Has Anyone With AS On Her Done The Remicaid Infusions? If So Did It Help With Your Pain? | MySpondylitisTeam

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Has Anyone With AS On Her Done The Remicaid Infusions? If So Did It Help With Your Pain?
A MySpondylitisTeam Member asked a question 💭
posted February 3
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A MySpondylitisTeam Member

Thank you so much. Appreciate your feedback. I will give it a shot for sure.

posted February 6
A MySpondylitisTeam Member

I am on Remicade and have been for years. I started on the lowest dose every 8 weeks years ago and I am now on the highest dose every 4 weeks. I do find that it takes about 4 days to feel better and it lasts almost the whole 4 weeks. Please give it time to work before you give up.

posted February 6
A MySpondylitisTeam Member

I started/am getting Remicade infusions currently, but I will be pushing my RA Doc to go a different route next week at my "follow-up" appointment. Since my initial infusion it has only offered relief for 5-7 days max after a 3-5 day wait for it to "kick-in" This last was my 5th infusion... I was left to suffer for a month + between my 4th & 5th Infusions and it was HELL!! Initial 2 infusions were administered 2 weeks apart; my 3rd infusion 6wks after the initial dose by the 4th infusion I was upped to the max dose and transitioned to the 2 month "maintenance" schedule... again though it only offered relief for 5-7 days and I was suffering by my 2wk follow up appointment... we discussed changing things up at that time but he prescribed something else for my IBD and wanted to see how it helped so held off on making any changes during that appointment... Unfortunately, I was left to suffer for roughly 6 weeks leading up to my most recent 5th infusion and I feel that lapse in time without any "treatment" set me right back to square one... I'm a week from that 5th infusion currently and haven't felt the level of relief I had been experiencing from any of my previous infusions... I just don't see how I can continue with the infusions moving forward. In order to not revert back to square one between each infusion I'd have to get them every other week at minimum which defeats the purpose all in all.

posted February 6

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