Spondylitis
Questions + Answers
Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?
I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more
Treatments & Medication
After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all xx
Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?
Diagnosis
How do doctors give diagnosis when so my things have the same symptoms ???? How can they tell what is what. Not all can be found with blood test.
Your x-rays will help to diagnose. The problem is they have to do the X-ray a certain way. For a PA they need to point the cone from the top of your… read more
I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?
Also maybe finding it harder to come across words?
I forget things
I seem to forget things alot of the time, can be talking and forget a word and ans be thrown then forget what I am talking about. Anyone else get this AS
I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?
I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more
Anyone tried Xeljanz XR?
I fought tooth and nail to get this medication because I refused to go down the road of injectables again. I was on Humira and Enbrel. I developed a nasty rash from Humira and Enbrel did absolutely nothing for me. I’ve been on the Xeljanz XR for about 2 weeks now and have noticed some improvements. Anyone else have success with this medication?
I noticed the first few days I felt that way and had a headache. I started eating a snack or meal before taking it and I’ve been good since I did so.
Does anyone have difficulty wearing clothes?
My first question on getting out of bed is "what shall I wear that doesnt affect my back. Sounds stupid I know, but its a major problem for me? I like to be smart but cannot stick the pain of anything around my waist. I have to cut through the waist bands of skirts, trousers etc. Even wearing tights is unbearable.
Reading this back I know it sounds ridiculous, but it is true.
I am sure your husbands friends will enjoy hearing all about your bra size lol x I was looking on my privacy settings for Facebook today and you can… read more
Can spondylitis in the spine cause neck pain and hand numbness?
Recently I've been having neck pain, which feels stiff and my hands sometimes feel a little numb or like I'm getting pins and needles. My arms are fine it's just my neck and hands. Could anyone please tell me if this is related to the spondylitis in my spine? Many thanks.
You need to see a board certified rheumatologist. This site isn't for diagnoses.
