Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

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A MySpondylitisTeam Member said:

I went thru the same thing but it started at age 22. I am 56 today and drs still look at me l needed help not told I was just wanting pills from Drs.
I… read more

posted 17 days ago  

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Navigating this sight...

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier.
I start by modifying one of my earlier posts...

So far I have learned that:
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to… read more

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A MySpondylitisTeam Member said:

So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in… read more

posted 3 months ago  

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Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

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A MySpondylitisTeam Member said:

Yes. Its so bad most days. I feel guilty about it. Some days I wish I would just not have awakened. Eternal dirt nap. That was hard to admit. But it's… read more

posted 2 days ago  

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I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

Also maybe finding it harder to come across words?

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A MySpondylitisTeam Member said:

I'm having great difficulty with spelling and pronouncing words
Sometimes I have to sound them out loud.and.i get mlm so frustrated. My husband tends… read more

posted about 20 hours ago  

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Manufacturer coupons for meds

Did you know that if you get online and look up your meds,you can often get manufacturer coupon agreements with walmart,kroger,various pharmacys?I get a deal with Kroger pharmacy thats just 13$ for 60 pills.All you do is Google Manufacturer and (Your med) coupons.Find best deal and print.,Take to pharmacy

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A MySpondylitisTeam Member said:

Some of these savings don't apply to people on medicare or medicaid. A lot of the discount card programs require you to have commercial insurance.… read more

posted 23 days ago  

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Does anyone else have trouble controlling your body temperature? Sometimes I am freezing, other times burning up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

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A MySpondylitisTeam Member said:

I have to wear 2 or 3 pairs of socks at night because my feet get so cold they hurt so bad. Drs said I do have Raynauds and neuropathy. I still wonder… read more

posted 16 days ago  

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Diagnosis

How do doctors give diagnosis when so my things have the same symptoms ???? How can they tell what is what. Not all can be found with blood test.

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A MySpondylitisTeam Member said:

I'm sure they also have an educated guess, what it's most likely to be given your age and gender and if that's not it they go onto the next most likely… read more

posted 12 days ago  

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Treatments & Medication

After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all xx

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A MySpondylitisTeam Member said:

I am on ibuprofen every 6 hours. If I don't l Gabapentin 100 mg 3 times a day. But my Allergies are so bad. I have to take Zzytec 10mg a day… read more

posted 11 months ago  

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I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

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A MySpondylitisTeam Member said:

Yes! When I broke my toe I waited 3 days since I had a Dr appt. They asked if I went to ER. I said it's an expensive waste of time! She said she hears… read more

posted 12 days ago  

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Has anyone tried Honeysuckle Tea for imflimation ?

I have tons of honeysuckle where i live.Did research on Pinterest and it says its very beneficial. Helps with inflimation and other things.Can also make jelly with it

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A MySpondylitisTeam Member said:

Sounds so good Well done you

posted 2 months ago  

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