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Does A Sed Rate Test Overrule A Clinical Diagnosis?

Does A Sed Rate Test Overrule A Clinical Diagnosis?

I was diagnosed with ankylosing spondylitis over 30 years ago by a rheumatologist. A few years after that a neurologist treating my seizures said my sed rate was within normal limits, so the AS diagnosis must have been wrong. So I've operated all these years as if I did not have a diagnosis.

Now I've had a bilateral lumbar laminectomy without fusion and a 3 level anterior cervical fusion with instrumentation for bony central and foraminal stenosis. Both surgeries removed excessive bone but… read more

A MySpondylitisTeam Member said:

Check your HLAB27 for a positive. This has been the standard for AS.

posted 2 months ago
A MySpondylitisTeam Member said:

Serum negative. What I have also

posted about 1 month ago
A MySpondylitisTeam Member said:

Yes DeeJoy. I had blood work for years, and never had imagine. I got sick in 1996, I hurt my back, never got checked for anything, then I got disability in 1998, in a chair in, 2000, still no blood work for auto immune diseases, doctors, kept telling me there was nothing wrong, it was all in my head, I had back surgery in2003, but surgeon didn't do anything but clean out arthritis, he said he never seen so much arthritis in a 34 year old, it was getting worse, then in 2011, I broke my back in 3 places, I don't even know how it happened, but I walked around with a broken back for a year. Finally had back surgery, I did okay for 4 months, but I was in a car wreck, a guy hit me in the back which totaled my car, I felt a twing in my back but I didn't think it was nothing .3 months later, I had to have a big back surgery, cut from the lower stomach and then the back, came away with a plate, 32 screws in the back,12 in the front, I had spots of ankolysis spondinitis in 10 different areas of my lower back, so I am sorry for the long post, but blood work is not a good tool unless you have a doctor who knows what to look for. Get the imaging, AS us horrible, most of the time, it has progressed so fast after doctors have done procedure, the disease gas already done ALOT of damage.DEMAND, a rhematologist and a pain specialist.GOOD LUCK and GOD BLESS YOU ❤️❤️🙏🙏🙏🙏

posted about 2 months ago
A MySpondylitisTeam Member said:

My sed rate is always normal, and I'm HLAB27 negative, but my C-RP goes up when I'm flaring. That's my only blood marker that's out of line and one of the main reasons it took so long to get a diagnosis of AS. Wasn't till an x-ray of my sacroiliac joints showed long term damage that I was diagnosed correctly. I can't help but raise an eyebrow at the fact that a neurologist would override a rheumatologist's diagnosis of AS. I'd definitely see a rheumatologist again.

posted about 2 months ago
A MySpondylitisTeam Member said:

Yes you can. Have you been taking any biologics for your elevated sed. Rate.Anythings possible with this disease. Have they done any blood work on you for auto immune disease,?You need imaging and a Rhematologist.GOOD LUCK.Dont listen to much to doctors only if they specialize in Auto immune diseases❤️🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

edited, originally posted 2 months ago
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