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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Bit Embarrassing, But...

A MySpondylitisTeam Member asked a question 💭
just_jayne01@hotmail.com

Is anyone bowel incontinent? I have started leaking out poo and I don't know it's there until I go to the loo and I, well, smell it! My GP is treating me for severe impacting, so I'm on Laxido, was on Lactulose but it didn't do the trick 😉. But, since taking it (started last Friday) twice daily, from Monday this week, several times a day, there is always some poo (and I mean several wipes worth, we're going through loo roll at a rate of knots 🤣) sometimes quite a bit on my underwear and… read more

May 23, 2019
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A MySpondylitisTeam Member

@Yorkshire lass
That damn predictive text, incontenance, not inconvience, although the writing is really small and I can't see it properly which doesn't help. I am blind as a bat and it looks quite blurry a lot of the time. My husband has problems with not exactly poo leakage cos he has an ileostomy, bit like a colostomy but higher up in the bowel so actual poo goes into a bag, he has smelly liquid, mucus from the now defunct part of the bowel that leaks out without him always being able to feel it, that's why the incontenance pads are useful to soak it up before it gets on his pants, he doesn't have it all the time but you never know when it will happen so you need something to protect you and make you more confident about going out in public. I have also got him a card from the bladder and bowel community, it's for people who can't wait when they need the toilet, after the cancer treatment he has a lot of nerve damage and doesn't get much warning when he needs a wee. The information for this came from a nice lady on this site called Gaynor. If this is helpful for you just Google bladder and bowel community and apply for the card. X

May 27, 2019
A MySpondylitisTeam Member

Oh My Goodness, finally people that get it!! I've had this for awhile now and ALWAYS wear a pad because I leak poo also. It is so embarrassing to talk to others about, but not on this support group, Thank God!! I have IBS - M and while I was still teaching it was ulcerative colitis(stress). It was downgraded to IBS - M after I went on disability retirement and the ulcers healed. I have always had food sensitivities and have had to be careful with foods and spices. But, this new incontinence is just frustrating 🥺

June 29, 2023
A MySpondylitisTeam Member

Food sensitivity testing is a great way to figure out how to reduce inflammation in your body! I’ve talked about doing it for awhile. It’s time. Thanks for the reminder. ☺️

June 2, 2023
A MySpondylitisTeam Member

Just a thought 💭 me and my husband have had many digestive issues with no answers from GI doctors. Then we tried ordering the food allergy test kits from Everlywell.com. It can test for up to 250 possible food allergens. We discovered that although my husband is NOT😊 gluten intolerant, he is wheat protein intolerant. I had no idea there was a difference. For me it let me know what foods were bothering me surprisingly eggs, and cashews, again I never would’ve guessed. But my eliminating these foods from her diet it has helped both of us tremendously. I am the only one with AS in the family.

June 2, 2023
A MySpondylitisTeam Member

There are some upgraded underwear out there for us. Read the ingredients on All foods you purchase, sucrose Sucralose anything that sounds like that is bad. I am lactose intolerant in addition to all my fun genetic factors
I take multiple probiotics they seem to help my GI problems
Good luck I hope some of this help you

May 29, 2023

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