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About MySpondylitisTeam

Connect with others who understand.

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About MySpondylitisTeam
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Strategies Have Been Helpful To Get Your Loved Ones To Understand What You Go Through?

What Strategies Have Been Helpful To Get Your Loved Ones To Understand What You Go Through?

20 days ago
A MySpondylitisTeam Member

This was tough for me also in the beginning and just when u think they understand they don't really it's hard as we need them too ,just take each day as t comes there is plenty of life left in us we just hurt along the way keep fighting we have to ,

19 days ago
A MySpondylitisTeam Member

Thanks for the hugs @A MySpondylitisTeam Member and @A MySpondylitisTeam Member

14 days ago
A MySpondylitisTeam Member

I call and talk to her frequently. I try visiting her as much as possible but with everything covid going on its been harder to do that. We have family that lives up where she's at and they visit when they can (its almost a 2 hour trip one way to go visit) so depending how much energy I have determines how often I visit.

15 days ago
A MySpondylitisTeam Member

tamcolem, good to hear you have someone you can count on. It's okay with your mom, do others go to see her, I know that is a tough one. I was fortunate, when my mom was in a home, I was able to visit her weekly. Take care of you, can you call your mom, that would be like a visit. Blessings to you, Pam

15 days ago
A MySpondylitisTeam Member

I hired my niece to come once a week to clean up stuff that I have trouble with. My mother is in a nursing home because I'm unable to care for her, while I feel bad about it I also realize I can't give her the proper care that she needs and it's for the best.

16 days ago

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