What Is Something Positive That Has Happened Because Of Your Illness? | MySpondylitisTeam

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What Is Something Positive That Has Happened Because Of Your Illness?
A MySpondylitisTeam Member asked a question 💭

I went on disability and because of that I was able to homeschool my youngest, we were able to spend a lot of time together. I couldn't do a lot but he was one who didn't like crowds or going to many places so it worked out. I've discovered how the fascia is so important to our health and movement is needed to help the fascia flexible. I've discovered myofascial release massages and breathing exercises, Qigong and counseling to help me be kind to myself and accept my illness so I don't waste… read more

posted November 20, 2022
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A MySpondylitisTeam Member

Positive, positive...let's see... I can cuss better. Lol. I use to avoid it, but now I at time do not hold back when really really really frustrating stupid people need to know I am unhappy. I used to hold my own politely at 6.2 over 300 pound large frame. Now, I an 5.10 flabby and they look at me like who are you.
Then my okla. southerness kicks in and the younger generations quickly leave the room. It's great. Lol.
There is lots of jokes in the family... all fun aside..
I would say, positive would be those generations after me had to grow up. Really quick. I was not there to solve problems anymore. 2 were doing good. 2 needed to be dropped kicked out the nest.
I needed to learn to live differently.
Best to you

posted November 21, 2022
A MySpondylitisTeam Member

Best thing is I don't have to go to work, bad part it was my electrical engineering company that went by the waste side I was a workaholic built from the ground up, lost my house, my wife and just because of medical exam. This AxSpa was good to me, homeless and on social security disability.

posted December 23, 2022
A MySpondylitisTeam Member

I've heard that the best way to get healthy is to get a chronic disease and take it seriously. This has been true for me! I've lost 40 pounds since my diagnosis, but I wasn't even trying to lose weight. It's from medicating to reduce my symptoms, plus a comprehensive elimination diet which guided me to stop eating nightshades. I sleep so much better now too!

posted November 21, 2022
A MySpondylitisTeam Member

I have learned to trust myself again. After years of basically being called a hypochondriac and finally being diagnosed I kind of feel like, “See told ya so!”
Also, I am kinder to myself when I can’t be “normal”. Being 44 in a body that feels much older is very hard. I allow myself to acknowledge my disease and stop fighting and pushing to prove I’m not lazy. I only hurt myself and the only thing I proved was that I’m a slow learner! 😂🤣😂🤭
I’m still trying to deal with people and their judgment but it is getting easier!
Another positive is my sweet hubby. He is very understanding and does so much to help with chores and our 16 yo son. Very very thankful for him. ❤️❤️❤️

posted November 21, 2022 (edited)

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