Hi everyone,

I was diagnosed with Ankylosing Spondylitis last year and it really destroyed my world. I was 21 and training to be a professional dancer so it felt like everything I'd been working towards was gone.

The past year I've worked really hard to get my illness under control with medication and lifestyle changes. I'm back dancing and training to achieve my dream. The plan was to try a biologic injection but recent imaging has shown that I don't have active inflammation anymore and my… read more

I seem to deal with this a lot. It can, at times, make exercise a little challenging. Also, pins and needles that come and go in different areas.
I don’t really see much literature on this. Or sites that list it as a symptom of AS.
Thanks 😊

Has anyone gained lots of weight whilst on it?

To describe the pain, every time I move my pelvis usually at the point of sitting and standing or rolling over in bed, the coccyx bone feels like it snaps back and forth depending on the movement and the pain is no joke excruciating. I’ve had 3 epidurals over the past 2 years with minimal lasting pain relief. What else can be done I’m at the point of deciding whether a spine specialist will remove it, my pain doctor is in favor of it. Any thoughts on your experiences would be very helpful. Thank… read more

I fell and the doctor told me we all have Arthritis..it takes an injury or sort to bring it out...but when i got that injection in my back in stl that caused the chronic pain...

Will be switching to Medicare in a few months and in researching my options I'm finding Enbrel will cost me about $5000 more per year than it does on my current health insurance. What have other people done when moving to Medicare?

I am wondering if spondylitis causes pain throughout spine. I have trouble in neck, between shoulder blades, just above hips, and lower back. I also have arthritis in ribs and sternum and sometimes develop some mean costochondritis pain. I dont know if its all on account of spondylitis.

Had been diagnosed with AS, but almost overnight in my early 50s, had cervical radiculopathy, surgery for that didn't work, and I've been in pain ever since.