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I Have As And My Symptoms Seem To Be Getting Worse My Question Is Does Anyone Else Experience Worsening Memory As Time Goes On?

I Have As And My Symptoms Seem To Be Getting Worse My Question Is Does Anyone Else Experience Worsening Memory As Time Goes On?

Also maybe finding it harder to come across words?

posted November 6, 2017
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A MySpondylitisTeam Member

@A MySpondylitisTeam Member, thank you for this information, very valuable. This disease does keep us from doing a lot of various things
My appetite has gone downhill as well. Very well said,… read more

posted December 17, 2022

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead of supporting my spine from the inside with screws which obviously didn't work, they went t the… read more

posted October 30, 2017
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A MySpondylitisTeam Member

Good for you! We have to stand our ground. Let's face it, it's basically all about the money, not healing. Please, KEEP ON KEEPING, ONE DAY AT A TIME.❤ God Bless. 🙏🏻

posted January 17

Does Colder Weather Affect Your Spondylitis Symptoms? What Helps?

Does Colder Weather Affect Your Spondylitis Symptoms? What Helps?

posted October 29, 2020
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A MySpondylitisTeam Member

Yes, that cold and humidity plays a big part in that pain.

posted 1 day ago

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these problems of caught in the middle between pain management and ER?

posted November 15, 2017
A MySpondylitisTeam Member

Yeah like Friday evening I went out Friday 9 hours before I came to having hard jerking like a terretts patient or sy

posted January 24

Does Anyone Have Difficulties Conversing?

Does Anyone Have Difficulties Conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

posted November 10, 2019
A MySpondylitisTeam Member

Yes since all this started I have developed a few distinct issues. 1.) Not being able to find the right words for what I am trying to say, like a stroke patient. Simple, basic words that I use all the… read more

posted January 24

Does Anyone Have So Much Fatigue And Brain Fog That They Feel Drunk And Mix Up The Vocabulary? Is This An AS Thi G?

Does Anyone Have So Much Fatigue And Brain Fog That They Feel Drunk And Mix Up The Vocabulary? Is This An AS Thi G?

posted March 14, 2018
A MySpondylitisTeam Member

KAB what treatment and procedures are you receiving from your Pain 👨 doctor?

posted July 8, 2022

Navigating This Sight...

Navigating This Sight...

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier
I start by modifying one of my earlier posts...

So far I have learned that
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to stay updated on… read more

posted March 14, 2019
A MySpondylitisTeam Member

So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in particular, just figured the opposite off ADD had to… read more

posted May 26, 2019

Does Anyone Else Have Trouble Controlling Your Body Temperature? Sometimes I Am Freezing, Other Times Burning Up.

Does Anyone Else Have Trouble Controlling Your Body Temperature? Sometimes I Am Freezing, Other Times Burning Up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

posted May 19, 2019
A MySpondylitisTeam Member

The discs push against the spinal column So my legs go numb too. I had a real bad car accident ten years ago
I got mattress pads and nice fluffy pillows. Mattress pads make all the difference… read more

posted September 5, 2021 (edited)

Anybody Get Weakness In Legs And/or Arms? 😊

Anybody Get Weakness In Legs And/or Arms? 😊

I seem to deal with this a lot. It can, at times, make exercise a little challenging. Also, pins and needles that come and go in different areas.
I don’t really see much literature on this. Or sites that list it as a symptom of AS.
Thanks 😊

posted January 19
A MySpondylitisTeam Member

Hey Marnee. Yes, this AS brings something new to the table every day! Hope you're doing well today!! I did too much yesterday, so ... hopefully today & 2mr0 are quiet days!!! LOL~ I can hope, right… read more

posted January 21

Who Here Has Had Cortisone Shots Or Injections? And Have You Seen The Recent Medical Study Results On The Damage It Causes?

Who Here Has Had Cortisone Shots Or Injections? And Have You Seen The Recent Medical Study Results On The Damage It Causes?

Reading an article today the the medical society put out about the cortisone shots and or injections people have had that actually cause more damage than good. I know I've had them before and complained to my then doctor whom I fired and he said it was all in my head! I guess it would appear I was correct! Luckily I got his pompous ass fired. Please google it and read up on it if you've ever had any cortisone shots or injections in any joints on your body.

Please follow the link to read the… read more

posted March 10, 2020 (edited)
A MySpondylitisTeam Member

To Susan Caldwell ....In ref to having a foley for 6 months after your surgery.....sometimes when they do back surgery you can have some nerve damage to the urinary tract or the bowels. Sometimes it… read more

posted April 7, 2020
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