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Why Am I Finding This So Hard.
A MySpondylitisTeam Member asked a question 💭

I feel that my head is going to explode, I can’t seem to get myself motivated and feel that everything is taking over me. Am very low & grieving badly for my dad. I have a great family but feel so alone.

posted January 22, 2019
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A MySpondylitisTeam Member

Believe it or not, so many tell us to move on yet each person grieves in their own way and time. It was once explained to me when something in my brain malfunctioned and paralyzed me for a few minutes many times before they figured it out. When we loose someone especially very close someone, our brain dumps a chemical into our bloodstream, that helps us grieve. Yet sometimes it just spills over and over especially if the triptophane in our systems is low. I don't know when your dad passed, but combined with chronic pain I know it is difficult. I have the high level pain, but take few meds as don't want them to NOT work when the time comes for a deeper need. So along with my pain, I have lost 12 folks close to me including a sister, sister in law, 2 brothers in laws I loved big time as if my brothers, an ex that tho no longer married I still carried, 7 close friends from thanks giving to last week, and a spouse in 2015. combine those different losses with chronic pain I have to MAKE myself get up and go for a walk, and to use a hobby to keep my mind focused on something other then the loss or the pain. So I understand. Get your doctor to do a screen for low triptophane as it will let the other chemical spill like a waterfall into your bloodstream and sweetie, you will for sure feel alone … I know been there. I take triptophane now to level it out, and still struggle but not as bad as a few months ago. keep us posted as to what is going on.
I am in TX. but learned about that when up north. Not many doctors hit on it as the one I had up there did. take care .. C

posted January 22, 2019
A MySpondylitisTeam Member

You sound like you are suffering from depression Shaza69, lots of people with spondylitis get this and it is not surprising when you are living with constant pain, hope you feel better soon if not then speak to your doctor and tell them how low you are feeling they can give you something to help x

posted January 22, 2019
A MySpondylitisTeam Member

Isn't cheese before bed supposed to give you nightmares?

posted March 24, 2019
A MySpondylitisTeam Member

Hi, feeling the same :( just started a post grad degree and been diagnosed with AS after months of hell and having to suffer in silence.

I'm curious, you have low B12 too? Is that something to do with AS? I have very low B12 and I've read it can cause muscle spasms. I was having them in my arms and terribly in my back.

posted February 22, 2019
A MySpondylitisTeam Member

Thank you so much to each and everyone of you for answering me. I am so grateful to you all, am trying my best to get up and go out everyday and keep myself motivated.
I am also due my B12 injection tomorrow so I am going to speak with the nurse regarding my bloods and about having the triptophane levels checked, thanks so much for all your advice. Am in Liverpool, United Kingdom. Thank you AS Friends gentle hugs to you all.

posted January 23, 2019

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