I am approaching the follow up date with my rheumatologist and am worried that due to lack of medical evidence that I won't be believed that I am still struggling with symptoms. My primary struggle is fatigue and moderate intermittent pain. I am staying active with house work but it wipes me out. I am concerned that if I go back to work too soon, I will be faced with the same struggles I had before, which is even a short 4 hour shift will expend the energy I have for the day. I am also a full… read more
I've been deal with AS since my 20's back in the 70's. It didn't get real bad until my 50's. Severe pain from hips to neck. I sucked it up until I couldn't take it anymore. My Doctor told me I could retire 10 years before I did. I actually liked working. But, it got too bad. I don't know how old you are but, it seems like if you just told your Doc exactly what you said in this post, he would have to write up a diagnosis & any future problems that will occur. AS will never go away. All you can do is make it bearable. I have an infusion every 8 weeks for almost 10 years now. It has given me most of my life back. You must keep your spine flexible!! I didn't & it fused. I didn't listen to the Doc. Finally, I would say be honest with yourself, your employer & mostly your Doc. Hope the best for you. Stay safe and kind. Peace.
Keep a journal and take it with you! Show her what a day looks like for you and how you feel!
Thank you for the hug. A great big one back to you!!
This site is so cool. I love being able to talk to someone & actually completely understand what you are going through & possibly help. I hope the best for you. Stretch all you can. Stay safe & strong. Peace.