It looks like it’s still in the trial stages but sounds promising.
My wife is on it for rheumatoid arthritis, she has it bad but the trexone helps.
Since having biologic infusion 8 days ago, have been having abdominal pain (not sharp pain). Is anyone else having similar issues with biologic? I'm wondering if it could be another issue popping up or if it's a side effect. 🤯🙏. Always praying, always trusting Him. ❤️
There is a good article here about digestive issues & Arthritis..., it made me think & identify arthritis actually transient to the bowel. I've been having a LOT of bowel pain that moves around and… read more
My doc tried to get me in a drug trial but the mri didn’t show inflammation and hla b27 was negative so I don’t qualify. Now I’m stressed that this info will make him rethink my diagnosis. I was happy(sort of) to finally having an answer to why I’m in so much pain all the time and get on track to feeling better(sort of). His diagnosis was based on deteriorating of the si joints caught on an X-ray.
I am negative also. My doc said it doesn’t matter that much. I have AS in my neck and si joints/ lower back. All my blood work was also normal. I was misdiagnosed with fibromyalgia and now I was… read more
Ask your doctor about potential medication that will help. You don't have to suffer.
I’m always on the hunt for the perfect pillow. The one that will wrap around the middle of my back and tush. Can’t sleep with a pillow under my head due to AS neck issues. But I currently use a pillow between my knees and one wrapped around my back & tush but it’s not great. I feel like there must be something better.
How do you take advantage of pillows to get comfy in the bed?
I sleep with the traveling neck pillow along with my regular pillow. And a body pillow between my legs cause I sleep on my sides. A Physical therapist told me you should always have something between… read more
Having suffered with the condition for years,nothing seems to work 😒
I’m currently laying here because my heart is all involved. I have spoken to he doctor, I am below stroke levels. I have very low blood pressure normally. Right now I am waking at 145/81 with 101 HR… read more
I don't often have sleep issues but sleep apnea..if I wake up in pain, take meds. Then think of my favorite place. Kinda of like sleep mediation.
I haven’t worked in 5 months because of the pain (C5-6 disc bulge and lower back) and wondering what roles or positions people work w AS? I find any repetitive movement is painful and any non-movement (sit/stand/laydown) past half hr is also painful. Lose:lose for this newly diagnosed AS woman. Yes, working w RA dr on pain management, but curious what you do for a living or what types of jobs are best and available? Thanks kindly!
I have been off work since June 2023, no return to work plan as I need to see the Neurologist still( on a waitlist). My Dr figures at least 2 years minimum. Depending on the surgery wait list… read more
I am hunched forward and hunched to the right. In pain every day and almost always depressed. Is there Anybody that is or has gone through the same?
@A MySpondylitisTeam Member - I know how you feel. The pain and constant gravitational pull all day long. It’s a fight for sure! Look for stretches for kyphosis on YouTube. There’s some that I’ve… read more
I had surgery, worked well for me.