Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

Also maybe finding it harder to come across words?

Navigating this sight...

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier.
I start by modifying one of my earlier posts...

So far I have learned that:
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to… read more

Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

Does anyone else have trouble controlling your body temperature? Sometimes I am freezing, other times burning up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

Manufacturer coupons for meds

Did you know that if you get online and look up your meds,you can often get manufacturer coupon agreements with walmart,kroger,various pharmacys?I get a deal with Kroger pharmacy thats just 13$ for 60 pills.All you do is Google Manufacturer and (Your med) coupons.Find best deal and print.,Take to pharmacy

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

Wondering if anyone else has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

CRPS/RSD is a condition that flares when your emotions are high. Meaning stress levels and/or emotional turmoil. It causes feelings of burning, tearing, pin needles and it is not caused by inflammation. It is a disease of the sympathetic nervous system.

I didn't even know this existed until it attacked me, 7 years ago. I had trigger release on all 5 fingers of my right hand. At the time, I was dealing… read more

Does anyone have difficulties conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

Treatments & Medication

After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all xx