Tailbone Pain And AS | MySpondylitisTeam

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Tailbone Pain And AS
A MySpondylitisTeam Member asked a question 💭

Hi there,

Recently diagnosed with AS after 15 years of chronic back pain including tailbone pain. I wondered if anyone with AS has experienced chronic tailbone pain? Did your treatment alleviate your pain or help with mobility? Thanks!A

posted June 17, 2023
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A MySpondylitisTeam Member

Yes, I've had tailbone pain (SI Joints) for the last 3 years. I am currently on Enbrel, Sulfsalazine, & Arava along with pain meds & muscle relaxers. It is about 50 - 60% effective. When the pain gets really bad, I get steroid injections in my SI Joints. Most of the time they help for up to six months. Sometimes six weeks.

posted June 18, 2023 (edited)
A MySpondylitisTeam Member

Yes I do but I had fallen and broke my tailbone 3 yrs ago and that’s what started this terrible never ending pain. The tailbone always hurts. I’ve tried every injection you can think of and nerve ablation, PT, you name it and no relief. But just because all those failed for me doesn’t mean it won’t work for others. Good luck

posted June 21, 2023
A MySpondylitisTeam Member

Thanks so much for sharing and I’m so sorry for your pain.

posted June 19, 2023
A MySpondylitisTeam Member

I have horrible tailbone pain from a fall 2mths ago! It's finally subsiding!! Took forever!!! I'm on Cimzia. Helps me immensely:) Enjoy your Sunday.😊

posted June 18, 2023
A MySpondylitisTeam Member

Same here. Night time pain is and to deal with, how you handle it at night ? Prayers are with you

posted June 18, 2023

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