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Does Anyone Else Feel Like Your Just Not Listened Too?
A MySpondylitisTeam Member asked a question 💭

I am struggling, my pain is moving around my body … I took a fall in Nov shortly after knee injections… had my knee drained and mri - told wear sleeve … 3 ER trips later … drained my knee again , wicked bladder infection, pain on left side - no answers from Ct - saw my PCP - 2x - she gave a steroid pack , took about half them FU on bladder - complaining about my pain in neck / left side - waiting on a mri ( denied in August - did a round of pt) she gave me 10days of pain meds - ( which I have… read more

posted March 14
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A MySpondylitisTeam Member

YES! PC did blood tests & said I had no inflammation. Hmmm, funny, the MRI clearly states end plate of cervical spine shows active inflammation, causing pain. I was told yesterday, by my pain mngmnt Dr. that they just don't know what to do with me. Offered another nerve block( in which the first 2, gave me NO relief) then an ablation occurred. Again, NO relief. Went in crying because I was in sooo much pain and she upped dose of pain meds and an emergency epidural. 6 weeks later, here I am, in the same position I was a yr and a half ago, procedure after procedure, and still no mobility in my neck, severe pain all day long and am back to square 1. My heart goes out to you. Do as much research as you can, because you know your body and what you are going through, more than anyone else. I think the key, is finding the right Dr. ( which I have been unable to do so far) who has experience in ALL of the symptoms you are going through. Hang in there! 🙏🙏🙏

posted March 15

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