Quick Links
About MySpondylitisTeam
Powered By
It’s how you position yourself
I put pillows around me lower rear . Laying flat on back makes me wake up painful
The discs and/or cysts ( I have a couple ) push against your main spinal column… read more
Good response...i go to the pool also..trying to twist shake and whatever..to take my mind off this chronic pain...i also do dry kneedling at physical therapy..
My pain is more in the front. I stretch daily (which has helped me so much) I could not believe it. I do it daily before work
I am wondering if we will loose function of our legs. I have a lot of… read more
Daily, I use the ireliev tens wired system to help manage lower back pain. At one point I tried the ireliev wireless system, but the power pod sits in the center of my spine. Not an issue when upright or walking, but sitting, driving or sleeping it’s a no go. That being said, I am finding the wired system is not strong. What brand do you use, do you find it effective?
Thank you for the response. Sorry the TENS didn’t work for you. They are a true help to me, grateful that I have one. It usually takes two 60 minutes sessions to “scramble” my pain center when it’s… read more
I have arthritis in lower back and I'm pain always most days I use a cane especially if walking long distance and in stores I use electric cart. I also have it in my legs arthritis swelling in my feet.
@A MySpondylitisTeam Member,
I'm so sorry to hear you're experiencing pain and swelling. This disease is a beast. I hope you find relief soon.
I use horse linamint mint sent. It works amazingly for the aches and pains and also leg cramps and you smell minty fresh lol
I met w/pain management. They are doing a back injection. I've had many with no pain relief at all. My question: Has anyone had a back injection that worked after having many that didn't?
I have ablasions now.
But injection must work for 3 or 4 weeks 50%
Someti.es epidural is better
Once dr finds right spot
Ankylosing Spondylitis with intermittent lower back pain, sometimes in a wheelchair. Constant neck pain. A couple bouts of uveitis. Walking daily helps, but I had 2 traumatic brain injuries last year which I’m still recovering from. Broke 7 bones in my face in May, in August I had a brain bleed and subdural hematoma. I’m currently in therapy for the double vision and balance problems cause by the first fall in May. Also losing my Coonhound on my birthday in December has affected my confidence… read more
I’m looking at rescue groups for a small dog. I’ve always had big dogs except for the Puggle we have now. She’s my husband’s dog. They’re inseparable. 💙
We plan to move 600 mile by the end of April… read more
My "friends" dropped me after my diagnosis and I couldn't be spontaneous with activities. I can't work and have no friends to even TRY to do things with. Does anyone else experience this?
Yes, all the time. Still havent figured out how to make things better. I walk about 2.5 miles a day. That helps some.
I just discovered my AS on my first visit with a rheumatologist... just a week ago. However, I just want to be clear if anyone has the same symptoms that I have and I need additional info as to how you handle it:
1. The doctor said, my AS manifested first on my neck instead of the usual lower back spine. That's why the pain I feel always manifest on my back neck or lower jaw
2. Eating is a trigger to me of flare-ups. When my stomach is full or half-full, every after meal I feel the flare-up… read more
