Spondylitis

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9 medium

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

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A MySpondylitisTeam Member said:

After 35 years, I finally found a Dr who did the right tests and was able to diagnose my problem. I had been told I was an attention seeking child, my… read more

posted 11 days ago
4 medium

Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

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A MySpondylitisTeam Member said:

Sorry I haven't been on here lately. I just got a spinal cord stimulator implanted in my spine about a week and a half ago. They will not turn it on… read more

edited, originally posted 2 days ago
0 medium

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

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A MySpondylitisTeam Member said:

Unfortunately unless your situation is a life or death matter the ER is more concerned with keeping their licenses and not going to jail then treating… read more

posted 4 days ago
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What pain meds work the best for this condition

What pain meds work the best for this condition

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A MySpondylitisTeam Member said:

Hi Mark, would you tell me exactly what kind of CBD and where I could buy it? It’s legal in FL and people say it works the best. I’m tired of Oxy and… read more

posted about 3 hours ago
1 medium

Can spondylitis in the spine cause neck pain and hand numbness?

Can spondylitis in the spine cause neck pain and hand numbness?

Recently I've been having neck pain, which feels stiff and my hands sometimes feel a little numb or like I'm getting pins and needles. My arms are fine it's just my neck and hands. Could anyone please tell me if this is related to the spondylitis in my spine? Many thanks.

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A MySpondylitisTeam Member said:

You need to see a board certified rheumatologist. This site isn't for diagnoses.

posted 3 months ago
8 medium

Neurontin

Neurontin

I was prescribed Gabapentin, was ok taking one pill a night, but when I took one at night and one in the morning I got angry, cried a lot and was thinking suicidal thoughts. So I called my pcp up and told him. He still wanted me to take one at night! I refused.it wasnt helping me anyway. Should I try it again?

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A MySpondylitisTeam Member said:

Although I got relief from Neurontin (12 daily, dose) I had extreme swelling from fluid retention. I was switched to Gabapentin with same problem but… read more

posted about 1 month ago
1 medium

I forget things

I forget things

I seem to forget things alot of the time, can be talking and forget a word and ans be thrown then forget what I am talking about. Anyone else get this AS

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A MySpondylitisTeam Member said:

Bless you you just got to keep going as you said if we let pain beat us there is nothing left so chin up keep smiling and ramble as much as you like if… read more

posted about 1 month ago
7 medium

Pain relief

Pain relief

Unconventional things I have done/do to relieve pain, and go!

Lay on floor on my back with two tennis balls taped together to support my neck or help stretch my neck.

Lay on bed on large medication bottle in mid back to aid stretching, deeper releif.

Next?

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A MySpondylitisTeam Member said:

Awesome for you!
Keep us posted from month to month if you would. I would really like to know if it works.
Thanks Craig
Congratulations!

posted 16 days ago
9 medium

How do you answer a question to another, friend, spouse, reletive, etc.? about AS

How do you answer a question to another, friend, spouse, reletive, etc.? about AS

I don't know what to say to them with out getting into a fight about it. My family always starts up an argument about what I try to say. Then I end up running to my room crying.

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A MySpondylitisTeam Member said:

Glad to be of help Katy, I hope things get easier for you, I know it's horrible to see your children in pain and not be able to help them or they won't… read more

posted 4 months ago
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