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Anyone Who Has AS And Gastrointestinal Manifestations, What Are Your Symptoms? AND, How Do You Manage Your Symptoms?

Anyone Who Has AS And Gastrointestinal Manifestations, What Are Your Symptoms? AND, How Do You Manage Your Symptoms?

I am a 26 yr old female who was diagnosed with AS in February earlier this year. Though like most, I have experienced symptoms since I was 16 yrs old. When I was 21, I began experiencing full blown GI attacks that presented it self similar to Crohn's Disease symptoms. The flares have evolved since that time, occuring 1 to 2 times per year at 4 weeks at a time in addition to constipation and bloating. At this point, I am frustrated with the test results... They found ileitis on my initial CT scan… read more

A MySpondylitisTeam Member said:

I have had IBS for years! Stress, pain medication and food will all cause trouble. Also have diverticulitis and diverticulosis. I think GI trouble comes along with spinal issues! Try to manage the stress in your life it is the biggest issue for GI issues. Good luck I know it can be painful and life altering issue.

posted over 1 year ago
A MySpondylitisTeam Member said:

Yes! I just asked about this I'm having another flare up I've been so bloated and I just puked so much and it was undigested food from yesterdays breakfast and my ribs hurt so bad. I've also been having chest pains...

posted over 1 year ago
A MySpondylitisTeam Member said:

After GI symptoms since May this year, I had lots of tests. I've tested positive for E.Coli, SIBO (small intestinal bacterial overgrowth-due to no ileocecal valve which was removed with a third of my colon as well as the first part of my small intestine) and lymphacytic colitis. The colitis is an autoimmune disease with symptoms like Crohn's and UC and the only way to be tested for that is with a colonoscopy and and biopsies taken because there is no visable way to see it with a regular colonoscopy. My lower GI inflamation (Calprotectin) was 1200 and normal is 0-50. This may be your problem. It's called microscopic colitis and there are three kinds: Lympthocytic, collagenous and a combination of the two. It's called microscopic because that's the only way it can be found-biopsies looked at under a microscope.
Sure hope you have had a doctor figure it out by now.

posted 8 months ago
A MySpondylitisTeam Member said:

Just found out I had colitis from the CAT scan I had at the hospital.

posted about 1 year ago
A MySpondylitisTeam Member said:

I've had stomach problems since I was about 10 or 12 and I'm 71 now. In 2015 I had what I thought was terrible gas pains. It started at 2:00 in the afternoon and since I've always had stomach problems I didn't think much about it. It, however got worse and I went to bed about 8:00 that night. I couldn't lay on my side, back or stomach. A hot pad did no good. At 9:00 by husband called my gastro doctor's answering service and luckily my doctor was on duty. He said I needed to go to the emergency room. It was probably gas, but we needed to be sure. I had to wait another hour to get to see a nurse and doctor. I told my husband to just take me to our local hospital for a shot and take me home. At this point I couldn't sit up. I kept doubling over. They finally gave me a CAT can and the ER doctor came in and he said we finally know what was wrong. I had a cecal volvulus. I had no idea what that was, but it was a twisted colon. At 2:00a.m. they finally took me to the operating room and removed a third of my colon, my secum, appendix, my illiocecal valve and the first millimeters of my small intestine. Lesson learned. Don't wait too long if you are having pain. Part of my colon was starting to die. If I waited much longer it could have ended up breaking open and leaking into my abdominal cavity. Apparently it was caused by a birth defect and my colon never attached itself to the abdominal wall like it should have. The bad news is neither did my left side so this could happen again. I'll pay attention next time.

posted about 1 year ago
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