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Spondylitis

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I Have As And My Symptoms Seem To Be Getting Worse My Question Is Does Anyone Else Experience Worsening Memory As Time Goes On?

I Have As And My Symptoms Seem To Be Getting Worse My Question Is Does Anyone Else Experience Worsening Memory As Time Goes On?

Also maybe finding it harder to come across words?

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member, I am sorry I don't know about the numbness related to spondylitis
I would have a chat with your Dr. about this. 🌺

One year ago, my hand went asleep, and is still… read more

posted 9 days ago

Does Colder Weather Affect Your Spondylitis Symptoms? What Helps?

Does Colder Weather Affect Your Spondylitis Symptoms? What Helps?

A MySpondylitisTeam Member said:

Changes in the weather doesn't really bother me & I do have a Titanium spine. I broke my back about 8 years ago & the thing the put on my spine looks like a ladder about 18" long. All I know about the… read more

posted 3 months ago

What Foods Do You Eat To Help Manage Your Condition? Which Ones Do You Avoid?

What Foods Do You Eat To Help Manage Your Condition? Which Ones Do You Avoid?

A MySpondylitisTeam Member said:

Nightshade include tomatoes, peppers, eggplant and potatoes. Sounds like you are already off to a great start!

posted about 11 hours ago

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead of supporting my spine from the inside with screws which obviously didn't work, they went t the… read more

A MySpondylitisTeam Member said:

When I went to the spinal clinic, the surgeon, of course, insisted on surgery. I explained to him that currently that isn't an option. My brother had spinal fusion surgery and the constant pain ruined… read more

posted 9 months ago

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these problems of caught in the middle between pain management and ER?

A MySpondylitisTeam Member said:

I look at it as people do not know enough about this disease and how painful it is. This disease needs to be educated more than what is being taught and spoken about.

posted about 1 month ago

Bit Embarrassing, But...

Bit Embarrassing, But...

Is anyone bowel incontinent? I have started leaking out poo and I don't know it's there until I go to the loo and I, well, smell it! My GP is treating me for severe impacting, so I'm on Laxido, was on Lactulose but it didn't do the trick 😉. But, since taking it (started last Friday) twice daily, from Monday this week, several times a day, there is always some poo (and I mean several wipes worth, we're going through loo roll at a rate of knots 🤣) sometimes quite a bit on my underwear and… read more

A MySpondylitisTeam Member said:

Yep, I'm totally with you @A MySpondylitisTeam Member. I used to go to Sunday school as a child (Methodist), then as an 11 year old, decided that I wanted to be confirmed as C of E, I loved the… read more

posted almost 3 years ago

I Have These Strange Red Dots That Have Been Coming Up On My Skin, Anyone Have Any Idea What They Could Be

I Have These Strange Red Dots That Have Been Coming Up On My Skin, Anyone Have Any Idea What They Could Be

They don't itch or hurt and disappear after a while but then appear again somewhere else. I have looked on Google but nothing seems to match. Some of them are quite large and others not quite as big as a frozen garden pea. I am worried in case it's a sign of something wrong with me, more than that I have already. Any ideas welcome?

A MySpondylitisTeam Member said:

Will this winter ever end I've had a sinus infection for over two month finally went too er too get antibiotics I'm tired cold the beast is kicking my butt I'm just sick of the pandemic and just… read more

posted about 1 year ago

Does Anyone Get An Electric Shock Like Pain Under Their Foot?

Does Anyone Get An Electric Shock Like Pain Under Their Foot?

I can be sitting down and I get this strange pain in the middle of my foot underneath. I get a similar pain in my wrist sometimes too but am not sure what is causing it.

A MySpondylitisTeam Member said:

I know what you're talking about. Mine started in the top of my mid thigh. It turned I into a burning pain that sent me to the ER. I was diagnosed with a pinched nerve in the pelvis & given an RX for… read more

posted 7 months ago

Does Anyone Have Difficulties Conversing?

Does Anyone Have Difficulties Conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

A MySpondylitisTeam Member said:

Yes! That's EXACTLY how I am! I feel like an idiot sometimes and like my colleagues wonder what is happening to me. It's beyond frustrating!

posted 25 days ago
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