Spondylitis

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9 medium

I have As and my symptoms seem to be getting worse my question is does anyone else experience worsening memory as time goes on?

Also maybe finding it harder to come across words?

posted over 1 year ago
A MySpondylitisTeam Member said:

I have pretty much blamed my brain fog and memory loss on pain meds I take. the nerve ablation I just had done in L5 S1 facet joints took away a lot of… read more

edited, originally posted 4 days ago
9 medium

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

posted over 1 year ago
A MySpondylitisTeam Member said:

Remember there’s always light

posted 13 days ago
4 medium

Does anyone have so much fatigue and brain fog that they feel drunk and mix up the vocabulary? Is this an AS thi g?

posted 11 months ago
A MySpondylitisTeam Member said:

I have incredible fatigue sometimes only up for an hour and back to bed. Also the brain fog and misuse of words is getting worse. It started with a… read more

posted 9 days ago
0 medium

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

posted over 1 year ago
A MySpondylitisTeam Member said:

Norma, my CBD oil was max strenght, 200 mgs i believe. U HAVE to get the strongest u can find, then place the drops under your tongue for as long as u… read more

posted 3 months ago
1 medium

Can spondylitis in the spine cause neck pain and hand numbness?

Recently I've been having neck pain, which feels stiff and my hands sometimes feel a little numb or like I'm getting pins and needles. My arms are fine it's just my neck and hands. Could anyone please tell me if this is related to the spondylitis in my spine? Many thanks.

posted 7 months ago
A MySpondylitisTeam Member said:

You need to see a board certified rheumatologist. This site isn't for diagnoses.

posted about 1 month ago
8 medium

Neurontin

I was prescribed Gabapentin, was ok taking one pill a night, but when I took one at night and one in the morning I got angry, cried a lot and was thinking suicidal thoughts. So I called my pcp up and told him. He still wanted me to take one at night! I refused.it wasnt helping me anyway. Should I try it again?

posted 11 months ago
A MySpondylitisTeam Member said:

Gabapentin do seem to be very helpful for some people, my husband finds they help him a lot but I suppose like all meds they don't suit everyone.

posted 28 days ago
0 medium

What pain meds work the best for this condition

posted over 1 year ago
A MySpondylitisTeam Member said:

I am on tramadol and yesterday the doc said I can up the meds to two in the morning. That is 2 tramadol and 1 Panadol osteo. I was told using the… read more

posted about 1 month ago
9 medium

How do you answer a question to another, friend, spouse, reletive, etc.? about AS

I don't know what to say to them with out getting into a fight about it. My family always starts up an argument about what I try to say. Then I end up running to my room crying.

posted 6 months ago
A MySpondylitisTeam Member said:

Glad to be of help Katy, I hope things get easier for you, I know it's horrible to see your children in pain and not be able to help them or they won't… read more

posted 2 months ago
1 medium

I forget things

I seem to forget things alot of the time, can be talking and forget a word and ans be thrown then forget what I am talking about. Anyone else get this AS

posted about 2 months ago
A MySpondylitisTeam Member said:

Lyrica made me a complete different person. Emotionless and a horrible memory! Gabapentin does they same but a little more bearable . The pain itself… read more

posted 5 days ago
5 medium

Has anyone had any difficulties with giving themselves an injection?

I was on Humira for only a short time. I did awesome with the first 3 shots, but when it came to the fourth shot I started getting nervous and couldn't press the button. I know it is an amazing drug because it worked right away for me but I just kept getting this feeling that was telling me that it wasn't okay for me to take it. So I accidently pressed the button, wasn't ready and now I am off it because of having anxiety about it. I would love… read more

posted about 1 year ago
A MySpondylitisTeam Member said:

In answer to the question about giving yourself injections, it is just practice and you will get used to doing it. My granddaughter is type 1 diabetic… read more

posted 18 days ago
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