Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.
I really think that doctors should warn us about this, myself and a lot of other people it seems have worried unnecessarily that we may have dementia because of this side effect of medication and also something that sometimes comes along with the spondylitis. They must get a lot of people asking about the brain fog and forgetting words but they never mention it to patients, I'm sure it would prevent a lot of worry if they did. If it weren't for this site I would still be thinking that I may have dementia and it's an awful worry to have, my problems have gone now I've come off gabapentin so I'm sure that was the cause.
@A MySpondylitisTeam Member
I was better on lower gabapentin dose, still had issues with memory but not as bad as past 2 weeks. As well I felt more pain. I'm pretty much out of medication options as I've tried most everything out there, I may just have to come to terms with feeling wasted and just not caring about the pain. Because when the gabapentin kicks into gear that's about how I feel. I can feel the pain I'm just so buzzed I don't care. I guess it's better than just feeling the pain. But it may mellow a bit it's only been 2 weeks. We'll certainly see...
Happy Thanksgiving to you and yours Karen!
Im sorry I havent been writting here! Lot have happened on the last months, so, I could say 2019 was the worst year of my life so far. It was the year I found I have AS, lots of reactions of medication, started an awful axiety and trichotillomania and my dad passed away close to xmas... Yep! Lot have happened, but you know what? Im still good... positive and thinking there is a reason for everything... i decided to use all the 2019 experiences to help improve myself as the best I can be and do! And what happened after that? Well, pain are still here with me... few good days and bad days about my loss... but Im dealing much easier and faster with everything around me! Our mind is powerful and can give us a huge help when we accept the reality but also dont give up! ❤️
This stuff puts me on Pluto... not gonna lie. I'm going to ask her to lower me back to the previous amount. 1200mg morning and 1200 pm...?... whoah! Not me. But I'm glad it works for some. I think because of my many conditions and many medications raising it makes the side effects worse , for me. But look at the many different responses just here alone - goes to show you, what works for one may not for others....
@A MySpondylitisTeam Member
A positive attitude and outlook such as yours is a gift few have. Luckily all of those fews or most of them anyways are here on this site! My deepest and most sincere condolences for the loss of your father. I've lost both of my parent's and my wife between 2006 and 2010, it is not easy, I still at 53 and 14 years later still think of the happy memories we all shared.
The positive energy and attitude has certainly assisted me.
I am sorry to hear of your bad 2019, many of had pretty bad past year, but we all look forward to this new year. Happy 2020. Wishing you only the very best. Wishing you a well day, night and better tomorrow!