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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Colder Weather Affect Your Spondylitis Symptoms? What Helps?

Does Colder Weather Affect Your Spondylitis Symptoms? What Helps?

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A MySpondylitisTeam Member

Changes in the weather doesn't really bother me & I do have a Titanium spine. I broke my back about 8 years ago & the thing the put on my spine looks like a ladder about 18" long. All I know about the… read more

What Foods Do You Eat To Help Manage Your Condition? Which Ones Do You Avoid?

What Foods Do You Eat To Help Manage Your Condition? Which Ones Do You Avoid?

Last of 170 replies sign up to view previous answers
A MySpondylitisTeam Member

@A MySpondylitisTeam Member, I have found water therapy to be so helpful, feel free 🥰
@A MySpondylitisTeam Member

What’s Your Best Tip For Traveling?

What’s Your Best Tip For Traveling?

Last of 113 replies sign up to view previous answers
A MySpondylitisTeam Member

I never had an issue with them making me hungry but every body is different. Some people get the munchies taking them. Most medicines that make you hungry (like solu-medrol) make me feel nauseous but… read more

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

Has A "professional" Eg, Dr. Surgeon, Specialist Ever Doubted Your Pain? Looked At Yu Like You Are Crazy Or A Drug Seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead of supporting my spine from the inside with screws which obviously didn't work, they went t the… read more

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A MySpondylitisTeam Member

When I went to the spinal clinic, the surgeon, of course, insisted on surgery. I explained to him that currently that isn't an option. My brother had spinal fusion surgery and the constant pain ruined… read more

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these problems of caught in the middle between pain management and ER?

A MySpondylitisTeam Member

I got an appt with a pain management im on lorazepam so I have to play it my ear n c if she’s willing to treat me im sure they will suggest injection but only if they put me in a twiggy sleep they… read more

Does Anyone Have Difficulties Conversing?

Does Anyone Have Difficulties Conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

A MySpondylitisTeam Member

Definitely gabapentin and morphine

Bit Embarrassing, But...

Bit Embarrassing, But...

Is anyone bowel incontinent? I have started leaking out poo and I don't know it's there until I go to the loo and I, well, smell it! My GP is treating me for severe impacting, so I'm on Laxido, was on Lactulose but it didn't do the trick 😉. But, since taking it (started last Friday) twice daily, from Monday this week, several times a day, there is always some poo (and I mean several wipes worth, we're going through loo roll at a rate of knots 🤣) sometimes quite a bit on my underwear and… read more

A MySpondylitisTeam Member

Yep, I'm totally with you @A MySpondylitisTeam Member. I used to go to Sunday school as a child (Methodist), then as an 11 year old, decided that I wanted to be confirmed as C of E, I loved the… read more

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