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What Are Your Fears Surrounding Spondylitis And How Do You Cope With Them?

What Are Your Fears Surrounding Spondylitis And How Do You Cope With Them?

I just listened to another Autoimmune Besties podcast
They have such good food for thought and always leave me wondering what everyone here would say to the topics they bring up. So in that light, what are your fears surrounding spondylitis and how do you cope with them?
Episode 9:  Overcoming the Fears of Living with Autoimmunity

posted September 25
A MySpondylitisTeam Member

I fear loosing my range of motion. Movement is so important. So is, how you move. For me, the more fluid the better. Beginner's Thai Chi and stretching in a pool work for me. I believe if you stop moving that's it....you're done for. Always keep moving. Rest when you need to. It alliws you to heal and keep going. No shame in resting. Just don't stay there...lol.

posted October 9
A MySpondylitisTeam Member

@A MySpondylitisTeam Member thank you for sharing about your son. They really do shed light on a different perspective. I have had a hard time fighting keeping the frustration and pain hidden at times and my almost 4 year old will notice. A few days when I can't get up off the ground or couch she will ask if I need help getting up or walking. It breaks my heart that I do need help at times to do certain things, but I love that she is so caring and wants to help even though she is so small. My husband deals with chronic low back pain due to some weird nerve issue, so when we are both out of commission it is a mess!

posted September 28
A MySpondylitisTeam Member

Love this point of view! Awesome! I do try to keep myself moving and fight on. I am afraid I have yet to figure out how to get my mom moving though. I won't give up!

posted October 26
A MySpondylitisTeam Member

She can still come back and see how everything has evolved and changed. I would think of it as the Start to a new exciting adventure. Mom can take her SHE POWER back! Never give up, Never surrender.....FIGHT ON! That's my mantra I say to myself everyday until it gets in my Spirit for rest of the day. I believe ANYTHING is possible.

posted October 26
A MySpondylitisTeam Member

Thank you for these answers and helpful resources. I cant agree more ... listen to your body and know when to rest, but keep moving forward! You have to keep moving: My mom gave up on moving and now has spent decades in bed. To me it's so tragic... she doesn't know where the time went. There is so much life she missed out on since she gave the power over to her pain.

posted October 11

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