Connect with others who understand.

sign up log in
About MySpondylitisTeam

Spondylitis

Questions + Answers

Don't see your question? ask question
View:

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

A MySpondylitisTeam Member said:

I went to the ER with the worst pain in my life, I had a sciatica nerve pinched and was an 11 !! At 3am my wife found me on the floor, yelling in pain,… read more

posted 2 days ago

Bit Embarrassing, But...

Bit Embarrassing, But...

Is anyone bowel incontinent? I have started leaking out poo and I don't know it's there until I go to the loo and I, well, smell it! My GP is treating me for severe impacting, so I'm on Laxido, was on Lactulose but it didn't do the trick . But, since taking it (started last Friday) twice daily, from Monday this week, several times a day, there is always some poo (and I mean several wipes worth, we're going through loo roll at a rate of knots ) sometimes quite a bit on my… read more

A MySpondylitisTeam Member said:

Yep, I'm totally with you @A MySpondylitisTeam Member. I used to go to Sunday school as a child (Methodist), then as an 11 year old, decided that I… read more

posted 10 months ago

Does Anyone Have Difficulties Conversing?

Does Anyone Have Difficulties Conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member
Very well spoken. I see already that you are a positive, intelligent woman who is very thoughtful both of other's and… read more

posted 3 months ago

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

A MySpondylitisTeam Member said:

Sometimes the doctor doesn't even call back.

posted 3 months ago

Does Anyone Get An Electric Shock Like Pain Under Their Foot?

Does Anyone Get An Electric Shock Like Pain Under Their Foot?

I can be sitting down and I get this strange pain in the middle of my foot underneath. I get a similar pain in my wrist sometimes too but am not sure what is causing it.

A MySpondylitisTeam Member said:

Teri Hollingsworth
I know exactly what you mean about the cats eating their food too fast or too much and then are sick, it happens often here. There is… read more

posted about 1 month ago

Exercise: Yes Or No?

Exercise: Yes Or No?

Do you find exercise helps with your illness'? I have PsA, Fibromyalgia and Severe Asthma- just to name a few. My husband thinks I need to start exercising, but I disagree. Walking takes a toll on me. Moving around hurts, even more. I don't think he understands the depth of my conditions. When a doctor (pain management) says they are sorry and there is nothing they can do for you, you would think....it's bad, really bad. I try to walk at least 500 steps daily. Some days are better than others.… read more

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member yup, I agree. Larry came down here from WI(he drove)and spent 3rd thru 7th here left evening of 8th to drive back home. I… read more

posted 5 months ago

What Pain Meds Work The Best For This Condition

What Pain Meds Work The Best For This Condition

A MySpondylitisTeam Member said:

Chestler,
I get pain, stiffness and headaches and take anti inflammatory painkillers cos they are the only ones that work for the pain when it's really… read more

posted about 2 months ago

Wondering If Anyone Else Has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

Wondering If Anyone Else Has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

CRPS/RSD is a condition that flares when your emotions are high. Meaning stress levels and/or emotional turmoil. It causes feelings of burning, tearing, pin needles and it is not caused by inflammation. It is a disease of the sympathetic nervous system.

I didn't even know this existed until it attacked me, 7 years ago. I had trigger release on all 5 fingers of my right hand. At the time, I was dealing… read more

A MySpondylitisTeam Member said:

Hi Wendy8754,
Thanks for sendin gme a hug for my post. Hope you are ok and doing well and sending you hugs back and wishes for good days for you.

posted about 1 month ago
Continue with Facebook
Sign up with your email
Already a Member? Log in