Spondylitis

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9 medium

I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

Also maybe finding it harder to come across words?

posted about 1 year ago
A MySpondylitisTeam Member said:

Yes

posted 19 days ago
9 medium

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

posted about 1 year ago
A MySpondylitisTeam Member said:

Yes it seems serious. And my Dr does listen. She tries she put on lyrica. But I yelled at my fiance and told him I may as well be dead and we were in… read more

posted 12 days ago
0 medium

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

posted about 1 year ago
A MySpondylitisTeam Member said:

Norma, my CBD oil was max strenght, 200 mgs i believe. U HAVE to get the strongest u can find, then place the drops under your tongue for as long as u… read more

posted 13 days ago
8 medium

Neurontin

I was prescribed Gabapentin, was ok taking one pill a night, but when I took one at night and one in the morning I got angry, cried a lot and was thinking suicidal thoughts. So I called my pcp up and told him. He still wanted me to take one at night! I refused.it wasnt helping me anyway. Should I try it again?

posted 9 months ago
A MySpondylitisTeam Member said:

I took them for a little while maybe two weeks .increased my depression.i was done with those.i do not take any pain meds accept aleve.i have become too… read more

posted 17 days ago
4 medium

Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

posted 9 months ago
A MySpondylitisTeam Member said:

How do you know. That because that sounds horrible in fact this site freaked me out. I had to go off forva whilei

posted 12 days ago
9 medium

How do you answer a question to another, friend, spouse, reletive, etc.? about AS

I don't know what to say to them with out getting into a fight about it. My family always starts up an argument about what I try to say. Then I end up running to my room crying.

posted 4 months ago
A MySpondylitisTeam Member said:

Glad to be of help Katy, I hope things get easier for you, I know it's horrible to see your children in pain and not be able to help them or they won't… read more

posted 3 days ago
1 medium

Can spondylitis in the spine cause neck pain and hand numbness?

Recently I've been having neck pain, which feels stiff and my hands sometimes feel a little numb or like I'm getting pins and needles. My arms are fine it's just my neck and hands. Could anyone please tell me if this is related to the spondylitis in my spine? Many thanks.

posted 5 months ago
A MySpondylitisTeam Member said:

I also get the giddy sensations too Gwen so do empathise. Mine is also if I look up or down suddenly too for eg if out and a sudden unexpected loud… read more

posted 17 days ago
5 medium

Has anyone had any difficulties with giving themselves an injection?

I was on Humira for only a short time. I did awesome with the first 3 shots, but when it came to the fourth shot I started getting nervous and couldn't press the button. I know it is an amazing drug because it worked right away for me but I just kept getting this feeling that was telling me that it wasn't okay for me to take it. So I accidently pressed the button, wasn't ready and now I am off it because of having anxiety about it. I would love… read more

posted about 1 year ago
A MySpondylitisTeam Member said:

Hi JoAnn,Sorry for your migraine I have had them they are debilitating...I don't remember what it's like not to have fatigue I also have AS FIBRO CFS… read more

posted 10 months ago
0 medium

What pain meds work the best for this condition

posted about 1 year ago
A MySpondylitisTeam Member said:

Methotrexate, oycodone and morphine have been at the center of my life for some years now. I hate the side effects of Mx but the decrease in pain is… read more

posted 1 day ago
5 medium

Treatments & Medication

After years of pain I was diagnosed with A.S. 5yrs ago. Trying to get something to relieve the pain. When I read so many updates and I think thats me. Then go to their story & treatment only to find nothing there. Could I kindly ask all to look at their profile and take 5mins to put what med you use or have used. There might be something that would help. Thank you. Hugs to all xx

posted 3 months ago
A MySpondylitisTeam Member said:

I am on ibuprofen every 6 hours. If I don't l Gabapentin 100 mg 3 times a day. But my Allergies are so bad. I have to take Zzytec 10mg a day… read more

posted 2 months ago
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