Spondylitis

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I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

Also maybe finding it harder to come across words?

A MySpondylitisTeam Member said:

I would love to eat salmon, halibut or did everyday, however it is so expensive. Was in hospital for 3 weeks and had salmon everynight. Felt so much… read more

posted 28 days ago

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

A MySpondylitisTeam Member said:

Thank you for your input. Hoping you have a painless day. Hugs...

posted 26 days ago

Bit embarrassing, but...

Bit embarrassing, but...

Is anyone bowel incontinent? I have started leaking out poo and I don't know it's there until I go to the loo and I, well, smell it! My GP is treating me for severe impacting, so I'm on Laxido, was on Lactulose but it didn't do the trick . But, since taking it (started last Friday) twice daily, from Monday this week, several times a day, there is always some poo (and I mean several wipes worth, we're going through loo roll at a rate of knots ) sometimes quite a bit on my… read more

A MySpondylitisTeam Member said:

Yep, I'm totally with you @A MySpondylitisTeam Member. I used to go to Sunday school as a child (Methodist), then as an 11 year old, decided that I… read more

posted 5 months ago

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

A MySpondylitisTeam Member said:

I am a strong advocate for us pain patients. Check out the U.S. Pain Foundation.

posted 25 days ago

Exercise: Yes or No?

Exercise: Yes or No?

Do you find exercise helps with your illness'? I have PsA, Fibromyalgia and Severe Asthma- just to name a few. My husband thinks I need to start exercising, but I disagree. Walking takes a toll on me. Moving around hurts, even more. I don't think he understands the depth of my conditions. When a doctor (pain management) says they are sorry and there is nothing they can do for you, you would think....it's bad, really bad. I try to walk at least 500 steps daily. Some days are better than others.… read more

A MySpondylitisTeam Member said:

I agree!

posted about 5 hours ago

Do you ever get a rash? One that resembles shingles- red dots, raised, but feels like raw nerves exposed?

Do you ever get a rash? One that resembles shingles- red dots, raised, but feels like raw nerves exposed?

I get this rash every so often. We, including multiple doctors, thought it was was the shingles, but I'm pretty positive the shingles don't keep recurring. I always get them in the same place. Anyone experience this?

A MySpondylitisTeam Member said:

posted 27 days ago

What pain meds work the best for this condition

What pain meds work the best for this condition

A MySpondylitisTeam Member said:

Kayz99,
Uvetis affects a majority (myself included) of AS people. It can be very painful and not addressed by an Opthamologist and treatment (steroid… read more

posted 6 months ago

Neurontin

Neurontin

I was prescribed Gabapentin, was ok taking one pill a night, but when I took one at night and one in the morning I got angry, cried a lot and was thinking suicidal thoughts. So I called my pcp up and told him. He still wanted me to take one at night! I refused.it wasnt helping me anyway. Should I try it again?

A MySpondylitisTeam Member said:

DEFINETLY NO

posted 23 days ago

I forget things

I forget things

I seem to forget things alot of the time, can be talking and forget a word and ans be thrown then forget what I am talking about. Anyone else get this AS

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member

I knew what you meant dear you are right, and I prefer the same. I'm not easily offended by what people say or think, to… read more

posted 7 months ago
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