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Last night I just felt like my body was lacking something, like I needed some fruit.Went to store and loaded up on fruit.Had some and instantly I felt better🤔
I know when i start craving sour things my body needs folic acid. So yes our body tells us what we need if we could just learn what it all means
Its been 4 days since all those xrays, do they call you with tge results or do they make you wait til your next appointment?
I had to call to get the results put in my portal. SMH. They know we are worried about the results they should call us. So call them.
I cannot stand on my feet an longer than 15-20 minutes before they are absolutely killing me. My diagnosis are AS, Fibromyalgia, sjogrens, Raynauds, and neuropathy. I hear how people describe neuropathy as pins and needles but I don’t have that. I never know how to explain it but my feet just hurt and the longer I’m on them the more swollen and red and hot they become. I have to literally plan each day around my feet, meaning I have to decide what hideous shoes to wear for the day, to making… read more
Thanks for insights to what is helping I will try them.
@A MySpondylitisTeam Member I understand that. It’s been a while since I have went into a store and physically shopped. I always place my order online and pick it up where they load it up for me. I do… read more
Does anyone experience night leg cramps that wake you up all night long? What can you do to help get a good night sleep,
yes I do get leg cramps,there are times I even get them during
the day and there have been times where cramps woke me up
leg cream i don't know the names of them
one of em is on… read more
Looking for some support. A brief history. I started experiencing inflammatory issues mainly in my neck around the age of 23. Took some time but we found out my father had the HLAB27 gene so was finally able to be referred to a rheumatologist around age 25 where I was diagnosed with AS. And I also have the gene. I’ve undergone many different treatments and therapies to help slow progression with Humira being the one to help the most. About a year and a half ago I began having very red eyes… read more
Hope you are doing well
I can definitely understand what you are going through. My disease started at 16
I'm 26 now. I have ankylosing spondylitis (AS) and non-radiographic axial spondyloarthritis… read more
I just listened to another Autoimmune Besties podcast
They have such good food for thought and always leave me wondering what everyone here would say to the topics they bring up. So in that light, what are your fears surrounding spondylitis and how do you cope with them?
Episode 9:Â Overcoming the Fears of Living with Autoimmunity
That is great advice @A MySpondylitisTeam Member!
B-12 complex, magnesium, muscle relaxers for sleep time only. Nit the answer fir everybody, but it is working in spades for me!!!@
Hi KarenNolan,
Have a great day and hugs to you thanks for good wishes
Just curious who's has the injections into the SIJ for Ankylosing spondylitis what was your outcome ? How often did you feel pain free how often did you have flares and what was your other side effects related to having the injections ? Since I've had them the pain subsided 80% of the time now and with the help of naproxen it's great but my periods are messed up... but thankfully lighter and more painless. But now I've got some serious teen acne going on lol 😆
