigating This Sight...
A MySpondylitisTeam Member asked a question 💭

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier
I start by modifying one of my earlier posts...

So far I have learned that
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to stay updated on… read more

A MySpondylitisTeam Member

So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in particular, just figured the opposite off ADD had to… read more

posted May 26, 2019
Does Anyone Get An Electric Shock Like Pain Under Their Foot?
A MySpondylitisTeam Member asked a question 💭

I can be sitting down and I get this strange pain in the middle of my foot underneath. I get a similar pain in my wrist sometimes too but am not sure what is causing it.

A MySpondylitisTeam Member

Hanging in there like all of are. Getting tired of getting bounced back and force with the doctors. Seems like there are different doctors for different things related with our spines. Hope that you… read more

posted December 16, 2023
What’s The One Thing That's Helped You Most With Fatigue?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I take it for a different condition, and it needs to stay in My body.

posted April 14
Does Anyone Have Big Issues With Cramping And Spasms
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I take gabapentin 800 mg 3x’s daily and I know it definitely helps

posted November 27, 2023
Is There Anyone That Take A Biologic But Still Have Lots Of Fatigue?
A MySpondylitisTeam Member asked a question 💭

I am on my second biologic. I have tried Humira and 6 most later my body attacked the meds. I am now on Cosetyx. It's been about 8 weeks and I still feel so fatigued. I was thinking depression and is it still this disease?

A MySpondylitisTeam Member

Stay strong warrior 💪 💙 ❤️

posted February 6
Could The Nausea Be Caused By The Condition Of My Spine Effecting The Nerves To My Stomach?
A MySpondylitisTeam Member asked a question 💭

I usually don't pay much attention to physical discomfort bit yesterday it got so bad I took myself to the ER. I was having severely nausea and loan up the sides of my back. Blood tests and a cat scan showed nothing wrong, in fact a couple of nurses commented on how they rarely see a healthier specemin of my age.

A MySpondylitisTeam Member

You've hit the nail on the head.

posted July 23, 2023
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