Also maybe finding it harder to come across words?
I find myself explaining to whomever it is that I am speaking with, what AS does and why it takes me a minute to get the words out.
I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead of supporting my spine from the inside with screws which obviously didn't work, they went t the… read more
I truly am sorry for all the mistakes you have encountered from so called "Professional" physicians! We are like science experiments, specimens to them. I would bet, if anyone of them had to… read more
Yes, that cold and humidity plays a big part in that pain.
I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these problems of caught in the middle between pain management and ER?
Yeah like Friday evening I went out Friday 9 hours before I came to having hard jerking like a terretts patient or sy
Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.
I recently started cognitive speech therapy for this very reason. I’m hopeful that it’s going to help me find my words and be able to speak clearly.
The end result is they both hurt like hell and whether it is age or genetics, they can both be debilitating.
KAB what treatment and procedures are you receiving from your Pain 👨 doctor?
I seem to deal with this a lot. It can, at times, make exercise a little challenging. Also, pins and needles that come and go in different areas.
I don’t really see much literature on this. Or sites that list it as a symptom of AS.
Thanks 😊
I have noticed weakness in my limbs. It almost gives me the heebie jeebies. Sometimes I feel like I can't stand still because of it. If I stand still I more than likely have to sit. Grip strength… read more
I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier
I start by modifying one of my earlier posts...
So far I have learned that
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to stay updated on… read more
So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in particular, just figured the opposite off ADD had to… read more
Recently I've been having neck pain, which feels stiff and my hands sometimes feel a little numb or like I'm getting pins and needles. My arms are fine it's just my neck and hands. Could anyone please tell me if this is related to the spondylitis in my spine? Many thanks.
Have you gotten a spine doctors opinion and x-ray? Mine revealed jagged discs that were cutting off the nerves in my neck leading down my arms. Happens a lot. Eventually I had cervical disc surgery to… read more