Spondylitis

Questions + Answers

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9 medium

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

posted over 1 year ago
A MySpondylitisTeam Member said:

Remember there’s always light

posted 13 days ago
5 medium

Treatments & Medication

After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all xx

posted 5 months ago
A MySpondylitisTeam Member said:

I am on ibuprofen every 6 hours. If I don't l Gabapentin 100 mg 3 times a day. But my Allergies are so bad. I have to take Zzytec 10mg a day… read more

posted 4 months ago
4 medium

Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

posted 11 months ago
A MySpondylitisTeam Member said:

I have incredible fatigue sometimes only up for an hour and back to bed. Also the brain fog and misuse of words is getting worse. It started with a… read more

posted 9 days ago
5 medium

Diagnosis

How do doctors give diagnosis when so my things have the same symptoms ???? How can they tell what is what. Not all can be found with blood test.

posted 7 months ago
A MySpondylitisTeam Member said:

Your x-rays will help to diagnose. The problem is they have to do the X-ray a certain way. For a PA they need to point the cone from the top of your… read more

posted 4 months ago
9 medium

I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

Also maybe finding it harder to come across words?

posted over 1 year ago
A MySpondylitisTeam Member said:

I have pretty much blamed my brain fog and memory loss on pain meds I take. the nerve ablation I just had done in L5 S1 facet joints took away a lot of… read more

edited, originally posted 4 days ago
1 medium

I forget things

I seem to forget things alot of the time, can be talking and forget a word and ans be thrown then forget what I am talking about. Anyone else get this AS

posted about 2 months ago
A MySpondylitisTeam Member said:

Lyrica made me a complete different person. Emotionless and a horrible memory! Gabapentin does they same but a little more bearable . The pain itself… read more

posted 5 days ago
0 medium

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

posted over 1 year ago
A MySpondylitisTeam Member said:

Norma, my CBD oil was max strenght, 200 mgs i believe. U HAVE to get the strongest u can find, then place the drops under your tongue for as long as u… read more

posted 3 months ago
9 medium

Anyone tried Xeljanz XR?

I fought tooth and nail to get this medication because I refused to go down the road of injectables again. I was on Humira and Enbrel. I developed a nasty rash from Humira and Enbrel did absolutely nothing for me. I’ve been on the Xeljanz XR for about 2 weeks now and have noticed some improvements. Anyone else have success with this medication?

posted about 1 month ago
A MySpondylitisTeam Member said:

I noticed the first few days I felt that way and had a headache. I started eating a snack or meal before taking it and I’ve been good since I did so.

posted 25 days ago
2 medium

Does anyone have difficulty wearing clothes?

My first question on getting out of bed is "what shall I wear that doesnt affect my back. Sounds stupid I know, but its a major problem for me? I like to be smart but cannot stick the pain of anything around my waist. I have to cut through the waist bands of skirts, trousers etc. Even wearing tights is unbearable.
Reading this back I know it sounds ridiculous, but it is true.

posted 5 months ago
A MySpondylitisTeam Member said:

I am sure your husbands friends will enjoy hearing all about your bra size lol x I was looking on my privacy settings for Facebook today and you can… read more

posted 11 days ago
1 medium

Can spondylitis in the spine cause neck pain and hand numbness?

Recently I've been having neck pain, which feels stiff and my hands sometimes feel a little numb or like I'm getting pins and needles. My arms are fine it's just my neck and hands. Could anyone please tell me if this is related to the spondylitis in my spine? Many thanks.

posted 7 months ago
A MySpondylitisTeam Member said:

You need to see a board certified rheumatologist. This site isn't for diagnoses.

posted about 1 month ago
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