I am curious how everyone finds ways on a daily basis to cope with their challenges. Everyone has unique circumstances and experience this condition in unique ways. I am interested in learning the unique ways everyone has for coping. My biggest change for how I cope is a gratitude practice and part of that is connecting on this platform with others who can relate. I know how bad this disease can get and I am grateful everyday that I am nowhere near experiencing the worst of it. I accept where I… read more
Remember, always find the time for the things that make you happy to be alive!!
KMo, you are so right, this disease is a silent threat to our mental health. Coping to me takes acceptance, yet how to never give up on finding a better way to decrease the progression naturally, but most importantly....Prayer.
God will be the only way to help us stay strong and continue to find teach us how to find the answers.
This is how I manage.
BTW...not always easy
I have a disease, it doesn't have me. Every day is a new challenge and I'm learning to live in my skin all over again (and I thought puberty was bad!) I've been recently diagnosed which I'm finding answers to things I've berated myself over for years and that's helping. Honoring my physical body, treating it differently now. Being gentle with myself and not pushing through like I always have.
I cope just by simply owning it.See I figure that if we let it own us it controls us.So one day last year I woke up and decided things had to change.Just laying around and letting this own me,has ruined my life.That day forward I decided to get up and get moving.Started with short walks and faught through the pain.Some days my walks really hurt bad,but I kept going and walked the pain away.I figure I own it now so it's a win.Doesnt mean I dont need help,I'm always looking for ways to control the pain so I can get a better quality of life again.This Tuesday I'm getting pain pump surgery. You might read that and say if your gett6the pump your letting it control you.Nope I have exhausted every treatment there is so this is my final chance as far as seeking help.Again once the pump surgery is over,I own it,its mine,its there to help me,I'm paying big $ for it so I own it.The mind is so powerful folks .Once you control your mind,you control your life.Anyways that's how I see it,so it is!
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