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Bit Embarrassing, But...

Bit Embarrassing, But...

Is anyone bowel incontinent? I have started leaking out poo and I don't know it's there until I go to the loo and I, well, smell it! My GP is treating me for severe impacting, so I'm on Laxido, was on Lactulose but it didn't do the trick . But, since taking it (started last Friday) twice daily, from Monday this week, several times a day, there is always some poo (and I mean several wipes worth, we're going through loo roll at a rate of knots ) sometimes quite a bit on my… read more

A MySpondylitisTeam Member said:

@Yorkshire lass
That damn predictive text, incontenance, not inconvience, although the writing is really small and I can't see it properly which doesn't help. I am blind as a bat and it looks quite blurry a lot of the time. My husband has problems with not exactly poo leakage cos he has an ileostomy, bit like a colostomy but higher up in the bowel so actual poo goes into a bag, he has smelly liquid, mucus from the now defunct part of the bowel that leaks out without him always being able to feel it, that's why the incontenance pads are useful to soak it up before it gets on his pants, he doesn't have it all the time but you never know when it will happen so you need something to protect you and make you more confident about going out in public. I have also got him a card from the bladder and bowel community, it's for people who can't wait when they need the toilet, after the cancer treatment he has a lot of nerve damage and doesn't get much warning when he needs a wee. The information for this came from a nice lady on this site called Gaynor. If this is helpful for you just Google bladder and bowel community and apply for the card. X

posted over 1 year ago
A MySpondylitisTeam Member said:

I know what you mean, since she got her own budget all our GP is interested in is how much things cost and she likes to tell you how much you are costing the NHS, as if we haven't paid for it through our taxes all our lives.

posted over 1 year ago
A MySpondylitisTeam Member said:

Yorkshire lass
I got the radar key from the bladder and bowel community, also got a card telling people that the person who has this card has problems and just can't wait when they need to use the toilet, got them mainly for my husband, they are very good and you can contact them from Google but they seem to be associated with a company called Bullens who do colostomy bags etc, I found this company to be too big and impersonal and their products not as good as dealing with Charter the company we were previously with, in fact we have gone back to Charter, just wanted you to be aware that although the bladder and bowel community is good they will try to sell you stuff too, it's well worth getting the key and card from them though, we also got a plastic sheet for the bed, all for free, the other company didn't tell us we could get this. Hope this helps a little, it seems you have to find out yourself what you are entitled to, nobody from the DSS will tell you.

posted over 1 year ago
A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member Not everyone gets it either do they? Especially the medical profession. My GP has got used to the way I am and sees past the bravado of my constant quips and making light of things, she will always wait for me to finish and then say 'So, how are you REALLY feeling?' which usually has me bursting into tears!
Other's take me literally when I start making fun of my situation and think one of two things, I'm either not as bad as I make out I am or that I have no reverence for anyone else in the same situation! Only those people know where we're coming from and of course, people who know us well!

posted over 1 year ago
A MySpondylitisTeam Member said:

Humor is the main way I've survived the past 4yrs.

posted over 1 year ago
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