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How Do You Manage The More Difficult Days Of Living With Spondylitis?

MySpondylitisTeam asked a question πŸ’­
San Francisco, CA
October 26, 2022
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A MySpondylitisTeam Member

I never give up,never will I surrender to this pain. When my days are full of pain my prayers are deeper. I have 4 dog's 3cats, 2 goat's 6 mini pigs plus ducks and chickens on top of that I care for my 84 yr old mother. I will not give up or bend to this disease. I might get mean spirited when the pain gets bad but I also do not pain pills been there it doesn't work. I just remember my husband loves me but God has not forgotten me .

November 27, 2022
A MySpondylitisTeam Member

I just accept that its going to be "one of those days" and do whatever my body needs to do the most to support itself. Some days I do well, other days are just flat out in bed kind of days. I just try to maintain balance and not create more issues for myself even though I am not always able to to so. Breathe work, hot epsom salt and frankinscense oil baths, OTC pain patchs at bedtime can help me sleep better, proper rest, not climbing my stairs more than a few times a day helps alot. I dont leave the house often because getting out of the car is the worse. Self love and allowing what Im feeling, good or bad, I allow myself to feel and pass through. The fact that my little home backs up to wetlands, so nature and all of the animals that come to visit brings me daily joy. Winters are harder than Spring through Fall for me, of course, but I use that time to try and clean out the house and lighten the load and make life easier. The simpler the better.

October 26, 2022
A MySpondylitisTeam Member

I spend my day doing and that might help for that day. Hot bath playing music watching TV laying in bed being lazy exercising taking my painkillers using Voltaren it works really well for me

January 9, 2023
A MySpondylitisTeam Member

Bad days are just that. I might stand in the shower 4 or 5 x a day. I make myself move and take care of my needs. Rest if able. Pace. Pray. Keep a good outlook because I know it is a bad day and hopefully the next day will be better.

December 27, 2022
A MySpondylitisTeam Member

I read or watch TV. I make dinner but all other meals my husband is on his own. He suffers chronic back pain for other reasons and most days doesn't understand why I can't handle the pain. I can only take Tylenol or ibuprofen and I have muscle relaxers. I can't take narcotics as I have overdosed one to many times. Today is a bad day but still went to church . I'm now just sitting and trying to work through the pain. As always I'll be fine πŸ™‚

November 6, 2022

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