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I Have As And My Symptoms Seem To Be Getting Worse My Question Is Does Anyone Else Experience Worsening Memory As Time Goes On?
A MySpondylitisTeam Member asked a question 💭

Also maybe finding it harder to come across words?

posted November 6, 2017
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A MySpondylitisTeam Member

I find myself explaining to whomever it is that I am speaking with, what AS does and why it takes me a minute to get the words out.

posted 5 days ago
Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?
A MySpondylitisTeam Member asked a question 💭

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead of supporting my spine from the inside with screws which obviously didn't work, they went t the… read more

posted October 30, 2017
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A MySpondylitisTeam Member

I truly am sorry for all the mistakes you have encountered from so called "Professional" physicians! We are like science experiments, specimens to them. I would bet, if anyone of them had to… read more

posted February 11
Does Colder Weather Affect Your Spondylitis Symptoms? What Helps?
A MySpondylitisTeam Member asked a question 💭
posted October 29, 2020
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A MySpondylitisTeam Member

Yes, that cold and humidity plays a big part in that pain.

posted January 31
I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?
A MySpondylitisTeam Member asked a question 💭

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these problems of caught in the middle between pain management and ER?

posted November 15, 2017
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A MySpondylitisTeam Member

Yeah like Friday evening I went out Friday 9 hours before I came to having hard jerking like a terretts patient or sy

posted January 24
Does Anyone Have Difficulties Conversing?
A MySpondylitisTeam Member asked a question 💭

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

posted November 10, 2019
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A MySpondylitisTeam Member

I recently started cognitive speech therapy for this very reason. I’m hopeful that it’s going to help me find my words and be able to speak clearly.

posted 7 days ago
I Have Spondylosis Not Spondylitis Any One Else Have This As They Are Different
A MySpondylitisTeam Member asked a question 💭
posted July 10, 2019
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A MySpondylitisTeam Member

The end result is they both hurt like hell and whether it is age or genetics, they can both be debilitating.

posted 4 days ago
Does Anyone Have So Much Fatigue And Brain Fog That They Feel Drunk And Mix Up The Vocabulary? Is This An AS Thi G?
A MySpondylitisTeam Member asked a question 💭
posted March 14, 2018
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A MySpondylitisTeam Member

KAB what treatment and procedures are you receiving from your Pain 👨 doctor?

posted July 8, 2022
Anybody Get Weakness In Legs And/or Arms? 😊
A MySpondylitisTeam Member asked a question 💭

I seem to deal with this a lot. It can, at times, make exercise a little challenging. Also, pins and needles that come and go in different areas.
I don’t really see much literature on this. Or sites that list it as a symptom of AS.
Thanks 😊

posted January 19
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A MySpondylitisTeam Member

I have noticed weakness in my limbs. It almost gives me the heebie jeebies. Sometimes I feel like I can't stand still because of it. If I stand still I more than likely have to sit. Grip strength… read more

posted April 18
Navigating This Sight...
A MySpondylitisTeam Member asked a question 💭

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier
I start by modifying one of my earlier posts...

So far I have learned that
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to stay updated on… read more

posted March 14, 2019
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A MySpondylitisTeam Member

So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in particular, just figured the opposite off ADD had to… read more

posted May 26, 2019
Can Spondylitis In The Spine Cause Neck Pain And Hand Numbness?
A MySpondylitisTeam Member asked a question 💭

Recently I've been having neck pain, which feels stiff and my hands sometimes feel a little numb or like I'm getting pins and needles. My arms are fine it's just my neck and hands. Could anyone please tell me if this is related to the spondylitis in my spine? Many thanks.

posted July 12, 2018
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A MySpondylitisTeam Member

Have you gotten a spine doctors opinion and x-ray? Mine revealed jagged discs that were cutting off the nerves in my neck leading down my arms. Happens a lot. Eventually I had cervical disc surgery to… read more

posted May 19
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