Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

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A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member Lowman
Yeah I can't see why anyone would take some of these meds if they didn't have any pain, the side effects for a start… read more

posted 27 days ago  

hug useful?

Navigating this sight...

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier.
I start by modifying one of my earlier posts...

So far I have learned that:
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to… read more

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A MySpondylitisTeam Member said:

So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in… read more

posted 22 days ago  

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Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

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A MySpondylitisTeam Member said:

I have horrible brain fog and concentration. I feel like my thoughts outrun my mouth sometimes and then I stumble over words. Its funny sometimes… read more

posted 15 days ago  

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Treatments & Medication

After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all xx

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A MySpondylitisTeam Member said:

I am on ibuprofen every 6 hours. If I don't l Gabapentin 100 mg 3 times a day. But my Allergies are so bad. I have to take Zzytec 10mg a day… read more

posted 8 months ago  

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Diagnosis

How do doctors give diagnosis when so my things have the same symptoms ???? How can they tell what is what. Not all can be found with blood test.

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A MySpondylitisTeam Member said:

Your x-rays will help to diagnose. The problem is they have to do the X-ray a certain way. For a PA they need to point the cone from the top of your… read more

posted 8 months ago  

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I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

Also maybe finding it harder to come across words?

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A MySpondylitisTeam Member said:

I was feeling that I was in the early stages of dementia since reading everyone’s responses I am now looking at my condition in a different way.

posted 18 days ago  

hug (2) useful?

Does anyone else have trouble controlling your body temperature? Sometimes I am freezing, other times burning up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

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A MySpondylitisTeam Member said:

It happens when I sleep so I got a duo derm padded top layer for my mattress .
Also better pillows that are soft and I sleep slightly elevated
I find… read more

posted 11 days ago  

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I forget things

I seem to forget things alot of the time, can be talking and forget a word and ans be thrown then forget what I am talking about. Anyone else get this AS

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A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member

I knew what you meant dear you are right, and I prefer the same. I'm not easily offended by what people say or think, to… read more

posted about 2 months ago  

hug (1) useful?

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

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A MySpondylitisTeam Member said:

Unfortunately unless your situation is a life or death matter the ER is more concerned with keeping their licenses and not going to jail then treating… read more

posted 2 months ago  

hug (2) useful? (6)

Has anyone tried Honeysuckle Tea for imflimation ?

I have tons of honeysuckle where i live.Did research on Pinterest and it says its very beneficial. Helps with inflimation and other things.Can also make jelly with it

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A MySpondylitisTeam Member said:

I'm hoping for second bloom if they do that If so im making jelly and tea

posted 13 days ago  

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