I was on Humira for only a short time. I did awesome with the first 3 shots, but when it came to the fourth shot I started getting nervous and couldn't press the button. I know it is an amazing drug because it worked right away for me but I just kept getting this feeling that was telling me that it wasn't okay for me to take it. So I accidently pressed the button, wasn't ready and now I am off it because of having anxiety about it. I would love… read more
Hi JoAnn,Sorry for your migraine I have had them they are debilitating...I don't remember what it's like not to have fatigue I also have AS FIBRO CFS CHRONIC FATIGUE SYNDROME the list goes on and on...I had a life or death surgery when I was 8 years old..the other 3 girls in my room didn't make😨 it I'm blessed to be here...I believe that was the beginning of all my Autoimmune Diseases...I was diagnosed with Crohn's Disease when I was 28 also had a rash all over my body the rash still comes and goes also had many flares of my CROHN'S and IBD.I live my life GREAT SENSE OF HUMOR NO PITY PARTY OR WHY ME this has helped me immensely.Your Doctor could test you for CFS...hope you have a pain free day.Hugs😃
Me too. I received the Humira at home but just couldn't make myself use it
Thank goodness I did not as I had to have a hysterectomy for post menopausal bleeding and now they have found a lesion on my lung and liver. Humira would not been good. I say listen to your body.
@A MySpondylitisTeam Member I can relate so much to that! I have been off of it for about a year and a half now. I just saw my doctor and he told me the option for a biologic is always open to me. I want to get over the anxiety and I know I can if I push myself enough because in the end it really is the best thing and will help me so much more then anything else will! Thank you for all your advice. It really is making me look at it in a much better way.
Hi JoAnn,Humira didn't work for me I used 3 bags. You mentioned you were going to have a Hysterectomy I had a total one when I was 47 I will be 77 this March 4...I had Fibroid Tumors I also had Uterus and Ovaries removed...two of my best girlfriends died of Ovarian Cancer I have told my friends to make sure they have their Ovaries removed!!! If your Doctor tells you will go into early menopause I took some meds I felt wonderful no more pain and cramps. I will add you to my team keep me posted.
Wishing you good luck!Hugs 😃
I let the anxiety get to me so much that I went off of the medication for about a year and a half. In that time I realized just how much it helps - I definitely went downhill. I'm back on it now, and when I struggle because it's time to take the shot, here's what I do that seems to help:
1. The obvious - remind myself how much it helps and that it is only 10 seconds of OOUUCCHH! for two week of genuine relief.
2. I actually set a clock up so I know how long the 10 seconds you're supposed to hold the needle in place after pressing the button will be - I can see it (and it does go quickly so it doesn't seem so bad). I put a band-aid next to me so it's all set to go.
3. I watch the second hand and pick a spot where I plan to press the button then take 3 deep breaths. On the third, I hit the button and then blow it out slowly while watching the 10 seconds disappear. Granted, sometimes I don't hit the button on my first intentional time, but I've found if I leave the needle pointing down I will lose some of the LIQUID GOLD, and all of this will be for less effect than it could have been. That sort of kicks me in to gear to get it over with. When done, I slap that band-aid on and get on with my day!
I hope trying something like that is helpful. Make your own routine, and whatever you do, trust that it will work for you each time. In the end, you know intellectually this medicine works well, so you can and will overcome the anxiety. You CAN do this! You're sooo worth it!