Spondylitis

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9 medium

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

posted about 1 year ago
A MySpondylitisTeam Member said:

Yes it seems serious. And my Dr does listen. She tries she put on lyrica. But I yelled at my fiance and told him I may as well be dead and we were in… read more

posted 14 days ago
5 medium

Treatments & Medication

After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all xx

posted 3 months ago
A MySpondylitisTeam Member said:

I am on ibuprofen every 6 hours. If I don't l Gabapentin 100 mg 3 times a day. But my Allergies are so bad. I have to take Zzytec 10mg a day… read more

posted 2 months ago
5 medium

Diagnosis

How do doctors give diagnosis when so my things have the same symptoms ???? How can they tell what is what. Not all can be found with blood test.

posted 5 months ago
A MySpondylitisTeam Member said:

Your x-rays will help to diagnose. The problem is they have to do the X-ray a certain way. For a PA they need to point the cone from the top of your… read more

posted 2 months ago
9 medium

I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

Also maybe finding it harder to come across words?

posted about 1 year ago
A MySpondylitisTeam Member said:

Yes

posted 21 days ago
0 medium

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

posted about 1 year ago
A MySpondylitisTeam Member said:

Norma, my CBD oil was max strenght, 200 mgs i believe. U HAVE to get the strongest u can find, then place the drops under your tongue for as long as u… read more

posted 16 days ago
5 medium

Pain on middle of back

I am in pain in middle of back most days gets me down and joints. Can this be the AS. Seeing a neurologist next month about this as may be neuropathic pain. Just fed up with it not knowing what is.?.
Hope you are all well xx

posted 5 months ago
A MySpondylitisTeam Member said:

I had chicken pox and I have seen shingles. It is such a horribp thing to see my oldest brother couldn't stand a sheet to touch him. So I got the… read more

posted 2 months ago
1 medium

Can spondylitis in the spine cause neck pain and hand numbness?

Recently I've been having neck pain, which feels stiff and my hands sometimes feel a little numb or like I'm getting pins and needles. My arms are fine it's just my neck and hands. Could anyone please tell me if this is related to the spondylitis in my spine? Many thanks.

posted 5 months ago
A MySpondylitisTeam Member said:

I also get the giddy sensations too Gwen so do empathise. Mine is also if I look up or down suddenly too for eg if out and a sudden unexpected loud… read more

posted 20 days ago
4 medium

Cbd oil to control pain?

I was wondering if anyone takes cbd oil for their pain and does it help.

posted 11 months ago
A MySpondylitisTeam Member said:

Where do you get yours from? Who do you order it from? There are so many companies. How long did it take to work?

posted 7 months ago
5 medium

Has anyone had trouble losing weight after being put on Prednisone?

I was only diagnosed about a year and a half ago. My doctor wanted me to try Prednisone for 2 weeks tapering me off it in those two weeks to confirm I have AS. I gained 30 pounds in just two short weeks and now am really struggling to get it off. It has also made my body ache more since I am carrying the extra weight. Does anyone have any suggestions on what I could do? Thank you for the help!

posted about 1 year ago
A MySpondylitisTeam Member said:

Thyroid

posted 2 months ago
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