Thank you everyone for taking the time to share your experiences! God bless you all!
Question...I saw this asked 2 years ago by someone but didn't see many answers. My inflammation markers are negative and HLAB27 is +. I have (in 4 years) developed severe joint facet arthropathy in my lumbar spine and also have SI degeneration. I know this has all happened in 4 years because in 2018 my MRI lumbar was as close to normal as you can get. I have severe stiffness in lower back, following 3 and a half decades of hyper mobility. I have had 2 cervical discetomies as well. I'm having SI… read more
I rarely have elevated inflammation markers such as CRP. My ESR is up at times. It doesn’t mean anything. If you’re symptomatic, especially with the HLA-B27, you probably have AS. I used to try to… read more
I can’t take nsaids because of irritated stomach. Will Tylenol help as much as NSAID’s?
Tylenol alone doesn't help me. However, you might be incredibly helped, like a friend of mine is.
Hi, I'm new to this group. I have severe neuropathy and I believe the Dr. said spondelosis (?), and herniated discs up and down my spine, worst in my neck and low back. All I know is screaming pain, burning, stabbing,etc. I'm in pain management, so I'm given pain killer and muscle relaxer. Since the pain is so unbearable, slot of neuropathy patients are using CBD. Just wondering if anyone has tried it?
Yes - no noticeable arthritis benefit, but watch your blood pressure.
I am sitting here feeling the heat radiating from my body. Does anyone else feel this way but not actually have a fever?
I do feel like I am in somewhat of a flare. My neck is actually hot. Along with lowerback/si joint area. My face and neck actually flush.
If I was a few years older I would think I’m going through menapause! 🤣
Thanks for the replies. It’s always nice to know we aren’t alone. I used to take tumeric. Not sure why I ever stopped
And yes, I get the hot feverish feeling with the shaking. Very strange
Hope… read more
Hey Plum. I have Spondylolithesis. I’m not sure if it’s related to the other two or not. The symptoms seem to be pretty much the same.
Thank you so much. Appreciate your feedback. I will give it a shot for sure.
I was recently diagnosed with AS. I had started Celebrex 3 days before meeting my rheumatologist. The rheumatologist barely read my chart or listened to anything I was saying before telling me I need to start Humira. My inflammation markers are all down to normal ranges after Celebrex. My pain levels are drastically reduced - though I still have SI joint pain. The Dr said Humira stops the disease progression- which is why I need to start. If my inflammation is down, is the disease still… read more
Thank you so much for sharing your story
I agree love my coffee & the stimulus is good then I follow with vitamins to give me energy so the die off of the stimulus is easier to take.
@A MySpondylitisTeam Member. Has anyone CTd your face? Several years ago extreme TMJ sent me looking for answers. Among the many consults, one ENT who did a CT told me he was surprised I wasn't in… read more