Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.
I really think that doctors should warn us about this, myself and a lot of other people it seems have worried unnecessarily that we may have dementia because of this side effect of medication and also something that sometimes comes along with the spondylitis. They must get a lot of people asking about the brain fog and forgetting words but they never mention it to patients, I'm sure it would prevent a lot of worry if they did. If it weren't for this site I would still be thinking that I may have dementia and it's an awful worry to have, my problems have gone now I've come off gabapentin so I'm sure that was the cause.
@A MySpondylitisTeam Member
I was better on lower gabapentin dose, still had issues with memory but not as bad as past 2 weeks. As well I felt more pain. I'm pretty much out of medication options as I've tried most everything out there, I may just have to come to terms with feeling wasted and just not caring about the pain. Because when the gabapentin kicks into gear that's about how I feel. I can feel the pain I'm just so buzzed I don't care. I guess it's better than just feeling the pain. But it may mellow a bit it's only been 2 weeks. We'll certainly see...
Happy Thanksgiving to you and yours Karen!
Im sorry I havent been writting here! Lot have happened on the last months, so, I could say 2019 was the worst year of my life so far. It was the year I found I have AS, lots of reactions of medication, started an awful axiety and trichotillomania and my dad passed away close to xmas... Yep! Lot have happened, but you know what? Im still good... positive and thinking there is a reason for everything... i decided to use all the 2019 experiences to help improve myself as the best I can be and do! And what happened after that? Well, pain are still here with me... few good days and bad days about my loss... but Im dealing much easier and faster with everything around me! Our mind is powerful and can give us a huge help when we accept the reality but also dont give up! ❤️
Don't know where I got it from, probably my grandmother, I know I got my lack of tact from her, and I find myself saying things she would say. X
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