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It started in the New Year.. and has just been steadily worsening .: I have increased erosion in both hips, and my SI joints and stenosis in my lower spine.. would that cause the buttocks pain ?
@A MySpondylitisTeam Member I already had mitral valve prolapse but I went from having high blood pressure to low.
My physician is changing my medication from Voltaren to Celebrex because it was not working. What do you take or have taken to control the pain while you change medication therapies we’re doing this for the insurance company to say we have tried two prescription NSAIDs before I start a biologic.
Thanks for the info!!
I had a false negative. I'm going to see my rheumatologist here shortly. When you got your results back what were your next steps? It's section grind just to get out of bed or do anything. I love to… read more
Hi everyone,
I was diagnosed with Ankylosing Spondylitis last year and it really destroyed my world. I was 21 and training to be a professional dancer so it felt like everything I'd been working towards was gone.
The past year I've worked really hard to get my illness under control with medication and lifestyle changes. I'm back dancing and training to achieve my dream. The plan was to try a biologic injection but recent imaging has shown that I don't have active inflammation anymore and my… read more
Hi Yousef,
Many thanks
I just try to eat as balanced a diet as possible, I don't follow any particular regimes. I swim occasionally but I go to the gym and dance regularly.
I take sulfasalazine… read more
@A MySpondylitisTeam Member. Hey there Karen! I didn't realize you are right down the road in PCola!😊. You're only 2 yrs older than me. It affects my whole body, plantar fascia to orbital socket(eye)… read more
The soles of my feet are very painful when I walk. I go with elderly walking groups. They will.not give me any other drug for some reason and have difficulty walking now.
I bought something called a "TENS Unit" on amazon, it is used in most Physical Therapy offices. It sends electrical vibes where you place the sticky pads. I have been using it on my feet at night… read more
I also have scoliosis in my thoracic spine and generalized osteoarthritis so it is alot of pain. How do you cope with pain? It is causing alot of anxiety for me. Thanks to all, Eleanor
I have to accept it and try to ignore it. I really try not to medicate until I absolutely can’t stand it. The pain never gone. I started out on Embrel which was amazingly helpful but started having… read more
I was diagnosed with 'non radiographic' AS (although it's questionable about the NR b/c my doctor saw inflammation on the MRI, brought it to the attention of the radiologist who then agreed) and started with taking Piroxicam at night. Initially and for the first time in my life I woke up in the morning without pain. I then was prescribed Cimzea (the medication for NR AS). It's been close to a year and recently, I started having the same pain in the morning where it's difficult to straighten up… read more
Anything is possible. I've been on medication that I questioned about whether it was wearing off. I quit taking the medication for one week, started back on it and it worked great
Don't do this… read more
I was first on meloxicam, but it made my lower back numb... switched to celebrex helped for a little while? But pain is 3-6 most days. Been seeing a physical therapist for 4 weeks, to strengthen core and quads... but pain is not getting better... thinking of getting 2nd opinion on nr-axspa before trying a biologic... I also have MS...
Thanks so much for this reply!! I will look into all of this.
Thank you everyone for taking the time to share your experiences! God bless you all!