Spondylitis

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Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

A MySpondylitisTeam Member said:

Thank you for your input. Hoping you have a painless day. Hugs...

posted 26 days ago

Navigating this sight...

Navigating this sight...

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier.
I start by modifying one of my earlier posts...

So far I have learned that:
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to… read more

A MySpondylitisTeam Member said:

So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in… read more

posted 6 months ago

I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

Also maybe finding it harder to come across words?

A MySpondylitisTeam Member said:

I would love to eat salmon, halibut or did everyday, however it is so expensive. Was in hospital for 3 weeks and had salmon everynight. Felt so much… read more

posted 28 days ago

Does anyone else have trouble controlling your body temperature? Sometimes I am freezing, other times burning up.

Does anyone else have trouble controlling your body temperature? Sometimes I am freezing, other times burning up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

A MySpondylitisTeam Member said:

I have the cold fingers and toes/feet when ever I lay down for very long. When I'm up and moving around I'm hot. Summer is terrible. This time of year… read more

posted 25 days ago

Manufacturer coupons for meds

Manufacturer coupons for meds

Did you know that if you get online and look up your meds,you can often get manufacturer coupon agreements with walmart,kroger,various pharmacys?I get a deal with Kroger pharmacy thats just 13$ for 60 pills.All you do is Google Manufacturer and (Your med) coupons.Find best deal and print.,Take to pharmacy

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member Do you have yo give financial info to get these manufacturers coupons?

posted 6 days ago

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

A MySpondylitisTeam Member said:

I am a strong advocate for us pain patients. Check out the U.S. Pain Foundation.

posted 25 days ago

Diagnosis

Diagnosis

How do doctors give diagnosis when so my things have the same symptoms ???? How can they tell what is what. Not all can be found with blood test.

A MySpondylitisTeam Member said:

This is one of the reasons it takes so long to get a proper diagnosis and sometimes you end up diagnosed and then rediagnosed. So many of the symptoms… read more

posted about 1 month ago

Treatments & Medication

Treatments & Medication

After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all xx

A MySpondylitisTeam Member said:

I am on ibuprofen every 6 hours. If I don't l Gabapentin 100 mg 3 times a day. But my Allergies are so bad. I have to take Zzytec 10mg a day… read more

posted about 1 year ago

You ever just feel like your body is lacking and craving something?

You ever just feel like your body is lacking and craving something?

Last night I just felt like my body was lacking something, like I needed some fruit.Went to store and loaded up on fruit.Had some and instantly I felt better

A MySpondylitisTeam Member said:

I seem to be craving orange juice also! I put a glass full in the freezer and then eat drink it and wow is it good.

posted 21 days ago
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