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Hi Tim,
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3. A menu will appear. Choose 'Settings' and then… read more
Welcome to the team! This is the most informative site I've found on Spondylitis
Hello ,can someone please tell me how do I approach my doctor about this, I mean I have Fibromyalgia and have had it for many years. But this past year something was going on with me all I want to do is sleep my whole body hurts like a giant tooth ache
I used to get flare ups with my Fibromyalgia, but this is most of the time it’s just there and it feels like it’s getting worse
I have this burning in my lower spine and when I walk it starts to burn and I need to make sure there a place… read more
I feel your pain, so sorry
I have Fibromyalgia and today a total flare day. Take a shower and keep warm, helps muscles relax. Rest read a good book or put on a good movie. Tomorrow will be a better… read more
Why do I keep getting the same notifications throughout the day. I have looked at the setting can't see what ive done. Not as popular as i thought same email over and over again 😂😂😂
I hear you @A MySpondylitisTeam Member Feel free to email me directly when you get a chance, I'll help you figure it all out. :)
(Email address can only be seen by the question and answer creators)
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I was told years ago that I have Restrictive Lung Disease. Way before my AS diagnosis.
Just wondering how many people also have Asthma, COPD or other lung impairments because it seems that there is a relation with AS.
Thanks 😊
Yes, I am diagnosed and treated for asthma. I have had pneumonia 4x in the past seven years. I have extreme back pain - thoracic, at the hip and neck pain. Taking tramadol, and baclophen for the pain… read more
I'm new to this site...I'm using a tablet and can't seem to navigate this site...How do I get help
I use a tablet as well. Keep trying and it gets better. Janice 5
I just started humira Wednesday. I am worried about the getting sick part of this, and want to know from people on this medication how often they get sick and if they take extra precautions. Or what to expect form real people not drug ambassador from humira. Thank you
So I did start it but got got sick right after and didn't get better for 3 weeks. Just was able to take another shot and it helped and took about 80% of the pain away
Seems like my eyes are getting worst by the minute. Also have Metamorphopsia, but all this started as my AS has been progressing. Not sure if there is a connection
😔
I just hit my 4 konths with Humera and am in the same place with my pain as when I started. I also have been very focused on maintaining my diet.
I have been reading and considering getting back on my birth control to regulate my estrogen levels. Has anyone else had success with that? Even just a mild improvement?
I've never heard of that Katherine! I'm interested on what you decide!! Keep us pst'd, K...? Best of luck. Have a good day...👋
I was diagnosed with 'non radiographic' AS (although it's questionable about the NR b/c my doctor saw inflammation on the MRI, brought it to the attention of the radiologist who then agreed) and started with taking Piroxicam at night. Initially and for the first time in my life I woke up in the morning without pain. I then was prescribed Cimzea (the medication for NR AS). It's been close to a year and recently, I started having the same pain in the morning where it's difficult to straighten up… read more
Anything is possible. I've been on medication that I questioned about whether it was wearing off. I quit taking the medication for one week, started back on it and it worked great
Don't do this… read more
