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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Who Has AS And Gastrointestinal Manifestations, What Are Your Symptoms? AND, How Do You Manage Your Symptoms?

Anyone Who Has AS And Gastrointestinal Manifestations, What Are Your Symptoms? AND, How Do You Manage Your Symptoms?

I am a 26 yr old female who was diagnosed with AS in February earlier this year. Though like most, I have experienced symptoms since I was 16 yrs old. When I was 21, I began experiencing full blown GI attacks that presented it self similar to Crohn's Disease symptoms. The flares have evolved since that time, occuring 1 to 2 times per year at 4 weeks at a time in addition to constipation and bloating. At this point, I am frustrated with the test results... They found ileitis on my initial CT scan… read more

about 2 years ago
A MySpondylitisTeam Member

I have had IBS for years! Stress, pain medication and food will all cause trouble. Also have diverticulitis and diverticulosis. I think GI trouble comes along with spinal issues! Try to manage the stress in your life it is the biggest issue for GI issues. Good luck I know it can be painful and life altering issue.

almost 2 years ago
A MySpondylitisTeam Member

Yes! I just asked about this I'm having another flare up I've been so bloated and I just puked so much and it was undigested food from yesterdays breakfast and my ribs hurt so bad. I've also been having chest pains...

almost 2 years ago
A MySpondylitisTeam Member

Yes I've had issues since early childhood - 4 yrs old. Im treated by a gastroenterologist who is extremely knowledgeable of AS and comorbidities related to it. I take Lialda and hyoscyamine that help immensely. B

9 months ago
A MySpondylitisTeam Member

I am just blown away by this information. I was diagnosed with AS over a year ago. Dealing with pain on right side for over 5 years. Dealing with Dr. sending me out for colonoscopy. No findings. When abdominal X-ray always shows chronic constipation. With my own research learned of the illiocycle valve.
I have these bouts around 1-2 year.
Thank you for this information so I can go back to my dr

9 months ago
A MySpondylitisTeam Member

After GI symptoms since May this year, I had lots of tests. I've tested positive for E.Coli, SIBO (small intestinal bacterial overgrowth-due to no ileocecal valve which was removed with a third of my colon as well as the first part of my small intestine) and lymphacytic colitis. The colitis is an autoimmune disease with symptoms like Crohn's and UC and the only way to be tested for that is with a colonoscopy and and biopsies taken because there is no visable way to see it with a regular colonoscopy. My lower GI inflamation (Calprotectin) was 1200 and normal is 0-50. This may be your problem. It's called microscopic colitis and there are three kinds: Lympthocytic, collagenous and a combination of the two. It's called microscopic because that's the only way it can be found-biopsies looked at under a microscope.
Sure hope you have had a doctor figure it out by now.

about 1 year ago

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