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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Leaves Of Absence And Communicating With Doctors

A MySpondylitisTeam Member asked a question 💭
Massachusetts

I am approaching the follow up date with my rheumatologist and am worried that due to lack of medical evidence that I won't be believed that I am still struggling with symptoms. My primary struggle is fatigue and moderate intermittent pain. I am staying active with house work but it wipes me out. I am concerned that if I go back to work too soon, I will be faced with the same struggles I had before, which is even a short 4 hour shift will expend the energy I have for the day. I am also a full… read more

July 27, 2021
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A MySpondylitisTeam Member

I've been deal with AS since my 20's back in the 70's. It didn't get real bad until my 50's. Severe pain from hips to neck. I sucked it up until I couldn't take it anymore. My Doctor told me I could retire 10 years before I did. I actually liked working. But, it got too bad. I don't know how old you are but, it seems like if you just told your Doc exactly what you said in this post, he would have to write up a diagnosis & any future problems that will occur. AS will never go away. All you can do is make it bearable. I have an infusion every 8 weeks for almost 10 years now. It has given me most of my life back. You must keep your spine flexible!! I didn't & it fused. I didn't listen to the Doc. Finally, I would say be honest with yourself, your employer & mostly your Doc. Hope the best for you. Stay safe and kind. Peace.

July 27, 2021
A MySpondylitisTeam Member

Keep a journal and take it with you! Show her what a day looks like for you and how you feel!

August 11, 2021
A MySpondylitisTeam Member

Thank you for the hug. A great big one back to you!!

July 28, 2021
A MySpondylitisTeam Member

This site is so cool. I love being able to talk to someone & actually completely understand what you are going through & possibly help. I hope the best for you. Stretch all you can. Stay safe & strong. Peace.

July 28, 2021

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