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Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

A MySpondylitisTeam Member said:

I went to the ER with the worst pain in my life, I had a sciatica nerve pinched and was an 11 !! At 3am my wife found me on the floor, yelling in pain,… read more

posted 2 days ago

Navigating This Sight...

Navigating This Sight...

I thought it was just me, but I'm learning most of us have trouble with communicating on this sight, so I am starting this thread so we can all add something so more of us will find this easier.
I start by modifying one of my earlier posts...

So far I have learned that:
*most of us find navigation difficult
*put an at symbol (@) before a members name so they are sure to see it, or two names w/@ to draw every specific person you are trying to reach.
*I can add you to my team to… read more

A MySpondylitisTeam Member said:

So... A big button for ADDING people to our teams lead me to wonder if we can delete them once add. I have not been trying to delete anyone in… read more

posted 10 months ago

Does Anyone Else Have Trouble Controlling Your Body Temperature? Sometimes I Am Freezing, Other Times Burning Up.

Does Anyone Else Have Trouble Controlling Your Body Temperature? Sometimes I Am Freezing, Other Times Burning Up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

A MySpondylitisTeam Member said:

I agree with Ms. @A MySpondylitisTeam Member
Slowing the blood flow will do this as I sometimes have the same when I never used too. In any case it… read more

posted about 1 month ago

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

A MySpondylitisTeam Member said:

Sometimes the doctor doesn't even call back.

posted 3 months ago

Manufacturer Coupons For Meds

Manufacturer Coupons For Meds

Did you know that if you get online and look up your meds,you can often get manufacturer coupon agreements with walmart,kroger,various pharmacys?I get a deal with Kroger pharmacy thats just 13$ for 60 pills.All you do is Google Manufacturer and (Your med) coupons.Find best deal and print.,Take to pharmacy

A MySpondylitisTeam Member said:

Wow....sounds like a headache but maybe worth it if it helps with cost. I have a couple of scripts that are over $300 cash price but $43 with… read more

posted 5 months ago

Wondering If Anyone Else Has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

Wondering If Anyone Else Has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

CRPS/RSD is a condition that flares when your emotions are high. Meaning stress levels and/or emotional turmoil. It causes feelings of burning, tearing, pin needles and it is not caused by inflammation. It is a disease of the sympathetic nervous system.

I didn't even know this existed until it attacked me, 7 years ago. I had trigger release on all 5 fingers of my right hand. At the time, I was dealing… read more

A MySpondylitisTeam Member said:

Hi Wendy8754,
Thanks for sendin gme a hug for my post. Hope you are ok and doing well and sending you hugs back and wishes for good days for you.

posted about 1 month ago

Does Anyone Have Difficulties Conversing?

Does Anyone Have Difficulties Conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member
Very well spoken. I see already that you are a positive, intelligent woman who is very thoughtful both of other's and… read more

posted 3 months ago

Who Here Has Had Cortisone Shots Or Injections? And Have You Seen The Recent Medical Study Results On The Damage It Causes?

Who Here Has Had Cortisone Shots Or Injections? And Have You Seen The Recent Medical Study Results On The Damage It Causes?

Reading an article today the the medical society put out about the cortisone shots and or injections people have had that actually cause more damage than good. I know I've had them before and complained to my then doctor whom I fired and he said it was all in my head! I guess it would appear I was correct! Luckily I got his pompous ass fired. Please google it and read up on it if you've ever… read more

A MySpondylitisTeam Member said:

Yes. AnnSable. I agree with you 100%. I believe all that crap caused my BACK and bones to be worse than they were. Because I the doctors said that there… read more

posted 22 days ago
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