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I Had Spinal Surgery For AS. It`s Been Over 1 Years And I Have No Energy, None What So Ever. I Can`t Walk Across The Room Without Ge

I Had Spinal Surgery For AS. It`s Been Over 1 Years And I Have No Energy, None What So Ever. I Can`t Walk Across The Room Without Ge

A MySpondylitisTeam Member said:

I haven't had any sugury (as I'm 100% fused and disks no longer exist). I do well understand the energy level though. I had to force myself to walk, a little more each day resting as I need to. Took about a year to get me up to a level of a couple of miles but then it got easier.

Did it hurt , heck yes it still does. Then I hurt just sitting or laying down. Often I'd take one step and need to breathe past the pain b4 taking the next step. End of this my weight is more stable and I feel like I accomplished something. Worked for me anyway.

Stay safe.

posted 24 days ago
A MySpondylitisTeam Member said:

I'm interested in how to keep my energy up or to find any, for that matter. I constantly hurt so I don't want to move, then as a result, my weight goes up and then I don't want to move. Vicious. Cyle. It sucks so bad. I am now struggling to keep my spirit up, but it is very difficult.
suggestions welcome!

posted 24 days ago
A MySpondylitisTeam Member said:

MUCH THANKS

posted 24 days ago
A MySpondylitisTeam Member said:

BrendaMiller23. Try. To be active on your better days. Which if your like me that might be 1 or2 days out of the week if we're lucky. But I tried to move. But just keep trying. Do the best you can.💓💪🙏🙏🙏🙏

posted 24 days ago
A MySpondylitisTeam Member said:

I am sorry about everything your going through. I have had 5 surgeries for AS. The 1 st was terrible. My pain did not get any better. My kidneys just about shut down I had to wear a catheter for 4 months. The next two I broke my back twice within 6 months. Wasn't even diagnosed with AS until the second one and the surgeon diagnosed me and it took a year to see a Rhematologist. My pain was terrible. It took 3 years before I could walk and then I started falling and messed up my screws in my power back. But the pain is so severe. And then I had my stimulator put in because the pain was so bad I couldn't walk. But I got infected had a bacterial infection. Was in the unit 2 weeks. But if I didn't have the stimulator I would not be able to walk. Maybe it might need a little more time when you mess with the back. You are dealing with a whole new thing. I am sorry to sound so negative. But it could take 2 years before you can feel some better please stay in touch with your doctor's. Therapy can help. If you dont have a pain specialist. You might want to think about it. I pray you have a good Rhematologist. PLEASE stay strong. It is hard.GOD BLESS you.💓🙏🙏🙏🙏🙏🙏🙏🙏

posted 24 days ago
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