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Whats The Next Step In My Treatment ?

Whats The Next Step In My Treatment ?

Hello :)

So , I’ve been diagnosed relatively recently , and my rheumatologist tried to get me on anti inflammatories , but it has failed to work . I’m wondering abt what the next step in my treatment might be . She alluded to bio therapy , but will she put that in place right away ( it’s the 2 nd time I see her ) ? Will she try and up my dosage ? Do you guys have any idea what she’ll do ?

Thank you in advance for your answers :)

A MySpondylitisTeam Member said:

Ibuprofen hurts you liver if you take to much. I did a caused liver to give out high test scores I not allowed to give blood any more

posted 5 months ago
A MySpondylitisTeam Member said:

You know....I didnt even think about my ibuprofen affecting my kidneys but I should have because Mom had to stop taking it. Ive been wondering for 2 months why Im having to get up so much in the night to pee!!!

posted 5 months ago
A MySpondylitisTeam Member said:

I worked as a nurse for many years, as well as living with A.S. and was Dx with it back when I was 46, after suffering a thoracic spinal fracture at work. I didn't take anything but Ibuprophen twice a day for many years, because I was still working. I learned years ago that both NSAIDS and pain meds work better with a snack or meal and fluids than they do on an empty stomach. This is so true! Also, there are fewer complications when taken with something in your stomach and with fluids. I still take Ibuprophen at age 62, but almost always just twice a day, with breakfast and just before or with dinner. Recently, I had a lung neuroendocrine tumor removed, and had worried about how going in through my rt. ribcage would affect my A.S. I had 2 incisions in my front rt. ribcage, and another in my back rt. ribcage. I was hurting postop, it ached a lot as I do have occasional pain from costochondritis. But, it was doable after the first couple of days. I couldn't lie on my rt side for a couple of weeks, but managed to stay pretty comfortable with pillows and my heating shawl that really helps relax me and helps my pain dramatically. During those couple of weeks, I added a third dose of Ibuprophen, and also have a PRN short acting pain med to take also Q 8hrs. It worked quite well, and I'm back to my normal again now. I'm careful with the Ibuprophen, and normally just take it Q 12 hrs, always with food and fluids. No gut issues, thankfully. I'm waiting for them to come up with an NSAID that doesn't harm kidneys or cause other issues. So far, so good, the only 2 times my kidneys were stressed was when I became hypercalcemic due to the neuroendocrine issues I had. Once those issues were treated, I was no longer hypercalcemic. Not being Dx until age 46, I'd decided to not go on biologics as I'd read that women often do not get the same relief as men do as we are usually diagnosed at a later age with A.S. I am happy for those who benefit from biologics, but I have never dared to shut down my immune system. I've worried about the neuroendocrine issues returning, and this year another one had appeared, but now it's gone, and am hoping maybe this is the last one for me as they tend to be slow growing. I recently met with a geneticist near Yale, where my surgery was done, and sent off bloodwork to finally try and get some answers as to which genetic family disease I might have, so my kids will know to monitor their own health, and not miss anything along the way. All of this keeps life interesting though! Never a dull moment! Have a nice holiday season!

posted 8 months ago
A MySpondylitisTeam Member said:

I have gone thru embral an renacaide infussion can’t remember all the other things but I have always taken till they stop working

posted 10 months ago
A MySpondylitisTeam Member said:

Thank you for your encouragements .

Im sad that you had to go through all that you did , i hope it will get better soon .

I take anti inflamatories such as ketoprofene , apranax , or celebrex ( those are what they are called in france idk if their names are different in the USA ) twoce a day , but it doesnt work at all … so that’s why i was wondering what medication my rheumatologist might give me next

posted 10 months ago
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