Spondylitis

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9 medium

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

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A MySpondylitisTeam Member said:

After 35 years, I finally found a Dr who did the right tests and was able to diagnose my problem. I had been told I was an attention seeking child, my… read more

posted 11 days ago
7 medium

Navigating this sight...

Navigating this sight...

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier.
I start by modifying one of my earlier posts...

So far I have learned that:
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to… read more

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A MySpondylitisTeam Member said:

Thanks @A MySpondylitisTeam Member, I still have some problems with getting around this site. My memory is the pits. In fact I will be having my memory… read more

posted 13 days ago
5 medium

Treatments & Medication

Treatments & Medication

After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all xx

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A MySpondylitisTeam Member said:

I am on ibuprofen every 6 hours. If I don't l Gabapentin 100 mg 3 times a day. But my Allergies are so bad. I have to take Zzytec 10mg a day… read more

posted 7 months ago
4 medium

Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

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A MySpondylitisTeam Member said:

Sorry I haven't been on here lately. I just got a spinal cord stimulator implanted in my spine about a week and a half ago. They will not turn it on… read more

edited, originally posted 2 days ago
5 medium

Diagnosis

Diagnosis

How do doctors give diagnosis when so my things have the same symptoms ???? How can they tell what is what. Not all can be found with blood test.

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A MySpondylitisTeam Member said:

Your x-rays will help to diagnose. The problem is they have to do the X-ray a certain way. For a PA they need to point the cone from the top of your… read more

posted 7 months ago
1 medium

I forget things

I forget things

I seem to forget things alot of the time, can be talking and forget a word and ans be thrown then forget what I am talking about. Anyone else get this AS

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A MySpondylitisTeam Member said:

Bless you you just got to keep going as you said if we let pain beat us there is nothing left so chin up keep smiling and ramble as much as you like if… read more

posted about 1 month ago
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I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

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A MySpondylitisTeam Member said:

Unfortunately unless your situation is a life or death matter the ER is more concerned with keeping their licenses and not going to jail then treating… read more

posted 4 days ago
9 medium

Anyone tried Xeljanz XR?

Anyone tried Xeljanz XR?

I fought tooth and nail to get this medication because I refused to go down the road of injectables again. I was on Humira and Enbrel. I developed a nasty rash from Humira and Enbrel did absolutely nothing for me. I’ve been on the Xeljanz XR for about 2 weeks now and have noticed some improvements. Anyone else have success with this medication?

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A MySpondylitisTeam Member said:

I noticed the first few days I felt that way and had a headache. I started eating a snack or meal before taking it and I’ve been good since I did so.

posted 3 months ago
6 medium

Advice on what to do now. I'm in pain 24-7. After I had the last procedure of burning the nerves on left side I can't do anything.

Advice on what to do now. I'm in pain 24-7. After I had the last procedure of burning the nerves on left side I can't do anything.

I have myofascial pain, Cervical Spondylosis, Cervicogenic Headaches, chronic neck pain, degenerative cervical intervtebral disc. After the doctor did the last procedure I've been in so much pain, I've read that you are soppose to be awake I was put to sleep this time. Mind you I had the right side done and was awake. Now my arm goes numb when I stand. I'm not one to complain to others… read more

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A MySpondylitisTeam Member said:

I have always been put to sleep

posted 4 days ago
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