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Spondylitis

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I Have As And My Symptoms Seem To Be Getting Worse My Question Is Does Anyone Else Experience Worsening Memory As Time Goes On?

I Have As And My Symptoms Seem To Be Getting Worse My Question Is Does Anyone Else Experience Worsening Memory As Time Goes On?

Also maybe finding it harder to come across words?

A MySpondylitisTeam Member said:

Yes, Sorry, that i use the Word "Dumb". Its that sometimes , this condition take the best of me. Sorry if I was a little
Harsh to myself. Im deeply sorry.

posted 6 months ago

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead of supporting my spine from the inside with screws which obviously didn't work, they went t the… read more

A MySpondylitisTeam Member said:

When I went to the spinal clinic, the surgeon, of course, insisted on surgery. I explained to him that currently that isn't an option. My brother had spinal fusion surgery and the constant pain ruined… read more

posted 3 months ago

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these problems of caught in the middle between pain management and ER?

A MySpondylitisTeam Member said:

Thank you for your reply. I have gone through the ER humiliation Not doing again! I have been kicked out of pain clinics. One even falsified my urine test and accused me of taking a drug I NEVER… read more

posted 4 days ago

Navigating This Sight...

Navigating This Sight...

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier
I start by modifying one of my earlier posts...

So far I have learned that
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to stay updated on… read more

A MySpondylitisTeam Member said:

So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in particular, just figured the opposite off ADD had to… read more

posted over 2 years ago

Does Colder Weather Affect Your Spondylitis Symptoms? What Helps?

Does Colder Weather Affect Your Spondylitis Symptoms? What Helps?

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member, Yes, we are all different yet the same, what surgery did you have in 2004? I am so sorry you have had to go through cancer. I am sure it was a life changer when you… read more

posted about 2 months ago

Does Anyone Else Have Trouble Controlling Your Body Temperature? Sometimes I Am Freezing, Other Times Burning Up.

Does Anyone Else Have Trouble Controlling Your Body Temperature? Sometimes I Am Freezing, Other Times Burning Up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

A MySpondylitisTeam Member said:

The discs push against the spinal column So my legs go numb too. I had a real bad car accident ten years ago
I got mattress pads and nice fluffy pillows. Mattress pads make all the difference… read more

edited, originally posted 3 months ago

Manufacturer Coupons For Meds

Manufacturer Coupons For Meds

Did you know that if you get online and look up your meds,you can often get manufacturer coupon agreements with walmart,kroger,various pharmacys?I get a deal with Kroger pharmacy thats just 13$ for 60 pills.All you do is Google Manufacturer and (Your med) coupons.Find best deal and print.,Take to pharmacy

A MySpondylitisTeam Member said:

Wow....sounds like a headache but maybe worth it if it helps with cost. I have a couple of scripts that are over $300 cash price but $43 with Medicare-D. Problem is that next year there is going to be… read more

posted about 2 years ago

Who Here Has Had Cortisone Shots Or Injections? And Have You Seen The Recent Medical Study Results On The Damage It Causes?

Who Here Has Had Cortisone Shots Or Injections? And Have You Seen The Recent Medical Study Results On The Damage It Causes?

Reading an article today the the medical society put out about the cortisone shots and or injections people have had that actually cause more damage than good. I know I've had them before and complained to my then doctor whom I fired and he said it was all in my head! I guess it would appear I was correct! Luckily I got his pompous ass fired. Please google it and read up on it if you've ever had any cortisone shots or injections in any joints on your body.

Please follow the link to read the… read more

A MySpondylitisTeam Member said:

To Susan Caldwell ....In ref to having a foley for 6 months after your surgery.....sometimes when they do back surgery you can have some nerve damage to the urinary tract or the bowels. Sometimes it… read more

posted over 1 year ago

Does Anyone Have Difficulties Conversing?

Does Anyone Have Difficulties Conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

A MySpondylitisTeam Member said:

Yes I start talking lose track, and have to ask what I was talking about.

posted 6 days ago
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